It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +. Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS

How patient-led research could speed up medical innovation

People with long COVID, ME/CFS and other chronic conditions are taking up science to find symptom relief and inspire new directions for professional scientists.

sciencenews.org

@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support youtu.be/WaM2mPzR64w?...

#MESpine #CCI #MCAS

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Here's the recording of the second Peter Rowe talk! He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS. youtu.be/WaM2mPzR64w?...

Here's the recording of the second Peter Rowe talk! He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS. youtu.be/WaM2mPzR64w?...

Peter C. Rowe, MD - Part 2

youtu.be

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Part 2 - Peter Rowe, MD Feb 16 at 2pm EST Dr. Rowe will cover: ✨Bio-mechanical issues including thoracic outlet syndrome ✨Neuro-anatomic problems including cervical stenosis & CCI ✨Mast Cell Activation Register here: us06web.zoom.us/webinar/regi...

Free webinar tomorrow by Dr Rowe, with Q&A. #MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Part 2 - Peter Rowe, MD Feb 16 at 2pm EST Dr. Rowe will cover: ✨Bio-mechanical issues including thoracic outlet syndrome ✨Neuro-anatomic problems including cervical stenosis & CCI ✨Mast Cell Activation Register here: us06web.zoom.us/webinar/regi...

Recording of Part 1 here:

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Watch the recording of Dr. Peter Rowe's talk that he just did for the community: youtu.be/hTNpWjbVhsY?... It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.

Happening tomorrow at 2pm EST! Register here: us06web.zoom.us/webinar/regi... (If you already registered for the 1st one, you don't have to register again.)

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Part 2 - Peter Rowe, MD Feb 16 at 2pm EST Dr. Rowe will cover: ✨Bio-mechanical issues including thoracic outlet syndrome ✨Neuro-anatomic problems including cervical stenosis & CCI ✨Mast Cell Activation Register here: us06web.zoom.us/webinar/regi...

Part 2 - Peter Rowe, MD Feb 16 at 2pm EST Dr. Rowe will cover: ✨Bio-mechanical issues including thoracic outlet syndrome ✨Neuro-anatomic problems including cervical stenosis & CCI ✨Mast Cell Activation Register here: us06web.zoom.us/webinar/regi...

Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS? Start here! Linktr.ee/thenicotinetest

Register to join us next week, if you didn't register for the first one: us06web.zoom.us/webinar/regi... (If you already registered for the first one you don't have to register again. It's the same link.)

Welcome! You are invited to join a webinar: Peter Rowe Renegade Research/RemissionBiome talks. After registering, you will receive a confirmation email about joining the webinar.

Welcome! You are invited to join a webinar: Peter Rowe Renegade Research/RemissionBiome talks. After registering, you will receive a confirmation email about joining the webinar.

us06web.zoom.us

RemissionBiome MECFS/LongCovid Patient-led Research Project@remissionbiome.bsky.social · 3y ago

Watch the recording of Dr. Peter Rowe's talk that he just did for the community: youtu.be/hTNpWjbVhsY?... It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.

Watch the recording of Dr. Peter Rowe's talk that he just did for the community: youtu.be/hTNpWjbVhsY?... It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.

Peter C. Rowe, MD - orthostatic intolerance, brain blood flow, and venous congestion in ME/CFS

Presentation to Renegade Research on February 9, 2024

youtu.be

Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST! Sign up link 👇 us06web.zoom.us/webinar/regi... #MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

RemissionBiome20 gets you 20% off... and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀 Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉

Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝 Have you made your calls yet today? Call guide here: longcovidmoonshot.com

During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.

The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.

The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano ancestralhealth.substack.com/p/the-microb...

The Microbiome's Impact on Health

Listen now | With Alessio Fasano, MD

ancestralhealth.substack.com

Community engagement makes research better, a win for science! www.nature.com/articles/s41...

Privilege and prejudice must be recognized for equitable research partnerships - Nature Medicine

Not involving communities throughout the research process may be attributable to prejudice and a failure to recognize privilege. The result is a loss for all involved.

nature.com

@lifeanalytics.bsky.social machine learning for the win! www.thecrimson.com/article/2023...

Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?

In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!

Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/

β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC www.ncbi.nlm.nih.gov/pmc/articles...

β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target ...

Coronavirus disease (COVID-19), caused by novel severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), is an ongoing pandemic and presents a public health emergency. It has affected millions of...

ncbi.nlm.nih.gov

My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social - I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.

Frontiers | Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications for Autoimmune Diseases www.frontiersin.org/articles/10....

Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications fo...

We sought to determine whether immune reactivity occurs between anti-SARS-CoV-2 protein antibodies and human tissue antigens, and whether molecular mimicry between COVID-19 viral proteins and human ti...

frontiersin.org

phys.org/news/2023-11...

Researchers identify bacterial mechanism for vitamin B12 uptake

A team of scientists led by Dr. Ulrich Kleinekathöfer, professor of Theoretical Physics at Constructor University in Bremen, has now discovered how B12 is absorbed by certain intestinal bacteria. Pub...

phys.org

Excellent 🧵 about CDC's new page on "chronic symptoms following infections" www.cdc.gov/ncezid/what-...

It's ME(Jaime)@exceedhergrasp1.bsky.social · 3y ago

Some highlights: ✨Lists pathogens known to lead to chronic symptoms, inc. COVID, Borrelia, EBV ✨Talks about how some symptoms are specific to pathogen, others are generalized/common to many infection-associated chronic illnesses ✨Explicitly lampshades ME/CFS as a consequence of multiple pathogens

The weight of a pineapple can certainly feel like the weight of the galaxy www.sciencealert.com/the-immune-s...

The Immune System Weighs The Same as a Pineapple, Study Finds

Depending on the person.

sciencealert.com

My episode of www.ancestralhealth.org/ today podcast with @jenbrea.bsky.social is now out. Listen and subscribe on Substack ancestralhealth.substack.com/p/mecfs-and-...

ME/CFS and Long Covid

Listen now (91 mins) | With Jen Brea

ancestralhealth.substack.com

www.livescience.com/health/scien...

Scientists unveil 'atlas' of the gut microbiome

A new computational tool has allowed scientists to map how microbes interact in the gut, and it could one day be used to develop more-targeted therapies for diseases.

livescience.com