Caregiver experiences of caring for a child with lifelong care needs reveal health, social & financial inequities. This study asked what the care-related responsibilities, challenges & support needs are for caregivers of children/young adults with lifelong care needs? ➡️ https://ow.ly/ABI850ZVtXg

This study explored the association between participation involvement and well-being (as seen through affect) among transition-aged youth with physical disabilities. 🔗 Read the publication here: https://ow.ly/PBoB50ZVtGF

This study explored service providers’ (SPs’) knowledge, confidence, experiences, and perceptions of using the F-words for Child Development when supporting children and youth with disabilities or developmental concerns. 🔗 Read the publication here: https://ow.ly/RNjy50ZVtgG

Registration is now open for CP-NET Science and Family Day 2026! 🌟 On Monday, October 5th, 2026, join us virtually for a day of learning, connection, and knowledge-sharing centred around this year's theme of Independence & Interdependence. 🔗 Register now: https://ow.ly/HPyE50ZNmL1

👉 This study explored the perceptions of parents and physiotherapists regarding movement skills in young children (aged 5 years and under) with juvenile idiopathic arthritis (JIA). 🔗 Read more: https://ow.ly/XBuw50ZLUSI

This publication describes a qualitative secondary data analysis of perspectives from two studies that examined how trust is built and maintained when teachers and SLTs work together to implement an interactive Universal Tier 1 reading program. 🔗 Read more: https://ow.ly/MSzM50ZKJwk

👉 Our team of family partners and researchers explored how learners in the FER Leadership Academy felt about the course and how they were using the knowledge and skills gained in the course through interviews with 10 learners. 🔗 Read more: https://ow.ly/ONz850ZHMuk

Back to school, together! 📚🌟 As a new school year begins, we’re excited to highlight two new resources developed through the Partnering for Change (P4C) project! 🔗 Explore the resources! For Educators: https://ow.ly/EkhG50ZHJ6m For Families: https://ow.ly/w7Rw50ZHJ6n

This open access publication describes an evaluation of a 12-week knowledge translation (KT) initiative designed to strengthen collaboration between occupational therapists and teachers supporting students with special needs in inclusive schools. 🔗 Read more: https://ow.ly/JofK50ZHLwJ

Congratulations to CanChild Associate Member, Dr. Darcy Fehlings, who has been elected a 2026 Fellow of the Canadian Academy of Health Sciences! 🌟 Read more here! 🔗 https://ow.ly/OlLU50ZHGLK

This case report explored how CanChild’s F-words for Child Development and F-words Lens Tool can help healthcare professionals and families think about the many areas of development together when planning support. 🔗 Read more: https://ow.ly/6jZA50ZHorm

How is "vulnerability" defined and used in speech-language pathology (SLP) research — and does it matter? A new critical interpretive synthesis digs into this important question. 🔗 Read the publication here: https://ow.ly/aMZr50ZCLWv

This study aimed to evaluate the feasibility of a multicenter randomized-controlled trial implementing a virtual transition coach intervention (TCI) for youth transitioning from pediatric to adult rheumatology care. 🔗 Read more: https://ow.ly/5VvJ50ZCLUX

This paper describes the development of a new programme: Community Opportunities For Family Engagement and Empowerment, and Play and Learning Accessible for Youth (COFFEE and PLAY). 🔗 Read more: https://ow.ly/OiKj50ZBYzP

This scoping review examined how well social communication interventions for autistic children align with strength-based and family-centred approaches in speech-language pathology (SLP). 🔗 Read more: https://ow.ly/vahU50ZAHwA

This study aimed to identify the perspectives of providers and parents in the NICU/follow-up clinic and early intervention on the supports preterm infants and their families need during the transition to home after the NICU hospital stay. 🔗 Read more: https://ow.ly/C8Gu50ZyB1R

This nationwide study included 456 Brazilian children and adolescents with cerebral palsy (CP) across all Gross Motor Function Classification System (GMFCS) levels, providing one of the largest datasets on physical activity in this population. 🔗 Read more: https://ow.ly/mnsw50ZyAuo

This study translated and validated the About My Child (AMC) questionnaire, a family-centred instrument that assesses caregiver concerns and their perceived impact on daily activities for children and adolescents, into Brazilian Portuguese. 🔗 Read more: https://ow.ly/k8Lb50Zxenu

🌟 CanChild’s co-founder, Peter Rosenbaum, has spent more than four decades helping transform the way the world thinks about childhood-onset disability—and at 82, he's still teaching, researching, and inspiring meaningful change. 🔗 Read the Hamilton Spectator feature: https://ow.ly/bAjC50ZwBCu

This study examined strategies used to support youth and young adults (ages 12–25) with physical disabilities in participating in 127 chosen activities. More than 500 documented intervention strategies were analyzed. Read more: https://ow.ly/h0Kz50ZwcGl Learn about PREP: https://ow.ly/nk6w50ZwcGp

This nationwide study will investigate participation in recreational and community activities among 500 Brazilian children and adolescents with Autism Spectrum Disorder (ASD) across all five regions of Brazil. 🔗 Read more: https://ow.ly/537y50ZuunO

In this study, parents and service providers participated in the ENVISAGE-Integrated program and shared their experiences. The findings suggest that bringing them together as co-learners may strengthen collaboration and supportive partnerships for children and families. 🔗 https://ow.ly/nv2l50Zu20q

This study describes how families are currently engaged at two childhood-onset disability research organizations, CanChild and Kids Brain Health Network, and the strengths, weaknesses, opportunities, and threats (SWOT) to organizational-level family engagement 🔗 Read more: https://ow.ly/oms850ZtSJA

Thank you @macupediatrics.bsky.social for sharing our story and celebrating the impact of our work around the world! We are proud to reflect on an incredible EACD 2026 and grateful to our colleagues, families, and partners who continue to help move childhood-onset disability research forward! 🌟🌎

McMaster University Department of Pediatrics@macupediatrics.bsky.social · 3mo ago

Nearly 40 years after CanChild was founded, its research is helping shape childhood-onset disability care around the world. Discover how the F-words for Child Development are creating global impact. Learn more ⬇️ pediatrics.healthsci.mcmaster.ca/how-a-mcmast... #pedsky #medsky #childhealth

This review maps how Prechtl's General Movements Assessment and the Motor Optimality Score–Revised have been used in infants with developmental central hypotonia across 12 diagnoses including Down syndrome, hypotonic cerebral palsy, and Prader-Willi syndrome. 🔗 Read more: https://ow.ly/bHvL50ZlFee

This article examines transition-related health systems, policies, and provider roles in the context of Duchenne muscular dystrophy (DMD), utilizing integrated care and continuity of care frameworks. 🔗 Read more: https://ow.ly/mMIj50ZlEIB

In this chapter, Peter Rosenbaum reflects on the evolution of family-centred service in childhood disability and its emergence as a cornerstone of best practice in child and family health care. 🔗 Read the full chapter here: https://ow.ly/xQ3V50ZloBJ

Congratulations to Ummeed Child Development Center on an incredible milestone—25 years of making a difference! 🎉 We are proud to celebrate this achievement with our colleagues and especially with Dr. Roopa Srinivasan, a valued CanChild Associate Member. Congratulations on 25 remarkable years! 🌟

The F-words promote a holistic, strengths-based and family-centred approach to child health and development. This study explored family caregivers’ knowledge, attitudes and uses of the F-words as well as their perceived barriers and facilitators to using them. 🔗 Read more: https://ow.ly/ivWt50ZloAL

From the perspective of the International Classification of Functioning, Disability and Health (ICF), this study investigated how different factors influence activity performance and participation in everyday life. 🔗 Read more: https://ow.ly/jFZF50ZloxL