CJ 🚀 🪐

@cmannyjr.bsky.social

🇬🇷🇵🇷🏳️‍🌈 30. He/Him. I have ADHD and an internet connection so I could post about quite literally anything, primarily in English but sometimes I post in Greek or Spanish too 🤷🏻‍♂️ very often NSFW 🔞 Discord: cmannyjr

guys the guy who from the ventilator company who is working with us to get Luis’ vent at home is so fucking hot. Tall, muscular, bearded with a deep voice. Fffffffuck I keep forgetting how to act when he comes in.

i’m not saying I strong-armed Luis into taking a sleeping medicine they offered him so that I could also sleep (cause otherwise he has me up all night) but I definitely strong-armed him into taking a sleeping medicine so that I could also sleep

hi all! our ventilator for the house should arrive here within 3-4 days. Once it’s here, we’ll have to spend a night here with the new ventilator to make sure it works before they send us home. overall, we’re looking at monday - tuesday discharge.

Hi guys, just leaving this here. No pressure. Luis is going to have to go home with a sort of BiPap machine on steroids and we’re going to have to make a lot of changes at the house. Any help is appreciated 🫶🏻🩷🫶🏻

Support Luis Miguel

Hello family and friends!This year has been one of the hardest we’ve ever faced. Month after month, Luis has spent more time in the hospital than at home as complications from his spinal muscular atro...

supportnow.org

ngl jerking off when I got to the house earlier actually really helped calm me down lmao like idk how I even got myself horny enough to do it considering everything going on but DAMN it did the trick for a sec

it’s hard to be drowning like this but it’s even harder when the people drowning along with you seem to be drowning in a different pool, and they’re all helping each other in their pool, but nobody is checking on my pool where i’m drowning too.

luis always has his worst / most anxious nights when I haven’t slept the night before 🙃🙃 like boy per science, I am as impaired cognitively as I would be if I had a BAC of 0.1%. I can’t even manage my own emotions right now.

not to be vulnerable but I, frankly, feel like I’m drowning, like there’s a literal stack of titanium bricks on my chest at any given moment of the day. and I’m mad. I’m so fucking mad. and I don’t even know what I’m mad at i’m just mad. and i’m mad and I’m sad and i’m scared

I was hoping this wouldn’t be the case, both for his sake and my sake, but the doctors just came in and it’s very likely Luis will be going home with a ventilator. This isn’t bad necessarily, because it means he’ll have breathing support at home, but it’s going to very negatively (1/2)

lots of weird and new medical related trauma from this past year and what am I doing to cope with it? watching grey’s anatomy and the pitt so I can see fictional people go through medical related trauma instead

update: we have officially downgraded to “Pressure Support” mode of the ventilator. What this means is that Luis is initiating every breathe himself, the ventilator is not starting them. Once he starts a breathe, the ventilator gives him a little extra air to make it a full breathe.

CJ 🚀 🪐@cmannyjr.bsky.social · 2w ago

update: tried again to take the vent out. He lasted longer than last time but still isn’t fully ready. They’ll try again tomorrow. We’re taking things day by day.

we had a decent night. he woke up around 2-3 and has been up since. He’s much more with it now and seems to be breathing over the vent, so i’m thinking we’ll be able to move him to “oxygen support” mode instead of full manual ventilation today.

CJ 🚀 🪐@cmannyjr.bsky.social · 2w ago

update: tried to take the vent off already, he didn’t start breathing until he was awake. so they still don’t think he’s quite ready. will try again tomorrow.

He’s doing alright, all things considered. He’s sleeping and wakes up a little bit but is out of it when he does wake up. His oxygen is back up at 100 with the vent. They think he had a massive plug in his trache but we won’t know for sure until they do a bronchoscopy.

CJ 🚀 🪐@cmannyjr.bsky.social · 2w ago

hi guys we could really really really use all of your good vibes today. I am on my way up to Jacksonville urgently. Luis’ blood oxygen dropped to and stayed at 70 this morning and he’s now in the ER on a ventilator. I’m not sure what’s going on or what will happen.

hi guys we could really really really use all of your good vibes today. I am on my way up to Jacksonville urgently. Luis’ blood oxygen dropped to and stayed at 70 this morning and he’s now in the ER on a ventilator. I’m not sure what’s going on or what will happen.

Luis’ mom got us one of those cute little robots that has a camera and microphone so I can see him and talk to him even when he doesn’t have his phone 🥰 i’m really just gonna use it to annoy the hell out of him though hehe