🚨 Some time ago, we have written to the authors of the “Clinical Care Guide” (Bateman Center) to express our deep concern about its portrayal of #LongCOVID. While it addresses PEM, POTS & MCAS, it largely ignores the broader reality of this disease: 🔗 longcovidriseup.eu/bateman-letter/

BATEMAN LETTER

A letter to the Bateman institute

longcovidriseup.eu

Hemos mantenido una reunión con la Asociación Long Covid Aragón @longcovidaragon.bsky.social 😷 Apoyamos sus reivindicaciones y, por ello, desde el PSOE propondremos a las Cortes reconocer oficialmente esta enfermedad en todas las instituciones sanitarias.

Seguimiento multidisciplinar, más investigación, cubrir plazas vacantes y reforzar la atención sanitaria. Long COVID Aragón lleva al Parlamento una batería de propuestas para mejorar la respuesta pública ante una enfermedad que sigue afectando a miles de personas: https://arainfo.org/?p=328505

Long COVID Aragón vuelve a llamar a la puerta de las Cortes: “No podemos seguir esperando”: https://arainfo.org/long-covid-aragon-cortes-no-podemos-seguir-esperando/

Los afectados por covid persistente en Aragón reclaman más información sobre el funcionamiento de la consulta monográfica heral.do/38gic1

Los afectados por covid persistente en Aragón reclaman más información sobre el funcionamiento de la consulta monográfica

La asociación Long Covid Aragón inicia una ronda de contactos con los grupos parlamentarios para recabar apoyos para impulsar mejoras urgentes en la atención sanitaria, la investigación y la coordinación institucional. 

heral.do

📣 1 month left to submit! The 4th Long COVID International Conference takes place 12–13 Nov 2026 in Nice. Share your latest research and help shape the global discussion. Deadline: 12 June 2026 Submit: amededu.co/4rASrj6 #LongCOVIDIntl @academicmededu.bsky.social #LongCOVID

🗣️ Acción pacífica pacientes franceses: hartos de que se piscologice su enfermedad, han tomado la palabra en una conferencia en la que se decía que la #CovidPersistente era algo psicológico, en contra de la evidencia científica existente, y los asistentes se lo han impedido. #LongCovidIsReal Gracias!

Winslow Santé Publique@winslowsp.bsky.social · 5mo ago

Lien vers la version intégrale de cette 1ere intervention, avec sous-titres automatiques en anglais 👇 www.youtube.com/watch?v=WK0T...

Support Long Haulers 🩵🤍🖤❤️‍🩹🫂😷https://masktogetheramerica.org/blog/long-covid-defense-series-iii

Long COVID Defense Series III featuring 6 Virtual Q&A Sessions — Mask Together America

March 4, 2026, 4:30pm - 9:00pm EST Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historical struggle. On March 4, 2026....

masktogetheramerica.org

Nothing about us without us.

“Nothing about us without us.” Delphine Crespo, President of Association of Long COVID Aragon @longcovidaragon.bsky.social explains what the Global Long COVID Declaration stands for. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️‍🩹😷 masktogetheramerica.org/blog/long-co...

Angela L. @lcawarenessint.bsky.social shares her struggle as a Long Hauler raising 2 kids who are also impacted by #LongCOVID, and one developed T1D after COVID. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵❤️‍🩹🫂😷 masktogetheramerica.org/blog/long-co... #LongCovidKids

"I’m fighting to improve my life and career while living with #LongCOVID an invisible battle that leaves us like ghosts in our own lives." Meet 2x-GRAMMY/EMMY nominee Nina Storey & 🐶Bubsie, stars of "Strangely Optimistic"—dramedy for ES Disability Film Challenge 🔗ℹ️ www.instagram.com/p/DWmqR8ykUg...

Delphine Crespo, President of Association of Long Covid Aragon @longcovidaragon.bsky.social shares her understanding of Long COVID (LC), as a patient and LC Community rep in Spain. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️‍🩹😷 masktogetheramerica.org/blog/long-co...

Angela L., Creator of Int. Long COVID Awareness Day @lcawarenessint.bsky.social shares how Mar 15 was chosen for the day of resilience and what the 3 colors on the LC ribbon stand for. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍❤️‍🩹🫂 masktogetheramerica.org/blog/long-co...

Devin Russell, Co-Founder of Long COVID Foundation, shares his haunting experience living with #LongCOVID. Watch #MaskTogetherAmerica LC Defense Series III. Support Long Haulers 🩵🤍🖤❤️‍🩹🫂😷 masktogetheramerica.org/blog/long-co... @lcawarenessint.bsky.social

Watch #MaskTogetherAmerica #LongCOVID Defense Series III masktogetheramerica.org/blog/long-co... @longcovidaragon.bsky.social @cleanairie.bsky.social @elisaperego78.bsky.social @lcaireland.bsky.social @lcawarenessint.bsky.social @michael-hoerger.bsky.social @drcorthals.bsky.social

Long COVID Defense Series III featuring 6 Virtual Q&A Sessions — Mask Together America

March 4, 2026, 4:30pm - 9:00pm EST Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historical struggle. On March 4, 2026....

masktogetheramerica.org

Responding to a question on whether “Long COVID” should be viewed as mysterious, Elisa Perego PhD @elisaperego78.bsky.social who coined the term, opposes classifying the multi-systemic condition as a “Mysterious” cluster of unexplained chronic symptoms. Watch: masktogetheramerica.org/blog/long-co...

Queremos dar las GRACIAS de corazón al @realzaragoza.bsky.social y a su capitán, #FranchoSerrano, por el vídeo que grabaron ayer especialmente para el mes de la concienciación sobre la #COVIDPersistente. Su apoyo es un impulso enorme para todas las personas que conviven cada día con esta enfermedad

Seis años después de la pandemia, 2,4 millones de personas viven en el Estado español con covid persistente ‼️ Long Covid Aragón denuncia falta de reconocimiento, investigación y atención sanitaria y convoca concentración el 15 de marzo en Zaragoza: https://arainfo.org/?p=322997

When health communication remains outdated, the virus circulates freely and continues to cause damage. Millions of people are living with #LongCovid : they are a constant reminder of this. There is an urgent need to evolve. #Prevention #LongCovidAwareness

🔴 New poster diptych. COVID is transmitted through the air, and through ignorance. Ignorance of the data. Ignorance of blind spots. #PublicHealth Link : winslow.fr/ressource...

Join #LongCOVIDAwareness discussions at Defense Series III, March 4, 2026, 4:30pm-9pm EST in honor of patients and allies tirelessly advocating for health justice in this historic struggle, 6 Q&A sessions will feature an extraordinary panel of speakers. masktogetheramerica.org/blog/long-co...

LCDefense III 4:35pm Delphine Crespo @longcovidaragon.bsky.social 5:10pm Dr. Ciara Steele @cleanairie.bsky.social 5:45pm Pamela Morrison @lcaireland.bsky.social 6:20pm Elisa Perego PhD @elisaperego78.bsky.social 6:55pm Angela L. @lcawarenessint.bsky.social 7:35pm Devin Russell Long COVID Foundation

🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats 👉 Every patient counts, every heartbeat counts. (Youtube channel with several languages : www.youtube.com/playlist?lis...)

2026--Six years. Still sick. Still raising awareness for prevention & treatments! #LongCovidAwareness #LongCovid #LongCovidKids #LongCovidHeartbeats #LongCovidAwarenessDay #LongCovidAwarenessWeek #LongCovidAwarenessMonth #LitForLongCovid #OneInfectionAway #TakeActionAgainstLC

📣 En el marco del Día Internacional de la #COVIDPersistente #LongCovidAwarenessDay, convocamos una concentración: 📍 Plaza España, #Zaragoza 🕛 a las 12:00 horas 🩵 Os esperamos con familiares y amigos para que se nos visibilice 🫂 @lcawarenessint.bsky.social @longcovidriseup.bsky.social

María, una de las más jóvenes de AMACOP Amiga, compañera, embajadora de los pacientes de Covid Persistente, Disautonomía y otras Enfermedades Raras Su positividad y alegría lo llenaba todo, aunque estuviese entrando y saliendo del hospital

El día 4 de marzo a partir de las 22h30, hora española peninsular 💯📣 👉 Hay que registrarse para poder asistir! Muchas gracias a @togetherwemask.bsky.social y @msjulieslam.bsky.social por la organización 🫶

Julie Lam@msjulieslam.bsky.social · 8mo ago

Join #LongCOVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historic struggle. On March 4, 2026, 5:00pm-9:00pm EST, 6 Q&A sessions will feature an extraordinary panel of speakers. masktogetheramerica.org/blog/long-co...

LCDefense III: 4:35pm Delphine Crespo @longcovidaragon.bsky.social 5:10pm Dr. Ciara Steele @cleanairie.bsky.social 5:45pm Pamela Morrison @lcaireland.bsky.social 6:20pm Elisa Perego PhD @elisaperego78.bsky.social 6:55pm Angela L. @lcawarenessint.bsky.social 7:35pm Devin Russell Long COVID Foundation

Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historic struggle. On March 4, 2026, 5:00pm-9:00pm EST, 6 Q&A sessions will feature an extraordinary panel of speakers. masktogetheramerica.org/blog/long-co...