Nancy Goodman

@nancygoodman.bsky.social

PRV reauthorization, Give Kids a Chance Act, Race for Children Act. Mom to 2 awesome humans, missing Jacob (10), problem: patents don’t incentivize pediatric drug development.

We went into action. Social media stories blew up the internet. We were covered by CNN, ABC, MSNBC, STATNews, Newsweek, Rolling Stones, The Bulkward. We had one more chance. At 11:50 pm, 12/20/24, the last hour of this Congress, the Senate UC’ed our bills. Rand Paul objected. The vote failed.

We were elated on December 17th when Congress included our pediatric cancer drug development bills, the reauthorization of the pediatric priority review voucher program and the Give Kids a Chance Act, in the federal end-of-year funding bill. We were so close to victory.