This Epilepsy Explained video discusses status epilepticus (SE), answering questions, like: 👉 Why is it a medical emergency? 👉 What causes SE and who is most at risk for it? 👉 What research is being done on SE and potential treatments? Watch here: https://bit.ly/3VBWxgN

Status Epilepticus Explained

Dr. Jaideep Kapur, MD/PhD, explains Status Epilepticus, a series of seizures that last longer than 5 minutes and can result in severe, long-term impacts on the patient.

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Thank you so much to our Night of Discovery Presenting Sponsors, The Cafaro-Livingston Charitable Trust and GCM Grosvenor, and Diamond Sponsor, The Ann G. & James B. Ritchey Foundation! We are so grateful for their generosity and commitment to finding cures for epilepsy.

Last chance! Join us for our next Pipeline of Progress webinar. Learn about the latest research regarding therapeutic devices for epilepsy, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. Register here: https://bit.ly/4wIXjWg

Pipeline of Progress: Therapeutic Devices on the Horizon

This webinar is the second in our Pipeline of Progress series, created especially for people living with epilepsy and the loved ones who support them.This int...

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At our next webinar, learn about a few different technological advances in therapeutic devices, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. Get clear information & real insights. Register: https://bit.ly/4wIXjWg

A recent study shows that a gut-derived chemical may prevent epilepsy from developing following TBI. The treatment reduced brain inflammation, improved memory/mood, protected brain cells, reduced seizures, and made it harder to trigger a seizure. https://bit.ly/4vFFabd

Scientists tame seizures and heal injured brains with gut chemical – Texas A&M Stories

A natural therapy heals brains after traumatic injury, making seizures both harder to trigger and rarer, while pointing to a future that could cure epilepsy.

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Join our next webinar on evolving tech in epilepsy, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound. You’ll get clear information, real insights, and a hopeful look ahead. Register now here: https://bit.ly/4wDl3uW

Pipeline of Progress: Therapeutic Devices on the Horizon

This webinar is the second in our Pipeline of Progress series, created especially for people living with epilepsy and the loved ones who support them.This int...

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New research links #depression risk in children with #epilepsy to disruptions in the brain’s default mode network. The findings may help identify measurable biomarkers and support more personalized care, especially for adolescents. 🔗 https://bit.ly/458o4Yt

Study Links Brain Network Interactions to Depression Risk in Pediatric Epilepsy

A team of researchers have identified a potential neurobiological marker for depression risk in children with epilepsy by studying how brain lesions interact with functional brain networks.

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A first-time unexplained seizure could be an early warning sign of undiagnosed cancer, according to a study of nearly 50,000 adults. Researchers found an increased risk of both neurological and non-neurological cancers, especially within the first year. https://bit.ly/4fgdZgQ

Cancer Risk May be Increased After Unexplained First Seizure, Finds Study

In a recent study, researchers found that first-time seizures are linked to an elevated short-term risk of cancer.

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🔬 New Episode: Epilepsy Explained on Genetic Testing Elizabeth Gerard, MD, provides clear answers to frequently asked questions about epilepsy genetic testing. Watch the full episode here: https://bit.ly/4gI6cL4 Supported by an independent educational grant from GRIN Therapeutics.

The #Dravet community knows #epilepsy is more than seizures. The National Plan for Epilepsy Act would help create a coordinated federal strategy to prevent, diagnose, treat, and cure the epilepsies while improving lives. ⏰ Ask Congress to support it today ➞ tr.ee/ZL47AzWcX2

We joined an international group of stakeholders to publish a consensus paper on SUDEP priorities and recommendations to better understand risk and prevention. Recs focus on creating better infrastructure, tools, data, access and education. https://journals.sagepub.com/doi/10.1177/15357597261442391

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

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As part of our ongoing SUDEP Risk Assessment and Prevention Initiative, we're proud to announce the SUDEP Clinical Biomarker Team Science Award. Made possible in part through a generous gift from the @epilepsyfoundation.bsky.social three teams will advance knowledge of SUDEP risk factors.

Epilepsy research news 🔬 Inflammatory Cytokine Signatures: Distinguishing Drug-Resistant from Drug-Responsive Patients via @epilepsybehavior.bsky.social https://www.cureepilepsy.org/news/inflammatory-cytokine-signatures-in-epilepsy-distinguishing-drug-resistant-from-drug-responsive-patients/

Inflammatory Cytokine Signatures in Epilepsy: Distinguishing Drug-Resistant from Drug-Responsive Patients

The study suggests that inflammatory cytokines could eventually serve as biomarkers to help predict disease severity or treatment response.

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Epilepsy research news 🔬 The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It via UC San Francisco https://scienceblog.com/the-brain-has-a-warning-system-for-its-own-electrical-misfires-and-we-can-now-read-it/

The Brain Has a Warning System for Its Own Electrical Misfires, and We Can Now Read It

Every second of the day, in roughly half of the 50 million people living with epilepsy, the brain stages tiny rebellions. Not seizures, exactly, but

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Epilepsy research news 🔬 Treatment of Rare Childhood Epilepsy Could Begin Before Birth via @feinberg.northwestern.edu https://www.cureepilepsy.org/news/treatment-of-rare-childhood-epilepsy-could-begin-before-birth

Treatment of Rare Childhood Epilepsy Could Begin Before Birth

A new study suggests intervention to prevent epilepsy could start during pregnancy — as early as 15 weeks of gestation.

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Last year, we partnered with the Focused Ultrasound Foundation for their first-of-its-kind workshop on treating epilepsy with focused ultrasound. Our CSO Dr. Laura Lubbers reflects on the 5 biggest takeaways in a recent blog post. Check it out here: https://bit.ly/4dnjT00

Focused Ultrasound for Epilepsy: From Promise to Path Forward - Focused Ultrasound Foundation

In November 2025, I had the privilege of joining more than 50 global experts in Charlottesville, Virginia, for a first-of-its-kind workshop hosted by the Focused Ultrasound Foundation in partnership with CURE Epilepsy. Our shared goal was both ambitious...

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Epilepsy research news 🔬 Epilepsy Gene Implicated in Severe Migraine Disorder via @feinberg.northwestern.edu https://www.cureepilepsy.org/news/epilepsy-gene-implicated-in-severe-migraine-disorder

Epilepsy Gene Implicated in Severe Migraine Disorder

Researchers have identified mutations in the gene SCN2A as a new cause of Familial Hemiplegic Migraine (FHM), a rare and severe form of migraine that can cause temporary weakness or paralysis on one side of the body during attacks.

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The latest Epilepsy Explained, shares info on making appointments as effective as possible. Watch here: https://bit.ly/4nCrDPb This episode is supported by an independent educational grant from @sklifescience.bsky.social. CURE Epilepsy is solely responsible for selection of presenter & content.

The PAME Conference brings together epilepsy researchers, health care providers, nonprofit leaders, and people impacted by epilepsy, including bereaved families, to share knowledge and work together to prevent epilepsy mortality. Learn more: https://pameonline.org/event/2026-pame-conference/

Apply now for the Rare Epilepsy Partnership Award (1yr/$100,000), co-funded by a rare epilepsy advocacy group: Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Research Foundation, or ZTTK SON-Shine Foundation. https://www.cureepilepsy.org/for-researchers/grants-program/#rare-epilepsy

Grant Programs and Opportunities – CURE Epilepsy

Each year, grants are funded based on promising trends in the field and the potential for breakthroughs in a specified area.

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Pediatric neurologists, dietitians, pediatricians, and neurosurgeons, this one's for you. Join the @amepilepsysoc.bsky.social on May 28 for a webinar Early Intervention & Evolving Evidence: New Guidelines in Infantile Epilepsy. Learn more: https://aesnet.org/infantile-epilepsy-guidelines

Infantile Epilepsy Guidelines

Evidence-based guidance for the diagnosis and management of infantile epilepsy.

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Save the date! UNITE to CURE Epilepsy is April 23. This is a day for the community to drive research forward and accelerate the search for a cure. Thanks to the generosity of Jonathan and Julia Tuteur, your gift will help unlock a $25,000 match. More: https://bit.ly/4vxbyhg

ICYMI: The first Pipeline of Progress series webinar covered epilepsy meds on the horizon. Watch the recording here: https://www.cureepilepsy.org/webinars/pipeline-of-progress-epilepsy-medications-on-the-horizon/ This series is supported by Lundbeck, Stoke Therapeutics, and Xenon Pharmaceuticals.

Pipeline of Progress: Epilepsy Medications on the Horizon

An interactive review of some of the epilepsy medications in phase III clinical trial as of April 2026 with audience Q&A.

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150 epilepsy orgs are united behind the bipartisan #NationalPlan4Epilepsy Act (S.494 / H.R. 1189). We need your help to move this legislation forward. Take 5 minutes to contact your members of Congress and ask them to sign on. 👉 Take action here: https://bit.ly/NP4E

This episode of Epilepsy Explains, we explore catamenial epilepsy. Dr. Alexa King answers questions like: 💜 What is it? 💜 How is catamenial epilepsy diagnosed? 💜 When should someone find a specialist? Catch the episode on our website here: https://bit.ly/4utpOqE

Save the date! Night of Discovery is happening 9/16. CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices. More info: https://bit.ly/4lBY13m

Join us for a webinar and Q&A about epilepsy medications in Phase 3 clinical trial. You’ll get clear information, real insights, and a hopeful look at what the future of epilepsy treatment may hold. Register now here: https://us02web.zoom.us/webinar/register/5217730738236/WN_zeGoNN4lRHO2hoKViIFaqA

We have selected 5 organizations to collaborate with for the next round of Rare Epilepsy Partnership Awards! We'll be partnering with Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Foundation, and ZTTK SON-Shine Foundation. We can't wait to see what exciting projects follow!

CDEs standardize ways of describing and collecting data, harmonizing biomedical research. Learn how we fueled the creation, review, and dissemination of CDEs for epilepsy, most recently for preclinical SUDEP research: https://bit.ly/4b8z6Rd

Harmonizing Epilepsy Research: Common Data Elements

CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data.

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The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place. ➡️ Learn more: https://bit.ly/4c7PfaA