SarcoidosisUK

@sarcoidosisuk.bsky.social

SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure. Find out more: www.sarcoidosisuk.org

Today is National Helplines Awareness Day and we want to take this opportunity to say thank you to our incredible nurses✨ They have made over 4,500 calls and provided empathetic sarcoidosis support to patients, their family and friends, and more. Thank you!

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"It was so helpful and encouraging to speak to someone with both personal experience of sarcoidosis and professional knowledge about the condition. I learnt a great deal from the conversation and feel positive about how to approach the next appointment with my consultant." - Nurse Helpline Caller, February 2026

Fact or Fiction⁉️ This is fiction! Despite pulmonary sarcoidosis being the most common form of sarcoidosis, 10% of patients will have no lung involvement at all. Do you have any lung involvement?

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We’d like to give a huge shout out and thank you to Alex, along with his Dad Paul, for hosting their third annual fundraising event in memory of Julie Dawson. We are so thankful for their continued support and for raising much needed awareness of sarcoidosis 💙

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Join our London Support Group on their trip to Kew Gardens this Sunday! This in-person support group will meet at 11am, and is open to anyone affected by sarcoidosis in London and surrounding areas. To find out more, please email info@sarcoidosisuk.org.

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Join us for the next North West Support Group meeting taking place on Monday 18th August at 6:45pm! This is a virtual event, taking place on Zoom, and is open to anyone in the North West. If you would like to join, please contact info@sarcoidosisuk.org for more details!

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Join us for the next North West Support Group meeting taking place on Monday 14th July at 6:45pm! This is a virtual event, taking place on Zoom, and is open to anyone in the North West. Please contact info@sarcoidosisuk.org for more details!

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Join us for the next London Support Group meeting taking place on Monday 7th July at 7:00pm! This is a virtual event, taking place on Zoom, and is open to anyone in London or the surrounding areas. Please contact info@sarcoidosisuk.org for more details!

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