We need your help this Sarcoidosis Awareness Month 📣 Every pound we receive in April will go directly into our research fund. Run, bake, game, dance, or challenge yourself this April for a brighter sarcoidosis future 🌟 Click here for inspiration: sarcoidosisuk.org/wp-content/u...
SarcoidosisUK
@sarcoidosisuk.bsky.social
SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure. Find out more: www.sarcoidosisuk.org
Our 2026 Research Innovation Award is open for applications! Find out more here: sarcoidosisuk.org/research/inn... We need your help to go further and continue funding innovative sarcoidosis research. Please consider making a donation today: sarcoidosisuk.org/donate/donat...
Sign up to @easyuk and when you shop online with your favourite retailers, they’ll donate to us. It’s free and your shopping won’t cost you any extra – the retailers you shop with will donate, not you! join.easyfundraising.org.uk/sarcoidosisu...
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Today is National Helplines Awareness Day and we want to take this opportunity to say thank you to our incredible nurses✨ They have made over 4,500 calls and provided empathetic sarcoidosis support to patients, their family and friends, and more. Thank you!
We are thrilled to receive funding from the #NationalLottery Community Fund thanks to #NationalLottery players! Thank you! Our Support Groups are a place for anyone affected by sarcoidosis to get empathetic support. Find out more: www.sarcoidosisuk.org/support/supp...
For many people with sarcoidosis, it's an 'invisible' illness. It can be hard to explain why you may have to cancel plans last minute or are too exhausted to leave bed. This can leave you feeling lonely or isolated. Explore the support we have available: www.sarcoidosisuk.org/support/your...
Did you see we have 14 new sarcoidosis factsheets? These are a fantastic resource to help educate anyone affected by sarcoidosis and to share with family and friends: sarcoidosisuk.org/information-...
Fact or Fiction⁉️ This is fiction! Despite pulmonary sarcoidosis being the most common form of sarcoidosis, 10% of patients will have no lung involvement at all. Do you have any lung involvement?
This #trusteesweek, we want to say a HUGE thank you to our incredible Board of Trustees. Their insights help us to ensure that our commitment to our community remains strong and genuine at every level. Thank you 💙
Sign up to support SarcoidosisUK on the easyfundraising app today and we’ll get a £2 bonus! Using the easyfundraising app means you'll raise free funds for us whenever you shop online this Black Friday and Christmas — at no extra cost to you. www.easyfundraising.org.uk/easyfundrais...
Jess’s Rule is a new primary care initiative to encourage GPs teams to rethink a diagnosis. You can find out more about Jess's Rule here: england.nhs.uk/long-read/je... Jess's Rule encourages seeking second opinions and specialist referrals, often crucial for a sarcoidosis diagnosis.
A big thank you to everyone who raises free funds for us on #easyfundraising. If you're not signed up yet, join today and you can raise donations for us every time you shop online! Sign up before midnight 2nd November and we could win a £1,000 donation: join.easyfundraising.org.uk/sarcoidosisu...
You spend, brands donate to SarcoidosisUK.
Help us when you shop with 7,000+ brands. Join now.
join.easyfundraising.org.uk
Today is World Mental Health Day and we know that having a rare disease can take a huge toll on your mental health. Remember to check in with yourself today. If you have found yourself struggling, take a look at our 'Sarcoidosis and Mental Health' page here: www.sarcoidosisuk.org/support/sarc...
We are looking for new trustees! 📣 Would you like to help set strategic direction for the charity? Could you act as a guardian of our vision and values? Do you have an interest in sarcoidosis? We would love to hear from you! Find out more: www.sarcoidosisuk.org/join-our-boa...
We’re doing a major survey of patients and supporters to find out what do we do well, what could we do better and what else can we do to support our community. Have your say and help to shape our next steps. Click here to 'Have Your Say' today: forms.gle/WPAS8kXBPY2s...
We’d like to give a huge shout out and thank you to Alex, along with his Dad Paul, for hosting their third annual fundraising event in memory of Julie Dawson. We are so thankful for their continued support and for raising much needed awareness of sarcoidosis 💙
Join our London Support Group on their trip to Kew Gardens this Sunday! This in-person support group will meet at 11am, and is open to anyone affected by sarcoidosis in London and surrounding areas. To find out more, please email info@sarcoidosisuk.org.
We are looking for new trustees! 📣 If you would you like to help set strategic direction for the charity, act as a guardian of our vision and values and have an interest in sarcoidosis, we would love to hear from you! Click here to find out more: www.sarcoidosisuk.org/join-our-boa...
This bank holiday weekend, why not give our sarcoidosis themed wordsearch created by Jacqui Newton a go! Download the wordsearch here: www.sarcoidosisuk.org/wp-content/u... We also have a large text version available if needed: www.sarcoidosisuk.org/wp-content/u... Good Luck! 🎉
Join us for the next North West Support Group meeting taking place on Monday 18th August at 6:45pm! This is a virtual event, taking place on Zoom, and is open to anyone in the North West. If you would like to join, please contact info@sarcoidosisuk.org for more details!
Today, our Sarcoidosis Facebook Support Group turns 10! A special shout out to our amazing volunteer moderators who help to keep our groups free of spam, and full of support - we couldn't do it without you! Click here to join our Facebook community: www.facebook.com/groups/sarco...
Have you seen our Support Services Poster? We know that sarcoidosis can be confusing and isolating, particularly for newly diagnosed patients. We hope this poster will let patients know that we're here for them. You can order this poster here: store.sarcoidosisuk.org/product/supp...
We've had 53 donations in the last 30 days, thanks to our supporters using #easyfundraising when they make online purchases! Thank you! It's never too late to sign up and help us if you haven't already. Plus, join today and we could win a £500 donation: join.easyfundraising.org.uk/sarcoidosisu...
You spend, brands donate to SarcoidosisUK.
Help us when you shop with 7,000+ brands. Join now.
join.easyfundraising.org.uk
Join us for the next North West Support Group meeting taking place on Monday 14th July at 6:45pm! This is a virtual event, taking place on Zoom, and is open to anyone in the North West. Please contact info@sarcoidosisuk.org for more details!
SarcoidosisUK welcomes the UK Government’s decision to remove changes to Personal Independence Payments from the recent welfare bill until after the Timms review.
Join us for the next London Support Group meeting taking place on Monday 7th July at 7:00pm! This is a virtual event, taking place on Zoom, and is open to anyone in London or the surrounding areas. Please contact info@sarcoidosisuk.org for more details!
In celebration of #SmallCharityWeek, we're taking a moment to highlight how our work is made possible through incredible support! We truly benefit from our supportive sarcoidosis community thanks to our remarkable volunteers and supporters. Thank you for everything you do!
We have created a 'Newly Diagnosed' page to help answer some of those burning questions, such as 'what is the outlook?', 'what support is available?', and 'how can I prepare for an appointment?'. Check out our newly diagnosed page here: sarcoidosisuk.org/information-...
It's that time of year again! ☀️ As temperatures rise, many people affected by sarcoidosis are at a higher risk of health problems. Luckily there are many ways to stay cool and lessen the impact of the heat. Click here to find out more: www.sarcoidosisuk.org/staying-cool...
We're registered on #easyfundraising which means you can raise free donations for us when you shop online from over 8,000 retailers! Sainsbury's, Argos, Just Eat and more are ready to donate at no extra cost to you. Sign up today and we could win £500: join.easyfundraising.org.uk/sarcoidosisu...
You spend, brands donate to SarcoidosisUK.
Help us when you shop with 7,000+ brands. Join now.
join.easyfundraising.org.uk