An excellent piece on the challenges of mortality data in the US. Read @us.theconversation.com article, and then read the academic pub: dl.acm.org/doi/10.1145/...

5 years on, true counts of COVID-19 deaths remain elusive − and research is hobbled by lack of data

Death data in the US is fragmented, incomplete and inconsistent. The consequences of undercounted deaths and lack of real-time tracking continue to be felt with each new public health crisis.

theconversation.com

Dylan Thomas Doyle, PhD.@dylantdoyle.bsky.social · last yr.

I wrote a thing! Covering research on data access to medical researchers. Co-authored with @cfiesler.bsky.social @jesspater.bsky.social @whatknows.bsky.social — thanks to @theconversation.com @us.theconversation.com for the opportunity! @cuboulder.info

I haven't found corroboration of this exact list yet, but this does appear to be legitimate, per Nature. Apparently "around 10,000 research grants have been flagged for review and distributed to various programme directors"--in OTHER directorates. www.nature.com/articles/d41...

Exclusive: how NSF is scouring research grants for violations of Trump’s orders

The US National Science Foundation has unfrozen grant funding, but it continues to scrutinize research projects, sowing turmoil.

nature.com

Darby Saxbe@darbysaxbe.bsky.social · 2y ago

🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.

Excited to announce our new project and grant: “DIY Commemoration of the Dead”, a Discovery Project funded by the Australian Research Council (ARC) 🎉⚰️ Led by experts from #unimelbourne, @ox.ac.uk, and @cuboulder.info. Details in the thread. #deathcare #deathpositive #deathsky #griefsky #research

My favorite slide from a talk I gave this week about the launch of the Digital Legacy Clinic (@digital-legacy.bsky.social) at @cuboulder.info. I wasn’t certain if I had done enough research, but a year ago Liz Gerber gave me the right push at the right time. Grateful for her support! #digitallegacy

WE HAVE LAUNCHED A NEW CLINIC FOR END-OF-LIFE TECHNOLOGY SUPPORT! Led by Dr. Jed Brubaker, our research team at CU Boulder now offers free consultation for anyone doing end-of-life planning for their own data or managing data of their loved ones. Please share! 🎉 www.colorado.edu/today/2024/1...

Are your digital affairs in order? A new pro-bono clinic can help

CU’s Digital Legacy Clinic helps people take steps to preserve their own legacy or manage the virtual heirlooms of loved ones who have died.

colorado.edu

Lots of hard work to get to today 😅 -- but I couldn't be happier to launch our new clinic!

Digital Legacy Clinic@digital-legacy.bsky.social · 2y ago

Launching today at @cuboulder.bsky.social! From planning your digital affairs to navigating a loved one’s digital afterlife, we provide the public with guidance and support to make the process easier. Learn more: digitallegacyclinic.com #DigitalLegacy #TechForGood #EndOfLifeSupport #CUBoulder

Great news for Ancestry. And I’ll admit I’m touched whenever companies decide to also call their service Legacy Contact.

Obligatory first post.