“I’m practically #bedbound so going anywhere is a huge production. Just leaving my house results in a multi-day setback. Having to for multiple days and stay somewhere unfamiliar? It can wreck me.” https://www.disabledginger.com/p/what-if-this-flare-never-ends @broadwaybabyto.bsky.social #disability

“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness

“People with chronic pain live through this night after night. It can become a harrowing cycle, since a lack of sleep can ramp up pain levels, which results in another wide-awake night — even when we take our medication.” buff.ly/2yajY29 #PainAwarenessMonth #ChronicPain #Painsomnia

“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness

“The real hardships come from the repercussions of being in #pain all the time—the exhaustion, mental blur, inability to connect… because of the constant blinding discomfort… Even the simplest things become so complicated.” https://www.theodysseyonline.com/why-does-nobody-understand-that-im-ill/

“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #InvisibleIllness

“There are millions of #patients who have taken #opioids safely for years… Opioids actually gave them more life, because they were able to work, exercise and function when their pain was properly managed.” buff.ly/44n9aec @PainNewsNetwork.bsky #ChronicPain #CRPS

“Your pain scale shifts when you have chronic pain. When doctors ask what your pain is on a scale of 1-10, I had to ask, 'your 1-10 or mine?'” 23 Things That Help You Understand What #ChronicPain Is Really Like https://www.buzzfeed.com/anthonyrivas/chronic-pain-all-day-everyday #PainAwarenessMonth

“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to sleep, you don’t get good rest.” buff.ly/2z8ll20 #Painsomnia #PainAwarenessMonth

“As the world outside continues to turn, I remain laid up in the one thing that eases any physical pain. The mental pain it causes however hurts much more.” What It's Really Like to Stay in Bed Due to Pain https://themighty.com/topic/chronic-illness/struggles-of-being-bed-ridden/ #PainAwarenessMonth

“It can feel like #ChronicIllness is like living in a prison. Symptoms imprison you to spending a large amount of time at home… Your world becomes smaller and smaller, leading to loneliness and isolation.” Silent Symptoms https://buff.ly/3IhCuKh @despitepain.bsky #ChronicPain

“People who are not familiar with #chronicillness often don’t understand that energy levels in people with chronic illness are different from able-bodied people—and our usable hours in a day are different as well.” https://themighty.com/topic/fibromyalgia/chronic-illness-activity-hangover/ #spoonie

“The nerves misfire, sending constant #pain signals to the brain. The agony is so intense…it’s measured as one of the most severe on the McGill Pain Index… Yet because this is invisible, the impact on sufferers is not acknowledged or understood.” buff.ly/QLBmOQ2 #CRPS #ChronicPain #ChronicIllness

“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” https://themighty.com/topic/fibromyalgia/fibromyalgia-flare-reminders

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness

Why Do I Pretend To Be Well?

Why Do I Pretend To Be Well?

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“It demands our full attention, and it takes most of our energy—being in pain… Maybe you want to advocate for people with #ChronicPain — Maybe the pain has taught you something that you can put into #writing or #art or #poetry or #music or song.” https://themighty.com/2017/07/hope-and-chronic-pain/

“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” https://buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone

“The way you keep fighting each day, through every struggle, shows such great strength. I see you getting back up, each time life knocks you down… To everyone one of you reading this, thinking “I am not enough”… You are, and will always be.” https://buff.ly/3zFCnVs #ChronicPain #ChronicIllness

“Fatigue from pain is a different kind of #fatigue that you will never understand without living with it. People who are fatigued from pain don’t have the energy to do basic tasks… You can’t sleep and make it better.” https://buff.ly/F4yheHR #ChronicPain #ChronicIllness

“Whether it’s the awful symptoms, the side effects, the isolation or the mental anguish that comes with being stuck in a body that you want a refund for. But together we are so much stronger. We will lift each other when one of us falls.” https://buff.ly/0XIC0HH #chronicillness #chronicpain

“There is a reason why you only see me on good days; because I only let you see me on such days. My worst days instead spent behind closed doors… where no one can see my tears when the pain is more than I can bear.” buff.ly/3y8Osod @serenebutterfly.bsky.social #FND #ChronicIllness #ChronicPain

“If you struggled to shower today; if you can’t get out of bed because the #ChronicPain is so bad… If you’re crying at 2am… know #YouAreNotAlone We are all warriors, fighting battles nobody sees or understands.” https://themighty.com/topic/chronic-pain/what-you-need-to-know-young-chronic-pain

“We all know just how bad #ChronicPain can be—I often speak with my #ChronicallyIll friends online who live with v different diseases—yet we have empathy for one another because we’re actually able to comprehend what it means to live with unbearable pain.” https://buff.ly/HWGEskH @achronicvoice.bsky

“Despite being absolutely mentally and physically exhausted, I can’t sleep… It’s debilitating. It’s exhausting. It comes with the territory of multiple chronic illnesses… Please don’t tell a #chronicallyill person that you feel tired too.” https://buff.ly/1GgYTPg #ChronicPain #Painsomnia #Fatigue

“I feel loss… I hate that I am weak, and tired, and in pain each day. I can’t stand the limitations in my life… I feel that I let people down all the time…and that is hard to accept. Because I know I am trying my hardest.” https://buff.ly/3yylrjg #chronicallyill #disability #chronicpain

“They don’t realize how guilty I feel about having to cancel plans or not being able to give them a solid ‘yes’… It’s hard to cancel when your heart breaks to do so, but you have no choice… I never know how I’m going to feel.” https://themighty.com/2018/09/sick-disabled-canceling-plans/ #disability

“It can be incredibly hard with #chronicillness when we gain a new comorbid condition to re-adjust to new limitations on top of our existing ones. We already feel like we adapting and adjusted all we could and we have to start all over again.” https://buff.ly/nZC41dL #ChronicPain

“This is me without the “mask.” This is me sick, nauseated, dizzy, in an obscene amount of pain, and completely exhausted… This is the part of me I normally hide… This is exactly what I don’t want people to see.” https://buff.ly/3PscRYx #Sjogrens #chronicillness #chronicpain

“A brain in pain is over-activated and over-stressed. Parts of the brain that would normally get time to rest don’t get a break with #ChronicPain… It’s much harder to have a conversation […] when a bunch of people are talking to you at the same time.” https://buff.ly/40IRdoy

“For many with #ChronicPain, mornings can be one of the most challenging times… It may take several hours of gentle stretching and waiting for medications before it’s possible to even get out of bed. It can be incredibly difficult.” https://themighty.com/topic/chronic-pain/mornings-chronic-pain-tips