In this episode of Immune Matters, guests Dr. Rebecca Marsh and Dr. Dani Arnold discuss Chiron- a data interaction tool designed by the PIDTC for researchers in the field of immune deficiency. They explore Chiron's features and clinical applications. Tune in! www.youtube.com/watch?v=i0h4...
Primary Immune Deficiency Treatment Consortium
@pidtc.bsky.social
The Primary Immune Deficiency Treatment Consortium (PIDTC) is part of the NIH's Rare Diseases Clinical Research Network and consists of 47 centers in North America with a centralized computerized registry with the aim to improve patient outcomes.
On the third episode of Immune Matters, Dr. Jen Heimall, an expert in severe combined immune deficiency discusses the diagnosis, management, and importance of newborn screening. She shares insights from her research on treatment outcomes and a lot more! www.youtube.com/watch?v=dvci...
On our second episode of “Immune Matters”, Dr. Jennifer Leiding discusses Chronic Granulomatous Disease. She explains the dual nature of immune deficiency and autoimmunity in CGD, the role of transplantation, and the expectations for families receiving a diagnosis. www.youtube.com/watch?v=eKOv...
On our first episode of the PIDTC podcast “Immune Matters”, guests Dr. Blachy Davila and Dr. Jessie Alexander, delve into Wiskott-Aldrich syndrome, a rare X-linked immunodeficiency affecting boys. www.youtube.com/watch?v=6rty...
We are extremely excited to announce that the PIDTC launched its Podcast “Immune Matters” on youtube! Please subscribe to our channel www.youtube.com/@PIDTreatmen... – and tune in to Dr. Jack McDonnell and Dr. Elie Haddad as they explore the complex world of primary immunodeficiency.
Meet our leadership! Rebecca Marsh, MD is the Clinical Director of the PID Program and HLH Center at Cincinnati Children’s Hospital. She was first author of the publication on improvement of CGD IBD following allogeneic transplant amongst other pivotal works as a member of the steering committee.
Meet our leadership! Elie Haddad, MD, PhD is a clinician researcher in pediatric immunology at CHU Sainte-Justine in Montréal, Québec, Canada. As Co-Principal Investigator of the PIDTC and a member of its steering committee, he has provided strategic scientific leadership.
Meet our leadership! Christopher Dvorak, MD is the Chief of the Allergy, Immunology and BMT division and a Professor of Pediatric Hematology–Oncology at UCSF Benioff Children’s Hospital. As Co-Principal Investigator of the PIDTC, he plays a central role in coordinating multicenter research efforts.
Meet our leadership! Troy R. Torgerson, MD, PhD is the director of Experimental Immunology at the Allen Institute for Immunology. As a member of the PIDTC steering committee, Dr. Torgerson contributes his expertise in translational immunology to help guide the consortium’s ongoing research.
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