Michelle Dawson

@autismcrisis.bsky.social

off-message autistic researcher

In autism intervention research, influential studies are of such rock-bottom quality that those involved (with COIs) devised autism-specific low standards to accommodate the abysmal state of the literature. Of course, discarding & lowering standards this way harms autistics--it would harm anyone

Darren Dahly@statsepi.bsky.social · 14h ago

Most systematic reviews and meta- analyses now include some assessment of study quality but these don't usually impact a review's conclusions. It's typically just some tick boxes or traffic lights and vague qualitative statements. We should instead filter out poor studies. What is wrong with us?

Parents on harmful behaviors in autistic children journals.sagepub.com/doi/10.1177/... "The spectre of suicide was a constant reality for these families" "Parents described their Autistic child saying, 'can you please kill me, Mummy?'... 'talking about hating life & not wanting to be alive anymore'"

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Early autism screening? at ages 6, 9, & 12 months, all screeners "performed poorly"--e.g. on M-CHAT-R, "the vast majority of children screened positive" onlinelibrary.wiley.com/doi/10.1002/... at ages 18 & 24 months "findings clearly support the use of multiple screeners, with repeated screenings"?

Autism Screening in the First Year and Beyond: Comparison of Multiple Measures

Autism screening aids in early detection and diagnosis. Several screeners are available for toddlers 16 months and older, but there is little data on the accuracy of screening measures used in the fi...

onlinelibrary.wiley.com

Age at first autism diagnosis vs well-being?--data from MoBa (N=2,483), free journals.sagepub.com/doi/10.1177/... "Taken together, these results indicate that both the observational relationship between age at autism diagnosis and well-being and its confounding are more complex than anticipated"

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"terminology preferences... suggested only modest overall differences in liking & offensiveness ratings between autistic parents, autistic non-parents, & non-autistic parents"? journals.sagepub.com/doi/10.1177/... "Notably, 'profound autism' was especially strongly disliked in this sample" (N=3,181)

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