Inspired by #NationalWellnessMonth this August, we want to share some important reminders to help ease the stress and anxiety that can be experienced when living with adrenal insufficiency, including Addison's disease. Visit our website for more information and support ⬇️ https://loom.ly/wsVOqrs

Put 1 Sept in your diary as Injection Practice Day! The day to check your kit and practise the emergency injection with those close to you. 🗓 Tell your loved ones: 1 Sept = Injection Practice Day ✅ Order your Injection Training Kit 💉 Refresh your technique 🔗 Learn more: https://loom.ly/ISYeY5o

A special #FundraiserFriday ✨ What began as one fundraiser has grown into a family effort spanning four generations. From races to walks, bake sales, a school fundraiser and even a 90th birthday celebration 🎉 👉 Read more 🔗 https://www.addisonsdisease.org.uk/news/four-generations-one-cause

💜 This #InternationalDayOfFriendship, we're celebrating those who make life with adrenal insufficiency, including Addison's disease, a little easier. Don't forget, our online forum connects you with a welcoming and supportive community that understands. 💬 Join here 👉 https://loom.ly/TBcserE

🎯 Help us reach our target of 1,000 survey responses and improve adrenal crisis care! Eligibility: 👤 Are aged 18 or over 🩺 Receive medical care in the UK 📋 Have been diagnosed with adrenal insufficiency 💊 Are taking glucocorticoid replacement treatment Take part ➡️ https://loom.ly/YaPyAug

🎥 2026 AGM videos now available! Catch up and hear the latest ADSHG updates, watch Dr Kempegowda and Dr Ling's AC-RESCUE research presentation, and celebrate long-standing volunteer Noel Hawks, who received the Deana Kenward Award 2026 🏆 Read more and watch the videos ➡️ https://loom.ly/uu-r1yI

Catch Up on Our 2026 AGM – Videos Available Now

Catch-up and watch back our 2026 AGM covering updates on the charity's work, presentation on AC-RESCUE research to improve UK adrenal crisis care and award for volunteer Noel Hawks.

addisonsdisease.org.uk

Don't just take our word for it... here's what one of our members had to say about our last Get-Together 💜 The countdown has begun for our next one in Manchester this September! Get your tickets and join us for a day of learning, connection and community. 🎟️ RSVP 👉 https://loom.ly/4fMV3uc

This #FundraiserFriday we're sending a huge thank you to Leigh & Chris for taking on the incredible Welsh 3000s Challenge in memory of Mike while raising funds for our charity 🤝 👉 Donate here 🔗 www.justgiving.com/team/superman-mike-sargeant Thank you both for your incredible support ✨

👋 Meet Lottie, a paramedic living with Addison's 🚑 As someone who has experienced emergency care from both sides, Lottie has a unique perspective on what helps ensure your diagnosis is recognised quickly in an emergency. Read Lottie's tried-and-tested tips on our blog ⬇️ https://loom.ly/Ym3520g

Lottie's Story: As a Paramedic with Addison's, My Top Tips for Turning Awareness into Action

Lottie, a paramedic living with Addison's herself, shares her tried-and-tested tips for ensuring healthcare professionals know your diagnosis when it matters most. Read on, take note, and let this be your prompt to take action!

addisonsdisease.org.uk

Today we celebrate the birthday of Saint Elizabeth of the Trinity (1880-1906). What was life like as an early Addison’s patient? In our Famous Lives article, Fr. Tom Dowd reflects on her life and struggles with adrenal crisis due to lack of treatment. 📚 Read more ➡️ https://loom.ly/VgSs_yk

Famous Lives – Saint Elizabeth of the Trinity

Learn about the life of Saint Elizabeth of the Trinity (Elizabeth Catez), who had Addison's disease and was canonised in 2016. We look back on her life as an early Addison’s patient and her struggles ahead of her death following multiple adrenal crises as there was no treatment available.

addisonsdisease.org.uk

Meet other members in Shoreham-by-Sea 🤝 📅 Saturday 22 August, 11am - 1pm 📍 Shoreham-by-Sea 👥 ADSHG Members only 👉 RSVP 🔗 https://www.addisonsdisease.org.uk/shoreham-by-sea-aug-26 A huge thank you to Wendy for giving her time to host this event and helping bring our community together 💜

Shoreham-by-Sea Local Meet-Up: 22 August 2026 - 22/08/2026 11:00:00

Join Wendy at their local meet-up in Shoreham-by-Sea on Saturday 22 August 2026.

addisonsdisease.org.uk

☀️ Going away this summer? Whether you're travelling abroad or staying in the UK, pack a copy of our adrenal crisis guidelines in the language of your destination. Visit our website for more tips, including on injection kits and airport security ⬇️ https://loom.ly/Ol7jusQ

Be prepared for travelling

Travelling with Addison's & adrenal insufficiency means there are a few more things to think about before you set off: language, access to medication and health support, travelling with injection kits, temperature differences etc. Read on for more information on things to consider when you go on holiday!

addisonsdisease.org.uk

✨ Our recent Reading Member Get-Together welcomed those affected by adrenal insufficiency to learn from the experts, share experiences and connect with others. Take a look through our Reading photo gallery 📸 https://loom.ly/VL56lQM RSVP to our Manchester Get-Together 🎟️ https://loom.ly/4fMV3uc

Reading Member-Get Together - March 2026

Our photo gallery of a fantastic afternoon with over 90 delegates and a stellar panel of endocrine healthcare professionals, all facilitated by the staff and volunteers of the Addison's Disease Self-Help Group (ADSHG)

addisonsdisease.org.uk

📢 Young person with adrenal insufficiency (including Addison's)? Or the parent of one? We've got an opportunity for you to make a real difference! Help shape new UK-wide sick day and emergency management resources for children, young people and families. Get involved 👉 https://loom.ly/GCBCtME

Take Part: Improve Sick Day Guidance for Young People

Calling families and young people with adrenal insufficiency! Help us improve sick day guidance for children and young people with adrenal insufficiency.

addisonsdisease.org.uk

In their blog, Finnley shares his journey of adapting to life with Addison's & his goal of returning to America to continue his football career. Meanwhile, his mum has turned their experience into a mission to raise awareness & funds for the ADSHG 💜 👉 www.addisonsdisease.org.uk/finnleys-story

Finnley's Story: From Diagnosis to Determination

Meet Stacey and Finnley, a mother and son whose lives changed dramatically after Finnley became critically ill while studying and playing football in the United States. Just months into his football scholarship, he was diagnosed with Addison's disease following a life-threatening adrenal crisis.

addisonsdisease.org.uk

🎉 Join us in Manchester for our Member Get-Together – all affected by Addison's & adrenal insufficiency welcome! 📅 Sat 26 Sept 🎟️ Early bird tickets available 💉 Optional Injection Training session (morning) 👥 Medical speaker, expert Q&A & breakout groups Register 👉 https://loom.ly/4fMV3uc

Manchester Member Get-Together: 26 September 2026 - 26/09/2026 11:00:00

Join our second Member Get-Together in 2026, to be held in Manchester on Saturday 26 September. Find out more and how to get your tickets!

addisonsdisease.org.uk

Can you spare one minute to help us win £5,000? 💜 🤝 Please nominate us here 🔗 https://movementforgood.com/draws/special/community?cn=1179825&ct=community ⏳ Nominations close this Sunday - so please don't miss out! Thank you for your support 🙌

Today is the anniversary of the death of Dr Thomas Addison, who first identified #AddisonsDisease whilst @gstt-nhs.bsky.social around 1850. A dedicated researcher & diagnostician, who we remember & thank today. https://www.addisonsdisease.org.uk/dr-thomas-addison

Famous Lives - Dr Thomas Addison (1793-1860)

Addison’s is a medical condition named after Dr Thomas Addison (1793-1860), a brilliant researcher and diagnostician, who discovered and gave his name to Addison's disease.

addisonsdisease.org.uk

A huge thank you to everyone who hosted an Addison’s Afternoon Tea this year! ☕ From gatherings in homes to events in church halls and workplaces, teas were hosted all across the UK, bringing people together in support of the ADSHG. 💜 To donate, please visit 🔗 www.justgiving.com/campaign/aat2026

We're pleased to announce that shipping is now available for leaflets to the EU, USA & Canada 🌍 📄 Leaflets only ⚖️ Shipping cost calculated by weight 📬 2 delivery options (depending on amount of leaflets) 🚚 Tracked delivery in 3–5 business days Learn more & shop here ➡️ https://loom.ly/BFIwPRg

🚨 Have you taken part in our online survey yet? If you live in the UK, are 18+ and have adrenal insufficiency (including Addison’s disease), please take part in this important research. 📝 Anonymous online survey 💬 Option to register for a 1:1 interview Take part ➡️ https://loom.ly/YaPyAug

☀️ Has the hot weather got you craving something salty? You're not alone, meet Lynsey, whose pickle addiction inspired a stunning photoshoot raising awareness of Addison's disease! Read her story on our blog 🔗 https://loom.ly/Gy7X3t4 Thank you Lynsey for sharing your story & beautiful photos!

Lynsey's Story: The Pickle Photoshoot Part 2

Lynsey who has Addison's used her skills as an interiors and still life stylist to create a colourful photoshoot to explore one of the symptoms Addison's: craving salt. Here she shares with us the story behind her pickle addiction photoshoot.

addisonsdisease.org.uk

🔥 The UK is heating up this week! As temperatures soar, we're sharing some important reminders for staying safe and well in the hot weather if you have adrenal insufficiency, including Addison's. ☀️ Visit our website for more tips on handling the heat ➡️ https://loom.ly/Y-q7c7I

Our small but mighty charity spent the day with brilliant volunteers from Becton Dickinson (BD) for their #DifferenceInADay Marathon. With our team, BD brought their expertise to one of our biggest challenges: reducing delays in recognising & treating adrenal crisis in emergency settings. 1/2

Meet-up in Milton Keynes 💜 Join our wonderful volunteer, Harue, for a warm and welcoming local meet-up in Milton Keynes! 📅 Saturday 4 July, 4-6pm 📍 Milton Keynes 👥 ADSHG Members Only ✉️ RSVP here 🔗 https://www.addisonsdisease.org.uk/milton-keynes-jul-26

Milton Keynes Local Meet-Up: Sat 4 July 2026 - 04/07/2026 16:00:00

Join Harue at their local meet-up in Milton Keynes on Saturday 4 July 2026.

addisonsdisease.org.uk

Thank you @giuliabould.bsky.social for raising awareness of #AddisonsDiseaseDay on BBC Radio 5 Live🎙️ Listen to Giulia here 👉 www.youtube.com/watch?v=pcWV... Giulia knows first-hand that adrenal crisis is time-critical and the need for improved education ⬇️ www.addisonsdisease.org.uk/emergency

Listen to Giulia Bould on BBC Radio 5 Live for Addison's Disease Day 2026!

YouTube video by Addison's Disease Self-Help Group

youtube.com

Did you know fundraising can be good for your mental wellbeing? ✨ Psychologists call it the "helper's high" - the positive feelings that can come from helping others 🤝 👉 Ready for your next challenge? Get in touch 🔗 www.addisonsdisease.org.uk/fundraising-ideas

🎉 Congratulations to Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham & DEVI Collaboration who are the 2026 winners of the £10,000 Professor John Wass Research Grant for their RESCUE: Adrenal Crisis Study. Read the full article 🔗‍️ https://loom.ly/Dd1dJYY

Professor John Wass Research Grant Winner 2026

We are proud to award a £10,000 grant to support Dr Punith Kempegowda and Dr Amanda Ling from the University of Birmingham with their research into the management of adrenal crises in UK hospitals. The data collected will help clarify best practice and drive improvement in adrenal crisis care.

addisonsdisease.org.uk

🎉 Thank you to the incredible @socendocrinology.bsky.social endocrine nurses & volunteers who ran an awareness stand for #AddisonsDiseaseDay 2026! 14 stands (& counting!) were held across the UK 👏 ✨ Feeling inspired? Find out more ➡️ https://loom.ly/uWtaqpw

@aace.org.uk is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @addisonsdisease.bsky.social UK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (23 June) at www.addisonsdisease.org.uk/Event/parame...

Paramedic Training: 23 June 2026 - 23/06/2026 13:00:00

A Zoom session focusing on adrenal crisis and the emergency management of steroid dependency for patients with Addison's disease and adrenal insufficiency.

addisonsdisease.org.uk