An unusual end to an excellent @ukkidney.org #UKKW26….sadly no flight home tonight or tomorrow from Leeds so fingers crossed we make it Leeds->Manchester and get home that way tomorrow evening! Hope everyone else travelled safely home. #RenalResearchNI #RareDiseaseNI @claire-hill.bsky.social
Prof AJ McKnight
@aj-mcknight.bsky.social
Interested in bioinformatics, healthy ageing, kidney & rare diseases, Shelties, books, & randomly weird facts...Professor of Molecular Epidemiology & Public Health
💗 Love Your Kidneys – They’ll Love You Back! 💗 📍 Part of Love Your Health at QUB WWIEM for NI Science Festival 🔗 lnkd.in/ethSwjpK 💙 Thanks to our funders: @vivensa.bsky.social • @lifearc.bsky.social • @kidneyresearchuk.org • lnkd.in/eJkEMSvH @aj-mcknight.bsky.social
Teamwork! En route to our @lifearc.bsky.social @kidneyresearchuk.org rare #kidney disease meeting in Solihull today, supported locally by the Northern Ireland Kidney Research Fund #RenalResearchNI #RareDiseaseNI
Couple of hours after high tide and still impressive! Wow…
✅ 11 #epigenetic markers associated with progression of diabetic #kidney disease #DKD ✅ #methylation changes predictive of DKD progression ✅ methylation data+ clinical risk factors improved identification of risk #RenalResearchNI @finndiane.bsky.social @niinasandholm.bsky.social 👀 rdcu.be/e0bUC
Sharing progress and strategic planning at our #RareDisease UK Mirror and Action Group for @erdera.bsky.social yesterday. Excellent conversations in Leeds! #RareDiseaseNI.
Delighted to have contributed to developing UK #RareDisease quality standards within our 4-nation project led by Sue Farrington rarediseaseqs.org -> draft quality standard for consultation 6-20 Jan 2026 Have your voice heard! #RareDiseaseNI - please add your perspectives on what matters most!
Developing QS for rare disease across the rare disease community
Developing quality statements for rare disease via consensus across the rare disease community.
rarediseaseqs.org
Thank you for our funders supporting this research, including @vivensa.bsky.social @ukri.org @mdukcharity.bsky.social NI Kidney Research UK NI HSC R&D & @lifearc.bsky.social
Thanks to @claire-hill.bsky.social & Dr Grace McMacken showcasing their research in our @qubelfastofficial.bsky.social Molecular Epidemiology & Public Health team-packed RVH room today. #Ageing #RareDiseaseNI #RareDisease #ClinicalTrials #RenalResearchNI #RARDTAC #Neuromuscular #kidney.
Thanks to @claire-hill.bsky.social & Dr Grace McMacken showcasing their research in our @qubelfastofficial.bsky.social Molecular Epidemiology & Public Health team-packed RVH room today. #Ageing #RareDiseaseNI #RareDisease #ClinicalTrials #RenalResearchNI #RARDTAC #Neuromuscular #kidney.
Congratulations to everyone nominated in the @qubelfastofficial.bsky.social staff excellence awards…scrolling through I had a lovely surprise to see my name listed for Outstanding #leadership. Thank you! It’s been a busy year with lots of success for our Team’s ECRs! www.qub.ac.uk/sites/staff-...
Nominations 2024-25 | Staff Excellence Awards | Queen's University Belfast
qub.ac.uk
Exciting #RareDiseaseNI launching our @ukri.org funded, co-developed online resource empowering unpaid carers supporting their loved ones with a rare disease. By carers, for carers - thank you caringwithrare.org #RareDisease #carer #caregiving
Home | Caring with Rare
A safe space for carers and families affected by rare conditions. Find stories, guidance, and tools to support your caring journey.
caringwithrare.org
NI 2024-25 Progress Report for Rare Diseases Action Plan, highlighting our @lifearc.bsky.social Centre for acceleration of RD trials & doctoral training program in #RareDisease building capacity, skills and accelerating access to medicines. #RareDiseaseNI www.health-ni.gov.uk/news/departm...
Department publishes 2024-25 Progress Report on the Northern Ireland Rare Diseases Action Plan
Health Minister Mike Nesbitt has welcomed publication of the third progress report on the Northern Ireland Rare Diseases Action Plan.
health-ni.gov.uk
Great talk by @claire-hill.bsky.social about environmental sustainability in research at our #ECREvent - sharing learning from The Laboratory Efficiency Assessment Framework.
It’s certainly a very busy time for #RareDiseaseNI. Good to connect with colleagues and meet new friends at today’s #CamRARE25. Excellent event hosted by @camrare.bsky.social as always. Thanks for the opportunity to participate :) safe home everyone #RareDisease
Productive discussions with my co-chairs of the Clinical implementation and data enhancement research community last week @genomicsengland.bsky.social #RareDisease #RareDiseaseNI
Delighted to have launched activities within our #RareDisease clinical and academic research network yesterday. Excellent conversations & cake! Thanks all who contributed - formal pics and report to follow! @qubelfastofficial.bsky.social #RenalResearchNI #RareDiseaseNI #RARDTAC
Delighted to have our in-person launch for yr 1 of our @ukri.org NILAB doctoral training program. @qubelfastofficial.bsky.social @ulsteruni.bsky.social students and faculty gathering today :) #ArtificialIntelligence #BigData #DataScience #HealthyAgeing #RareDiseaseNI #RenalResearchNI
🧬 PhD Opportunity | Using Molecular Biomarkers of Aging to Decode Health Inequalities 🧬 📅 Deadline - 8th December 2025 🔗 Apply now or learn more: lnkd.in/eWhnyVQg @vivensa.bsky.social @aj-mcknight.bsky.social @qubelfastofficial.bsky.social
Interested in #RareDisease; therapies for #orphan conditions; #HealthEconomics? #Job with Prof McCabe and #RareDiseaseNI @qubelfastofficial.bsky.social working with our @lifearc.bsky.social Centre for Acceleration of Rare Disease Trials team. Closes 29/09/2025 hrwebapp.qub.ac.uk/tlive_webrec...
Job profile
hrwebapp.qub.ac.uk
Honoured to have attended the Royal Hillsborough Garden Party this week. #RareDiseaseNI @QUB @RAiNAllIreland #RARDTAC #RareDisease gaining recognition!
New #Job opportunity with our #RareDiseaseNI team. Experience communicating with stakeholders? Enjoy using multimedia tools? Want to support our local rare disease community? Apply by 8th Sept!
#job 18.5 hr/wk closes 25th Aug. Help us map & improve how people affected by #RareDisease engage in clinical #research locally and internationally. Join #RareDiseaseNI at #LoveQUB. @qubelfastofficial.bsky.social
Polygenic #risk scores associated with #BMI in children and adult; #PGS also associated with weight loss in intervention #trials. Thank you for the opportunity for @qubelfastofficial.bsky.social to contribute to this study analyzing >5 million people. @natmed.nature.com #obesity #RenalResearchNI
#RenalResearchNI opportunity to sign your name to an open letter highlighting the importance of #KidneyDisease to the UK government and NHS. Time for Action to support kidney disease! @qubelfastofficial.bsky.social www.ukkidney.org/prime-minist...
Add Your Name: Call on the Prime Minister to Tackle Kidney Disease
Kidney disease affects more than 7 million people in the UK, yet was largely overlooked in the Government’s new 10-year health plan for the NHS. Without action, it will place an unsustainable burden o...
ukkidney.org
🌟 Apply Now 🌟 10 @qubelfastofficial.bsky.social funded PhD studentships available➡️new doctoral training program associated with the Future Medicines Institute. Students will develop bespoke skills for working with industry. #DTP #PhD #PhDStudentships ⬇️ www.findaphd.com/phds/?Keywor...
future medicine institute qub PhD Projects, Programmes & Scholarships - 10 PhDs Listed
FindAPhD. Search Funded PhD Projects, Programmes & Scholarships in future medicine institute qub. Search for PhD funding, scholarships & studentships in the UK, Europe and around the world.
findaphd.com
LifeArc recommendations to accelerate #RareDisease research. Strategic long-term investment required with commitment across the devolved UK nations for action and funding to ensure deliverables are met. #RareDiseaseNI #RareConditions #ChangeTheRareFuture #Research. www.lifearc.org/2025/lifearc...
LifeArc and Genetic Alliance UK launch a new report calling for the acceleration of research and development (R&D) for rare diseases - LifeArc
LifeArc and Genetic Alliance UK have launched a report calling for the UK Government, NHS, researchers, industry, patient groups and policymakers to work together to transform the lives of more than 3...
lifearc.org
#RareDisease researchers, clinician, funder, patient advocate or work in health policy in rare disease? We want to hear from you! Survey app.onlinesurveys.jisc.ac.uk/s/newcastle/.... Experiences navigating rare disease - clinical trial UK regulation landscape please!