eyesight is overrated #photophobia #photosensitivity #disabled
Alex
@alex-wears-crocs.bsky.social
Trying out this micro-blogging thing. Life with autism, carers and chronic illnesses.
Resistance is a property of an object and an inevitability of a stubborn personality.
saying that I have the memory of a goldfish right now is actually an insult to goldfishes
it feels like my brain is on fire and I have the wrong type of fire extinguisher
'Gender-critical' is just another word for #transphobic. Gender-critical 'beliefs' are protected in the #UK by the #EqualityAct. #Homophobia isn't protected by the #Equality Act. Nor are sexism, racism or ableism. In fact, the Act exists to #prevent them. So why is #transphobia any #different?
Eating cheesestrings is like eating hair, but in a good way. #yum
"FOR THE CALORIES!!!" is my mantra whenever I eat something now. Eating is hard. #malnutrition #severeME
I want to take my nervous system out of my body, give it a good thorough scrubbing, rinse it off, and then leave it in a dark room for 24-72 hours before putting it back in my body. #autistic #overwhelmed #overstimulated
I have an #illness more #common than type 1 diabetes and more #devastating to my quality of life than cancer, yet no one has ever heard of #MyalgicEncephalomyeliti. #MEAwarenessDay #MillionsMissing #MECFS #chronicillness #spoonie #severeME
I wish I could walk so that I could feel the weight of my body through my legs. It's a sensation that I really miss. #proprioception #wheelchairuser #severeME
UK portion sizes are ridiculously small. I always double them, and even then I don't eat enough.
Just because you *can* swallow pills without water, doesn't mean you *should* swallow pills without water.
#MyalgicEncephalomyelitis punishes me for being #human. I was curious and stubborn and intelligent and caring, but I'm not allowed to be that person anymore. I have to choose not to think too hard, or this #illness will choose that for me. #severeME #millionsmissing #spoonie
#MyalgicEncephalomyelitis might not kill you (in most cases), but it doesn't make you stronger. It just takes everything away from you, little by little, until there is nothing left but you and the void. It's scary in here. 🕳️ #severeME #MECFS #chronicillness #spoonie
My circadian rhythm is a party animal #circadianrhythm #N24 #severeME
I like not having to worry about if I'm going to trip over my own feet anymore #wheelchairuser
It never went away. I just got some coping strategies and learned to hide it better. #mentalhealth #mentalillness
An extra #cost of being #disabled that no one talks about is the cost of #replacing things that #carers lose or misplace. I'm replacing my butter today. I have no idea where it is.
Having a #powerchair makes it much easier to avoid overdoing it by doing bADLs, but also much easier to do other, non-essential, activities of daily living that I really shouldn't be doing. #severeME #spoonie #nospoons
Don't run before you can walk... and don't walk before you can stand, don't stand before you can sit, and don't sit before you can be propped up in bed with your legs up without crashing from it. #babysteps #severeME #POTS #orthostaticintolerance #chronicillness #spoonie #wheelchairuser #disabled
I'm not #stupid, I'm #disabled. I need #help to figure things out, not to be redirected to information I already have #access to and expected to figure it out myself. #brainfog #cognitivedysfunction #cognitivedisability #severeME
The thing about doing something perfectly every time is you never learn to correct your mistakes and try new approaches. #perfectionism