This weekend means so much to our family, and I would love for you to support Jackson’s fundraising page as we walk once again for our sweet Jack Jack and this entire community. 💙 Donate here: support.angelman.org/fundraiser/6...
Angelman Syndrome Foundation
@angelmanfoundation.bsky.social
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We e
Happy international Angelman day!
Jackson’s Art Auction for International Angelman Day Meet Jackson Moore, a 10-year-old artist living with Angelman syndrome This International Angelman Day, Jackson is auctioning off his artwork to raise funds for the Angelman Syndrome Foundation. live.classy.org/register/jac...
Registration is now open!!! Join us as we walk together for those living with Angelman syndrome angelman.org/events/strong/
Angelman Strong - Angelman Syndrome Foundation
Angelman Strong events are a powerful celebration of the strength, resilience, and spirit of the Angelman syndrome community. Held annually, these events come
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📣 Calling Researchers, Clinicians, Industry Partners & Investors in the Angelman Syndrome space We’re gearing up for the 2026 ASF Research Symposium! If you did not receive an email this week with registration details, please be sure to Join the List! events.mindfulmeetings.com/2026asfconfe...
Registration is officially OPEN for the 2026 ASF Family Conference! 🎉 Register and join us for 3 unforgettable days in Colorado. 📌 Gaylord Rockies Resort | Aurora, CO 📌 July 30 - August 1, 2026 Learn more and register today: asfconference.org/family-confe...
Our guaranteed entry spots for the 2026 Bank of America Chicago Marathon are now OPEN! Join the Windy City Angels, the ASF running team. We'll celebrate 10 years of the team and you can help us reach a milestone of $1 million raised to support 👉 Details: angelman.org/events/chica...
We’re proud to share that many of the nation’s best hospitals by U.S. News & World Report are where ASF Clinics exist. We can attest that ASF Clinics deliver exceptional care, advance clinical trials, and support individuals with Angelman syndrome every day.
Today marks the start of the 2025 ASF/Dup15q Research Symposium—a gathering of some of the brightest scientists, clinicians, and industry leaders from around the world. This closed-door meeting is designed to foster open, collaborative conversations about the latest research and breakthroughs in AS
We’re excited to announce the launch of our new website at angelman.org! 🎉 Our updated site features easy navigation and filters that help you find the resources, clinics, research, and support you need on any device. Check it out!➡️ angelman.org
Kaitlin in Sacramento is LOVING her Bunch Bike - but her son, who has some adaptive needs, keeps unbuckling his seatbelt. Called our friends at Seatbelt Planet, found a locking buckle used on amusement park rides. Now we're offering this option for all families thru our adaptive equipment program!
ASF-funded research is fueling real progress. 💥 Over the past 20 years, ASF has invested $16 million into 138+ research grants, leading to breakthroughs in gene therapy, ASO treatments, and seizure management for Angelman syndrome. 🔗 Find your walk and join us: angelman.org/strong
The annual ASF Newsletter is arriving in mailboxes! 📬 Didn’t get yours? Make sure you're on the list by joining the ASF Contact Registry: www.angelman.org/about/contactregistry. Check out the digital version of the newsletter here: sholink.to/082ab024. 💙
Join us this May for Angelman Strong, a nationwide event at 40+ locations. Together we'll make an impact for the Angelman syndrome community! 🌟 Plus, sign up by March 21 to guarantee your Angelman Strong t-shirt. 👕💙 Be part of something powerful! Sign up now! 👉 www.angelman.org/strong
The Spring ASF Newsletter will hit mailboxes (in the US) in March. Do we have your address? Have you moved or recently received an Angelman syndrome diagnosis? Complete our Contact Registry to make sure you're on our mailing list. 👉 www.angelman.org/about/contactregistry
We are just 15 days away from our 2025 AS Congressional Advocacy Day! ASF and FAST are preparing for this important day and we wanted to share with the community the legislative priorities Read Priorities: www.angelman.org/articles/advocacy-in-current-environment
It's #InternationalAngelmanDay. Let's spread the word, raise awareness & create a more inclusive world. 🌎💙 #angelmanday2025 #AngelmanSyndromeAwareness #AngelmanStrong #angelmansyndrom
Encoded Therapeutics announced an update on their Angelman syndrome miRNA program indicating that IND-enabling studies have been initiated for their investigational gene therapy candidate (ETX201) to support a potential filing in 2026 to begin testing in humans. Learn more: bit.ly/4hHsD0z
⭐Get your discount before it's gone! 💰Register for Angelman Strong today and receive $5 off all fees. No location near you? Register for the Virtual location. Plus, every individual with AS registered is entered to win a Fat Head. 😀 Find details and locations: www.angelman.org/strong
