We had an amazing day @greatormondst.bsky.social on #undiagnosedchildrensday raising awareness of SWAN CYP and their families alongside @roalddahl.bsky.social, @swanuk.bsky.social. Enjoyed the collaboration of NHS and charities so we can all achieve our main aim of supporting more families.

Thanks so much Becks. That is all so true. Happy #Undiagnosedchildrenday

Becks Daniels BEM@becksbdaniels.bsky.social · last yr.

A fabulous #CYPnurse role -working with CYP who have Syndrome Without A Name (SWAN). When families can't get a diagnosis, it makes the navigation of the CYP health journey challenging. SWAN #CYPnurse join the dots, hold a hand, navigate & simply understand the challenge ❤️ @ellendukecyp.bsky.social

Very happy to have a stand @greatormondst.bsky.social tm to celebrate #undiagnosedchildrensday, raise awareness & understanding of SWAN patients, raise the profile of the SWAN #CNS role @gosh and support more families @geneticallianceuk.bsky.social @wendydjones.bsky.social

We are very excited to be celebrating #undiagnosedchildrensday 2025 @GOSH with @roalddahl.bsky.social, @swanuk.bsky.social & @spreadasmile to raise awareness of this group of patients & offer more support to families of SWAN children/young people @wendydjones.bsky.social @becksbdaniels.bsky.social