Please consider reading the details of Karen’s case and taking a few seconds to support her necessary action against an NHS that is hostile to the reality of #ME by signing the petition c.org/L4CL9PCpQr
Sign the Petition
Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings.
c.org
I bring together my experience of the menopause with ME in this piece for @the-polyphony.bsky.social. Many thanks to @alyfixit.bsky.social for supporting this work. #pwME #menopause #cyanotype #writing thepolyphony.org/2026/05/29/c...
‘Mrs Average of the UK’ Makes Something of Her Menopause
Arlene Jackson’s reflective cyanotype prints allow the sun’s rays to transform a body dehumanised by sexist medical disbelief into ‘something extraordinary’.
thepolyphony.org
A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare
LSE Review of Books@lsereviewofbooks.bsky.social · 10mo agoNEW✨ Our social care systems are failing the most vulnerable. @arlenejackson.bsky.social @manmetuni.bsky.social reviews Care Poverty and Unmet Needs ed. Teppo Kröger, Nicola Brimblecombe @cpeclse.bsky.social, Ricardo Rodrigues and @profkirstein.bsky.social #DisabilityHistoryMonth #UKDHM
My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l... #pwme #lyrics #greekmyths
So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌 #writing #medicalhumanities #pwme #chronicillness #art #photography
The Polyphony @the-polyphony.bsky.social · last yr.Practice research from @arlenejackson.bsky.social: "Folklore has it that one who wears a wreath of bluebell heads will only speak the truth... my narrative... lands in reality to acknowledge that... Illness is not a comeuppance for slighting the natural world." thepolyphony.org/2025/05/23/r...
So sad to see this happening.
Prof (Dr) Sunil Raina@sunilraina15.bsky.social · last yr.#Measels Through very high levels of vaccination we reached a reasonable level of population immunity With drastic fall in immunisation, we r not only exposing those who r un-immunised but also reversing the gains @organicbotanic.bsky.social @elhopkins.bsky.social jamanetwork.com/journals/jam...
A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc. Location: Neunkirchen-Seelscheid They need 5 people interested. So please share. (Requirement to be on German Welfare)
Wohnprojekt für schwer ME/CFS-Betroffene in Neunkirchen-Seelscheid: Interessenten gesucht! - Sozialhummel gGmbH
In Neunkirchen-Seelscheid ist ein Wohnprojekt speziell für schwer ME/CFS-Betroffene mit 24-Stunden-Assistenz in Planung. Ein Bauträger möchte in Zusammenarbeit mit Sozialhummel in 53819 Neunkirchen-Se...
sozialhummel.de
So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks... #flashfiction #writing #meditation #inksweatandtears
Arlene Jackson | Ink Sweat and Tears
inksweatandtears.co.uk
A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK From: bmjopen.bmj.com/content/15/4... #MEcfs #LongCovid
It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.
Luke Tryl@luketryl.bsky.social · last yr.🆕 Ahead of the Spring Statement, new polling of public views on the economy finds that the Chancellor faces problems of trust, toughness and tiredness in the public mood. Over half of Brits now say we are returning to austerity or never left it, particularly the elderly.
“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?” My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
theguardian.com
Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.
The government is planning to cut disability benefits. This could have a devastating impact on disabled people. We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday. Ask your MP now: action.sense.org.uk/page/167765/...
Stop cuts to disability benefits | Sense
action.sense.org.uk
There's still time to book your free ticket for tomorrow's Story Café. From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime. Book here: womenslibrary.org.uk/event/story-...
Story Café | Glasgow Women's Library
Rediscover the joy of being read to, as we dip into stories and poems by some of the best women writers around.
womenslibrary.org.uk
🗞️ Article in @theguardian.com -includes section on #LongCovid “People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.” Full article: tinyurl.com/2u6xe8jx
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”. My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
theguardian.com
Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!) #research #health #chronicillness www.bbc.co.uk/news/article...
Scientists discover new part of the immune system
New part of the immune system - hidden inside our bodies - could be used to make new antibiotics.
bbc.co.uk
The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN #disabled #activism #austerity #disabilitycampaign
RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice. All welcome. RSVP here: womenslibrary.org.uk/event/while-...
While We Wait: Closing Event with Rayna Carruthers | Glasgow Women's Library
An opportunity to see this beautiful exhibition a week before it closes and to hear Rayna Carruthers speak about her photography, the process and some of the ways she considers ethics within her…
womenslibrary.org.uk
Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth #disability #writing #medicalhumanities #booksky
Reclaiming the Disabled Sexual Self
Arlene Jackson reflects on sexuality, empowerment and discrimination in Samantha Renke’s 2022 memoir ‘You are the Best Thing Since Sliced Bread’. Amongst the many themes in Samantha Renke’s memoir,…
thepolyphony.org
PAYWALL FREE: A collection of protests from around the country on NOT MY PRESIDENT day: #resist #protest brandy-schillace.medium.com/not-my-presi...
Not My President Day Protests
Coverage collected from socials for the 50501 “no kings” day
brandy-schillace.medium.com
Happy Burn’s Night all. Here’s to the continued appreciation of an enduring, eloquent, meaningful, working class voice, who recognised inequalities of power and hoped for a better world. #burnsnight #rabbieburns #poetry #radicalism
