Bateman Horne Center
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
The BHC Clinical Care Guide is free to download; and also available in print on Amazon. Access practical, evidence-informed guidance for ME/CFS, Long COVID and other infection-associated chronic conditions. Download: https://bit.ly/432YdzF Order: https://www.amazon.com/dp/B0G3CNDDSB
Join our next online support group: https://bit.ly/3SnqfVr Emotional Freedom While Experiencing Illness: Avoiding Thinking Traps That Make Us Suffer We’ll explore thoughts that can intensify emotional pain and ways of thinking that may help us access calm, hope, or peace. Sept. 1 | 1 p.m. MDT
“We hear you. We’re on your side.” As #SevereMEAwareness Month closes, Stoo Brown of WIMEL reminds us why lived experience needs to reach healthcare professionals and decision-makers. Listening, learning and advocacy continues. https://youtu.be/HlfbfyRl3K8
September online events at BHC: Sept. 1, 1 p.m. MDT: Emotional Freedom While Experiencing Illness Sept. 9, 10 a.m. MDT: “Coffee” with a Clinician: Assessment of OI & Dysautonomia Sept. 15, 1 p.m. MDT: Coping When Things Don’t Go as Planned Register: https://bit.ly/4npZ4Ud
“Believe yourself as a witness.” Amy Mooney, OT, reflects on the often unseen experience of caregiving and reminds caregivers to find support, give themselves compassion and grace, and know: “You are doing enough. You also belong. And you are also witnessed.” Watch: https://youtu.be/HlfbfyRl3K8
Understanding the full spectrum of ME/CFS requires including those most profoundly affected. Jessica from @solveme.bsky.social shares how decentralized trials and other accommodations can make research more centered around people with severe ME/CFS. Watch: https://youtu.be/HlfbfyRl3K8
Listen. Believe. Advocate. Respect. @amymooney.bsky.social explains how healthcare professionals can support people with severe ME/CFS by listening to their lived experiences, acting on what they hear and documenting their needs. Watch: https://youtu.be/HlfbfyRl3K8
Research must be designed to include and center those with severe and very severe ME/CFS. Danielle Meadows of @openmedf.bsky.social explains how OMF’s decentralized clinical trial network aims to make participation possible from home. Watch full converstaion: https://youtu.be/HlfbfyRl3K8
For people with severe ME/CFS, more activity is not always the goal. Good care may mean reducing unnecessary exertion and protecting limited capacity for what matters most. Read the full blog post: https://bit.ly/4zlv02i
How do you plan your day when your energy and abilities are limited, or unpredictable? Join Dr. Zeest Khan for a live guided session on creating a flexible workflow for your current season of life. Aug. 23 at 9 a.m. PT Learn more and join: https://open.substack.com/live-stream/313391
@amymooney.bsky.social, OT, discusses why care for severe ME/CFS should protect rest, create stability, and be built around what the patient’s body can tolerate. Watch the full conversation: https://youtu.be/HlfbfyRl3K8 #SevereME #MECFS
People with severe ME/CFS are too often left out of conversations about their own illness. Jaime Seltzer of @meactnet.bsky.social shares how advocacy, art and peer support can help amplify their voices, and remind them they are still part of this community. Watch here: https://youtu.be/HlfbfyRl3K8
Lisa Marie of the WIMEL Writers shares an excerpt from When My Myalgic Encephalomyelitis Was Severe, offering a glimpse into a reality too often unseen. Watch the full conversation: https://youtu.be/HlfbfyRl3K8 #SevereMEAwareness
In April 2025, Dr. Orit Gourgy-Hacohen visited BHC to learn more about our patient-centered approach to ME/CFS care. Just over a year later, she has opened an ME/CFS clinic in Tel Aviv! We’re excited to celebrate her success and the expansion of informed care in Israel.
Being kind to yourself during chronic illness isn't always easy. Join our Aug. 18 Support Group to explore self-compassion, navigating isolation, and responding to symptom flare-ups with greater kindness. Register: https://bit.ly/4npZ4Ud
Presented in February 2025, our four-part series with @solveme.bsky.social explores the medical, legal and practical challenges of #severeMECFS, including caregiving, legal rights, medical care and accessible research. Watch the complete series here:
Severe ME: Care, Rights, and Research Webinar Series
Galen Warden is the mother to an adult son with severe ME/CFS. In this video she shares the focus of her participation as a panelist in the October 9th Careg...
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“What Is Myalgic Encephalomyelitis Like?” shares 80 firsthand accounts from people living with and caring for those with ME worldwide. BHC was honored to write the book and chapter forewords for this important project by WIMEL writers. Available here: https://a.co/d/04g8q4Ji
