Brain Ablaze
@brainablaze.bsky.social
As people with Epilepsy, we support anyone dealing with seizures.
While not all #epilepsy is genetic, genetic testing is transforming how Epilepsy is treated. By identifying specific mutations, doctors can move away from "trial and error" and toward targeted therapies that work for a person’s unique biology. #NationalDNADay #EpilepsyAwareness
Seizures often target the areas of the brain responsible for forming new memories, making daily life with #epilepsy feel like a constant game of catch-up. Do you use specific hacks/routines to help your #memory stay sharp? #EpilepsyAwareness
We hope your weekend is seizure-free. #EpilepsyAwareness
If you post a great #epilepsy story, please mention us. We will help you promote it! Help us help you raise #EpilepsyAwareness
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Effective epilepsy advocacy starts with a strong partnership in the exam room. Today we celebrate the neurologists and epileptologists who don't just treat a condition, but see the person behind the diagnosis. #NationalDoctorsDay #EpilepsyAwareness
Wait, does celebrating #PurpleDay2026 mean we're celebrating #epilepsy? No. Of course not. We're celebrating the community of people who have it, our doctors and caregivers who help us, and the advocates who give their voice. Our strength is in our numbers. #EpilepsyAwareness
We often talk about #Epilepsy as one condition, but it’s actually a vast spectrum. -- How good are you at realizing that your treatment experience could be much different than others who also have Epilepsy? #EpilepsyAwareness
For #InternationalWomensDay, it is vital to shine a light on the intersection of neurology and reproductive health. Catamenial epilepsy, or where seizure patterns are tied to the menstrual cycle, affects ~40% of women with epilepsy. #EpilepsyAwareness brainablaze.com/blog/why-doe...
Why Does No One Talk About Catamenial Epilepsy? - Katie Nunn
Despite the prevalence of catamenial epilepsy, with half of women of childbearing age displaying signs of it, it is understudied with no real, tried and true treatment.
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Does your #epilepsy make you struggle with the "Spotlight Effect", where we constantly overestimate how much people notice our #seizures? The truth often hits harder; everyone is too worried about themselves to worry about us. #EpilepsyAwareness
Today is #IWantYouToBeHappyDay! Whether it’s a seizure-free day, meaningful EEG data, or just a morning where you feel like yourself again we hope you find something today that puts a smile on your face. #EpilepsyAwareness
I spill it all on this new episode of the podcast. Answer all your personal questions. Listen now.  podcasts.apple.com/us/podcast/t...
Reasonable accommodations for #epilepsy aren't "extra perks." Flexible start times or seizure-safe lighting are tools that create a level playing field. When barriers are removed, everyone is given the same opportuninity to succeed. #EpilepsyAwareness brainablaze.com/the-brain-ab...
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Still looking for advice on how to thrive with #epilepsy? Our virtual Support Group meets later today. #EpilepsyAwareness Hope to see you there! brainablaze.com/epilepsy-sup...
PST Epilepsy Support Group Session - Brain Ablaze
If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!
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Do you agree that "Jeez, I'm just kidding" is a red flag 🚩? If a "joke" relies on mocking a #seizure or belittling a #disability, it isn't humor and this response is just a way to avoid accountability for being offensive. #EpilepsyAwareness
DYKT #stroke is a leading cause of #epilepsy in adults? The good news is that many strokes are preventable. -- To learn more, ask your medical team: "What specific steps can I take to lower my stroke risk?" #EpilepsyAwareness
While it is physically impossible to swallow one's tongue during a seizure, tongue bites are common during some seizures. -- Have you ever bitten your tongue during a seizure? #EpilepsyAwareness brainablaze.com/guides/an-ep...
An Epileptic's Guide to Tongue Injuries - Brain Ablaze
One of the common injuries that people with Epilepsy face are wounds to their tongue as a convulsive seizure can sometimes lead to gnashing of the mouth. In this article, I’ll provide some pointers on...
brainablaze.com
One's neurologist only sees a snapshot of one's life during an appointment. Journaling one's seizures can provide a better extended picture. -- If you tried journaling your seizures, what did you track and was it useful? #EpilepsyAwareness Get started! brainablaze.com/the-brain-ab...
043: Trigger Discovery - The Brain Ablaze Epilepsy Podcast
In this episode, we provide tools anyone can use to discover which Triggers affect their seizures.
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Stigma around #epilepsy has survived for thousands of years; proving that it won't just disappear with time. Thank you for doing your duty to dismantle it through continiuously sharing your epilepsy stories and demanding that we all be heard. #EpilepsyAwareness
#epilepsy is a constant balancing act. ⚖️ Like being Goldilocks: you can’t have too much, you can’t have too little; everything has to be just right. -- Have you read Jo Mackenzie's take on dealing with the condition, yet? #EpilepsyAwareness brainablaze.com/author/jomac...
Jo Mackenzie, Author at Brain Ablaze
brainablaze.com
For #WomenInSTEMDay we honor the late Dr. Charlotte Dravet, the French psychiatrist and epileptologist who first described #Dravet Syndrome in 1978. Her research allowed for earlier diagnosisis and specialized treatment for thousands of children. #EpilepsyAwareness
An estimated 3.4 MILLION people in the USA live with #epilepsy. 🧠 To put that in perspective: that’s enough to fill EVERY #NFL stadium in the country all at once 1.5 times over! #EpilepsyAwareness #SuperBowl
February is #RareDiseaseMonth! While #epilepsy itself is not rare (affecting 1 in 26 people), there are hundreds of rare Epilepsies (like #Dravet Syndrome, #LGS, or #CDKL5) that require specialized care and unique research. #EpilepsyAwareness
Have a wonderful Super Bowl weekend everyone! Just remember not to party too hard because we need your help to raise #EpilepsyAwareness on Monday, International #EpilepsyDay.
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Is it time to retire the term "differently abled?" Some say it sugarcoats the reality of being disabled because people with #epilepsy don't have "different" abilities. They say we have a medical condition that creates barriers in a world not built for us. #EpilepsyAwareness
While cannabis (i.e. CBD) has become a vital tool for some people with #epilepsy, it is often surrounded by "miracle cure" rhetoric that doesn't match the reality of living with the condition. -- Has cannabis been suggested for your seizures? #EpilepsyAwareness #NationalHempDay
A very happy birthday to Julia Garner! DYKT the American actress (best known for her critically acclaimed, award-winning roles as Ruth Langmore in the Netflix series Ozark and Anna Delvey in the miniseries Inventing Anna) struggled with #epilepsy as a child? #EpilepsyAwareness
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