C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission. docs.google.com/forms/d/e/1F...

Long COVID Volunteers 2026 (C19LAP)

C19LAP is a patient-founded and patient-led Long COVID nonprofit organization based in the United States. Our work is dedicated entirely to advancing awareness, education, resources, cross-sector coll...

docs.google.com

The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month. Watch here: www.astho.org/communicatio... #LongCOVID 1/2

Living With Long COVID: Stories, Science, and Public Health

astho.org

#LongCOVIDAwareness Month Roundup! Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum. Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP: docs.google.com/forms/d/1yqP... 1/

A House resolution to recognize March as Long Covid Awareness Month was introduced to the Energy & Commerce Committee! It needs to be approved in Committee to go to the full House for a vote. 1/

Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here) Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and the otolaryngologic (ENT) system here: https://youtu.be/I7eOYufaQ7I Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and community allies here: https://youtu.be/Y0V-tWZO1Hw Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and the integumentary system here: https://youtu.be/Wnn0D1G72Ak Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and the endocrine system here: https://youtu.be/Oq3rq14jD10 Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and the renal system here: https://youtu.be/pxIjyQ7-j_o Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and caregivers here: https://youtu.be/UC7jy-H0WKc Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and neuropsychiatric health here: https://youtu.be/YtpdGbt2TNM Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and the musculoskeletal system here: https://youtu.be/58-Zfj0jGl0 Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Learn more about #LongCOVID and patient-led advocacy here: https://youtu.be/Kh-pddiBhJw Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID. The only way to #preventLongCOVID is to #preventCOVID-19 infection. #LongCOVIDAwareness

Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Moving Forward! Check out today’s email reviewing #LongCOVIDAwarenessDay actions and continuing actions throughout the month and beyond. ⬇️ longhauler-advocacy.org/so/2cPq6SQYQ... #LongCOVIDAwarenessDay #LongCOVID

Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Going.

Millions of people around the world came together for Long COVID Awareness Day 2026—and what we witnessed was powerful. Patients and caregivers shared their lived experiences. Researchers and clinicia...

longhauler-advocacy.org

Machine learning identified 19% more COVID-19 deaths occurred in the US than officially reported. www.science.org/doi/10.1126/... We know the same is true for #LongCOVID cases and deaths. #LongCOVIDAwareness

Applying machine learning to identify unrecognized COVID-19 deaths recorded as other causes of death in the United States

A machine learning approach suggests that COVID-19 deaths were undercounted unevenly across sociodemographic groups in 2020–2021.

science.org

We need #researchers and #clinicians to: #ListentoPatients #BelievePatients #StopGaslighting #StudyLongCOVID and see #PatientsasPartners. Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026 Poster @ www.longhauler-advocacy.org/lcamonth2026

Learn more about #LongCOVID and underlying mechanisms here: https://youtu.be/63D6Ut4UH5I Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Tuesday March 17th Poster & Directions for the #LongCOVID #SocialMediaWeekofAction Post yours sharing your story/ reasoning. Use the #’s, support others, share! #LongCOVIDAwarenessWeek #LongCOVIDAwareness

Thank you to Senator Tim Kaine's office for meeting with us today during #LongCOVIDAwarenessMonth to discuss #LongCOVID and the path forward. We appreciate the conversation and look forward to working together on solutions for the millions affected.

Today’s social media action for our #LongCOVIDAwareness #SocialMediaWeekofAction! Steps in thread below. All actions for the week can be found at www.longhauler-advocacy.org/lcamonth2026 midway down the page. #LongCOVID

Learn more about #LongCOVID and what it is here: https://youtu.be/wBe3dCE9RKs Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Hey, someone at the #Oscars  can you do millions of us a favor and talk about the devastating impacts of #LongCOVID on #LongCOVIDAwarenessDay longhauler-advocacy.org/lcamonth2026

Today is International #LongCOVIDAwarenessDay — a global moment to come together in coordinated #LongCOVIDAwareness and action. Learn more about the #LongCOVIDAwarenessDay and how the COVID-19 Longhauler Advocacy Project serves the Long COVID community here: youtu.be/beWDeldUlOY?... ⬇️

March 15th is International #LongCOVIDAwarenessDay!

YouTube video by COVID-19 Longhauler Advocacy Project

youtu.be

Learn more about #LongCOVID and adult prevalence and data here: https://youtu.be/qMCn3AO1lyg Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

It’s official! It’s #LongCOVIDAwarenessDay! Let’s do this! Trend #LongCOVID #LongCOVIDAwareness Participate in actions and events at longhauler-advocacy.org/lcamonth2026 Share your stories. Follow and elevate others. Repost, like, engage. Tag us, and others you want to engage!

This #LongCOVIDMemorialDay we remember those whose lives were lost, those whose lives were forever changed, and the many who will still face this devastating disease in the future. youtu.be/x6Kre1moRQk #LongCOVID #LongCOVIDAwareness #LongCOVIDAwarenessDay #LongCOVIDAwarenessWeek

Long COVID Memorial Day: Six Years Later, We Continue to Mourn

YouTube video by COVID-19 Longhauler Advocacy Project

youtu.be

Learn more about #LongCOVID and mortality here: https://youtu.be/LiisXO01FPo Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month! We are all #OneInfectionAway

Reminder: Tomorrow March 14th, is #LongCOVIDMemorialDay. #LongCOVID #LongCOVIDAwareness