🎒 What's in your Hypo Hero Backpack? Being prepared is an important part of living with Hyperinsulinism. As children grow, learning about the items that keep them safe can build confidence, encourage independence & create opportunities for important conversations with parents, carers & teachers.

🌞 How does your hypo feel ? Helping children recognise and talk about *their own* hypo clues is an important part of understanding Hyperinsulinism. It can help them begin to recognise when something doesn't feel right & give them the confidence to describe how they're feeling. #HyperinsulinismUK

Breathing difficulties, seizures, jitteriness or unresponsiveness can all be signs of dangerously low blood glucose. Please share this post. Early recognition and prompt action can make all the difference.💓 #ThinkHypoglycaemia #ThinkHyperinsulinism

🌐 Today is World Wide Web Day! Our Hyperinsulinism web is built through friendship, support, shared experiences, and families helping families. It helps us find answers, discover new ideas, make connections, and remind us that we're never alone. #HyperinsulinismUK #WorldWideWebDay

There’s no better way to celebrate our 10th Birthday than with our incredible HI Heroes and their families. And as if it couldn’t get any more special… we also celebrated these amazing twins turning 2! A double celebration with Leonard the Lion joining in the fun.

☀️ Summer HI-lights are coming! ☀️ 3 fun ways to get involved: 📸 Summer Smiles Challenge ✔️ Summer Bucket List Challenge 🎨 Kids’ Art Competition Every submission counts as ONE entry into our Summer HI-lights Prize Draw, #SummerHILights #CHCharityUK

🎉 Tomorrow is our Fun Day! A chance for HI Heroes and their families to meet up, connect, and form new friendships. It’s one of our favourite activities, and it simply wouldn’t be possible without the kindness of our fundraisers, volunteers, and supporters. Thank you💓

Medics are key in saving the lives of babies and children with Hyperinsulinism 🩺 What’s crucial? ✅ Recognising hypoglycaemia. ✅ Listening to families & taking a full history. ✅ Acting fast to stabilise blood glucose 🚨#ThinkHypoglycaemia #ThinkHyperinsulinism

🌞 Get ready for Summer HILights! A summer full of fun, celebration, and community: 🎉 Fun Day & CHC Birthday Party 🏆 Summer Competition 💛 Newly Diagnosed Project 📝 Newly Diagnosed survey. Summer 2026… we can’t wait!!

🥳 Happy World Emoji Day! Emojis aren’t just fun; they play an important role, helping children with Hyperinsulinism understand and express their emotions. They can also help to communicate and explain the signs and symptoms of hypoglycaemia. #WorldEmojiDay #HyperinsulinismUK

End of term can be busy, and for children with Hyperinsulinism, this can impact their blood glucose levels: ☀️ Hot classrooms 📅 Timetable changes 🎨 Themed days 🏃 Sports days 🎤 End‑of‑year assemblies 📝 Exams 🥰And through it all, our HI Heroes make us proud every single day.

🌟 World Youth Skills Day: Whether you’re exploring post‑16 options or showing your skills through volunteering, fundraising, or taking part in our projects, today we’re celebrating the difference you make. 📘 https://ow.ly/jOP250ZmkSM 🎓 https://ow.ly/C1Kt50ZmkSL

Hyperinsulinism isn’t always easy to explain. This short video helps make it clearer 🥰 #HyperinsulinismUK

🎥 Have you subscribed to our YouTube channel? Hear from experts & HI families on: 💡Understanding Hyperinsulinism 🍽️ Feeding & Glycemic Index 📚 School transitions 🏥 Moving to adult care ⚖️ Legal rights & more ** New videos soon! 👉 youtube.com/@childrenshyperinsulinismUK

There’s nothing better than seeing families living with Hyperinsulinism come together for connection, laughter, and fun. Our Family Conferences and Fun Days are some of the happiest moments of our year. 🌞 We’re getting summer‑ready and can’t wait for more moments like these at our Fun Day.

💓 Newly diagnosed families, we are here for you. The Children’s Hyperinsulinism Charity is here with support, community, and our HIVE hub to help you find trusted information and signposting whenever you need it. 🐝 https://hyperinsulinism.co.uk/hive-hub/life-stages

📢 We have a range of self-advocacy resources for children and young adults with Hyperinsulinism! From posters and guides to our new age-specific booklets created with HI Heroes and their families https://hyperinsulinism.co.uk/childrens-resources/

Understanding Hyperinsulinism can be complicated; this video makes it clearer. HI Clinical Nurse Specialists Clare and Kate explain: ✔️what Hyperinsulinism is, how it’s diagnosed, and how it’s managed. ✔️latest research, guidelines, and future treatments shaping care. 🎥https://youtu.be/FFcZKJujDfU

💓 Hyperinsulinism asks so much of families, but no one should ever feel they need to face this alone. We are here to support, connect, and champion every child and every family living with HI. 🐝https://hyperinsulinism.co.uk/hive-hub/

💓Bringing HI families together is one of the most important things our charity does. It’s a chance for families to connect, build friendships, meet in person, and enjoy time together. 🥳We can’t wait to celebrate with you all at our 10th anniversary fun day at the end of July

Our support group is a place of compassion and understanding, where HI families can share openly, find support, and know they are never alone. 💓It proudly sits at the heart of our charity and shapes all we do. 👨‍👩‍👧‍👦https://www.facebook.com/groups/CHCharityUK

At 1 week old, Ansar lay in an MRI scanner, tiny & fragile, as doctors looked for signs of brain injury. Days before, he’d been rushed to the NICU with a blood sugar of 0.01 mmol/L, dangerously low & able to cause neurological harm. Ansar has Hyperinsulinism - https://hyperinsulinism.co.uk/

Hello July! We’ve got such an exciting month ahead for our HI families - Family Fun Day, our 10th Anniversary Party, the HIVE family survey, Summer HI Lights, and more Box4Kids events. 🥰A month full of connection, celebration, and support. 🥳We can’t wait to share it all with you

Happy Social Media Day 🌐 Today we’re celebrating the amazing HI community that has grown online, the friendships, the support, the late‑night messages, the shared experiences, and the feeling of never being alone on this journey. 🥰Our charity is proud to support this community every day.

💓“Carter was tiny but mighty born. He was born not breathing, with sepsis, hyperinsulinism, and jaundice, and despite all that, he overcame every challenge and dealt with hyperinsulinism like a mighty warrior.” Proudly supporting HI families: https://hyperinsulinism.co.uk/

💛 Together, We Make the Difference This week has been all about sharing who we are and what we’ve achieved as a community. Thank you to every family, volunteer and supporter who helps make it possible. https://linktr.ee/chcharityuk 🐝 Small Charity. Big Impact.

A huge thank you to Amelia, who has created even more beautiful jewellery to raise money for The Children’s Hyperinsulinism Charity. Amelia, you are such a star. We are so proud of you. And we absolutely love your gazebo… your stall looks amazing! ⭐🥰

⭐Small Charity Week may be ending, but we are excited for what's ahead in 2026 = fun day, projects, research, and working with our HI families To every family, volunteer, supporter, clinician, researcher, and partner who has helped us over the last 10 years Thank you. 💓Small charity. 💓Big impact.

🐝 The HIVE is one of our newest projects. Built with and for HI families, it brings together trusted support, resources, projects, and opportunities across life with Hyperinsulinism. But the HIVE will never be finished; it will continue to grow, shaped by the people who use it. #SmallCharityWeek

When families tell us what's difficult, what's missing, and what would help, we listen. The HIVE. Tailored resources Newly diagnosed support. Research projects. Some of our biggest initiatives started with one simple question: "What do HI Heroes and families need?"🥰 #SmallCharityWeek