Children’s Hospital Colorado Research and Innovation
@childrensresearch.bsky.social
Children's Colorado is committed to improving #ChildHealth by accelerating clinical discovery through research and innovation. Affiliated with @CUMedicalSchool.bsky.social. Follows and/or shares do not constitute endorsement or recommendation.
Sexual health concerns can have a lasting impact on adolescent and young adult cancer survivors. Our researchers developed a patient-focused screening process to help normalize conversations about function, support privacy and connect with follow-up care. #OncSky #CancerCare
Supporting Sexual Health Conversations in AYA Cancer Care
A new screening tool helps AYA patients discuss sexual health.
childrenscolorado.org
Results from a pivotal achondroplasia study are in — and published in the New England Journal of Medicine. We’re proud to be a core site with Dr. Klane White as principal investigator. See which oral medication is showing promising results in improving height velocity: https://bit.ly/4asB8uV
The collaboration between Children’s Colorado and the Pediatric Heart Network is producing some much-needed research and fascinating insights. Find out how the partnership is advancing pediatric cardiology.
Working with the Pediatric Heart Network
Advancing pediatric cardiology through research.
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Dr. Keila Lopez recognized a gap when it came to patients moving from pediatric to adult care and placed her focus on teenagers. Learn how a shift in thinking could help thousands of children with congenital heart disease. #PedsCardiology
Exploring Ways to Improve Pediatric Cardiology
Addressing the gap in congenital heart disease transitional care.
childrenscolorado.org
Dr. Christopher McKinney is part of the team taking a meaningful step forward in care for #SickleCell disease. Explore how CRISPR-based gene-editing therapy shows early results of reduced patient pain following treatment, published in @nejm.org. #HemeSky
NEJM Publishes Gene Editing Sickle Cell Study
Landmark study shows promise for easing post-treatment pain
childrenscolorado.org
Through genetic testing, researchers are learning more about Rett syndrome in males — once thought to be incompatible with life. Our latest research shows how years of misconceptions and misinformation have impacted families and provided hope for future diagnoses.
Misconceptions and Medical Biases in Diagnosing Male RTT
Males with loss-of-function MECP2 variants are often misdiagnosed.
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Today’s mathematical insights are informing tomorrow’s treatments. See how our researchers are teaming up with mathematical biologists to decipher the complexities of disease. #MathematicalBiology #AcademicSky #AppliedMathematics
Advancing Understanding of Diseases Through Math
How math is helping research better understand metabolism
childrenscolorado.org
Thanks to a new grant-funded initiative, we're partnering with the Colorado School for the Deaf and Blind to train healthcare professionals in #DeafCulture and #ASL, ensuring everyone has access to the care they need. See how the program is already making a difference. #Deaf
Breaking Barriers for the Deaf and Hard of Hearing Community
How ASL and Deaf culture education efforts are improving care
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Empowering surgeons with hands-on split liver #transplant training means more lives saved and shorter wait times for kids and adults. Learn how a new workshop could change the future of transplantation. #TransplantSky #MedSky
Split Liver Transplant Training Opens New Doors
Training will help save lives and shorten wait times
childrenscolorado.org
Looking for a chance to share your pediatric research? Register to present a poster at our Pediatric Research Poster Session on Friday, June 5! ⌛ Poster deadline is May 26 📝 buff.ly/uUB9mLZ @cupediatrics.bsky.social, @childrenscolo.bsky.social, @childrensresearch.bsky.social, @kmess44.bsky.social
For decades, electrical impedance tomography (EIT) has been used in adults as a noninvasive, radiation-free way to collect images of the body. In pediatrics, our researchers are exploring the best ways to use this data, teaming up with mathematicians to find the answer. #PulmSky #PedSky
Using EIT in Pulmonology
How this technique can provide a clearer picture
childrenscolorado.org
For some children, therapeutic apheresis isn’t a single visit. It can mean repeated treatments, long hours and a team that knows them by name. See how our experts provide that care: https://bit.ly/4d7TgKW #PedSky
Small team delivering powerful therapeutic apheresis care
Learn more about our specialized team of nurses
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The BEACH301 clinical trial provides targeted gene inhibitors for children with achondroplasia. And we enrolled the first two patients in the world. Learn more: https://bit.ly/4w7CNPT
Can a Clinical Trial Re-Shape Achondroplasia Care?
Learn more about the study and targeted FGFR3 therapy.
childrenscolorado.org
Are you a healthcare professional interested in learning more about pediatric continuous renal replacement therapy (#CRRT)? Join our nephrology experts on July 14-15 at the annual KidneyBee Summit. Register today: https://bit.ly/4didLWw #nephrology #kidney #NephSky
Up until now, clinical trials have lacked outcome measures that capture the full spectrum of #CDKL5 deficiency disorder symptoms families care about. Researchers have calculated a reliable set of measures that are ready to be used to evaluate treatment impact in clinical trials.
Researching Effective Treatments for CDKL5 deficiency disorder
Explore research on CDKL5 deficiency disorder
childrenscolorado.org
See how Dr. Karin Payne’s collaborative approach to developing a growth plate organoid model inspired innovation in regenerative growth. https://www.childrenscolorado.org/advances-answers/recent-articles/organoid-models/?slid=surg_ortho_slr&utm_source=twitter_hcp&utm_medium=social&utm_campaign=qblog
Growth Plate Organoids and Orthopedic Regenerative Medicine
We're exploring regenerative medicine for growth plate injuries.
childrenscolorado.org
The American Thoracic Society (@atscommunity.bsky.social) updated its guidelines on pediatric tracheostomy care. See what’s changed and how Children’s Colorado led the effort to modernize the guidelines. #PedSky
ATS Issues New Guidelines for Pediatric Tracheostomy Care
See how our experts helped advance these guidelines
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#MicrovillusInclusionDisease (MVID) is extremely rare, with only a few hundred cases reported worldwide. Despite its rarity, our experts found a novel treatment. See how it works — and how the international pediatric gastroenterology community made it happen. #RareDisease #GastroSky
Treating Youngest Patients with New MVID Treatment
See how the treatment works
childrenscolorado.org
Through our Center for Transformative Therapeutics, we’re setting the standard for how novel therapeutics and treatments are delivered.
Ensuring Safety in Pediatric Novel Therapeutics
Setting the standard for pediatric precision medicine
childrenscolorado.org
We're proud to open the first pediatric multidisciplinary clinic in the U.S. dedicated to Koolen-de Vries Syndrome, thanks to support from the KdVS Foundation. Patients can now see experts in neurology, genetics, rehabilitative medicine and more, all in one place: https://prn.to/48iyLcZ #RareDisease
How can volunteers help children with #CongenitalHeartDisease? Experts at our Heart Institute have found a way that benefits volunteers, patients and families. See how we’re enhancing our neurodevelopmental care. #MedSky #cardiology
Volunteers Help Improve Cardiac Care
Learn how volunteers are helping cardiology patients and families
childrenscolorado.org
Today, Gracie is back to 6th grade, back to roller-skating and back to learning new languages, all thanks to her dual heart-liver #transplant — a first for our team. Learn how we reached this milestone and how it has changed Gracie’s life. #DonateLifeMonth
Children’s Colorado’s First Heart-Liver Transplant
Groundbreaking dual transplant for single ventricle heart disease
childrenscolorado.org
At our Heart Institute, outcomes are more than just numbers. They represent children who have complex heart surgery and then go home to their families to grow up and live full lives. See what our numbers say about our program and what they mean for the patients we treat. https://bit.ly/4bIfRyn
Excellence in Outcomes
Learn about our pediatric cardiac surgery outcomes – and why they matter.
childrenscolorado.org
A new Children’s Colorado study shows zorevunersen’s potential as a disease-modifying therapy for patients with #DravetSyndrome. Learn how this treatment works and what makes it different. #RareDisease
New Research Shows Promising Dravet Syndrome Treatment
Learn what makes this treatment different from the others.
childrenscolorado.org
"Not all doctors are dentists but dentists are doctors. It's kind of like, all toads are frogs but not all frogs are toads." – A patient we asked about National Doctors' Day Happy Doctors' Day!
“I would like to devote more time to give back to the community that has given so much to me,” shares Dr. Kathleen Simpson. Starting this year, she’s doing just that by serving as a leader for the Pediatric Heart Transplant Society. #CardioSky #PedsCardio
Kathleen Simpson Leads Pediatric Heart Transplant Society
A national leadership honor for pediatric transplant cardiologist
childrenscolorado.org
Whole-genome sequencing is opening new doors to targeted therapy for rare diseases. Just ask Rowan's family. Because we understood the genetic cause of his tumor, we helped him avoid chemotherapy and amputation. #PrecisionMedicine
Whole-Genome Sequencing Advances Rare Pediatric Cancer Care
Discover how a targeted therapy treated infantile fibrosarcoma.
childrenscolorado.org
We are celebrating our next group of early-career investigators who received #research funding through our Colorado #ChildHealthResearch Institute. Read about their areas of focus — from heart disease to bone marrow transplants and more.
Awarding Early Career Investigators Grants for Research
Read about the exciting research projects from our award winners.
childrenscolorado.org
A CCTSI pilot grant helped David Howell, PhD, advance research on concussion‑related sleep and recovery in adolescents—leading to $4M in NIH funding and a first‑of‑its‑kind behavioral sleep intervention. @childrensresearch.bsky.social, @cuanschutz.bsky.social, @cupediatrics.bsky.social
Pilot Grant Leads to Advances in Post-Concussion Care
CCTSI Pilot Grants help investigators improve lives through their research. They also help advance the careers of awardees while strengthening the research enterprise overall.
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