Ups and downs since i last posted on here. I got my work into CHI and received an honourable mention award! 🥳Wasn’t able to go due to still being on treatment…been told to buckle in for at least 18 more months of IV antibiotics🙃…got a puppy! And the PhD continues through it all 😴

Month 5 of IV antibiotics out of 6 (maybe?). Goalposts keep moving and i’m not sure if I will end these IVs in Jan or whether we continue longer… just want concrete answers. Taking time off in Jan to focus on health as if this is my last month of IVs I want to try my best to make it count!

Hello everyone, it’s been a while. Finished treatment end of April. Got engaged in June 🥳 and then…found out my cavity in my lung has become the same size as before treatment so back on 12 weeks of IVs (at least), was in a car accident.. waiting for a scan on halloween to discuss treatment further

if you have followed me for my CF - hi 👋🏼. I have NTM as some of you may know and am about to try an eradication attempt yet again for 12 weeks 😬 i’m hopeful but trying to remain realistic that i’ll get better but probably won’t get rid of it completely. #CF #cysticfibrosis #NTM

I know most of you are unaware of my CF and have followed me for my research but from next week i shall be embarking on 12 weeks of intravenous antibiotics and then a surgery on my lungs in order to help my health. My research is paused until May - I’ll be excited to get back to it! #cysticfibrosis

Hi all! For those who don’t know me, I’m a digital health and care CDT student at the university of bristol looking at sexual reproductive health in cystic fibrosis taking an HCI approach to my research. I’m currently a year and a bit in ☺️