I will be on CBC Alberta at Noon tomorrow to talk about how communities can support disabled, autistic and neurodivergent families to help keep them safe. Tune in.
Rae Martens ♿️
@coffeeandresearch.bsky.social
Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
The bad ai images people share to complement their point should give us all pause to fact check or just dig a little deeper before accepting what we see as just, “good enough”.
The future of this country will be shaped not only by the challenges we face today, but how we invest in the children who will inherit them. Parliament must move swiftly to pass Bill S-212 and create a national strategy for children and youth. www.hilltimes.com/2026/07/30/p...
Past due: a plan for children and youth in Canada - The Hill Times
The future of this country will be shaped not only by the challenges we face today, but how we invest in the children who will inherit them. Parliament must move swiftly to pass Bill S-212 and create ...
hilltimes.com
We judge people quickly; when someone walks in wearing a safety vest, holding a stethoscope, speaking with confidence, we instantly decide if they know what they’re doing. Online, it’s even more intense and complicated to navigate. That gut reaction gets packaged and sold to us on purpose. /1
Happy Friday! You can make it through today. Run on caffeine, determination and whatever this look is.
The National Autism Network is a response to Canada’s federal National Autism Strategy. It seems there will be an opportunity for families to be engaged from what the article states. You can learn more about the organization here: nan-rna.ca www.theglobeandmail.com/canada/artic...
Autism advocates call for alert system overhaul after Calgary boy found dead
A national autism organization says emergency alert systems and first-responder training need ‘urgent change’ for vulnerable children and their families
theglobeandmail.com
The more we recognize these actions people take, the slower our pace is online. That's not inherently a bad thing. It makes us more intentional. That makes social media suck just a little bit less.
Starting a new series called, “How to Make Social Media Suck Just a Little Bit Less”. The goal is to start talking about influencer quirks, sketchy habits and how to build better decision frameworks before we share.
This is pretty cool! Jim Pattison Centre for Health Systems Learning + Innovation is opening up for submissions for healthcare ideas and innovations. jpcentre.ca/submit-an-id...
Submit an Idea | Jim Pattison Centre for Health Systems Learning + Innovation
We believe innovation starts with people who see opportunities to improve care, systems, and community impact. If you have an idea, challenge, or potential collaboration you would like to explore, we ...
jpcentre.ca
Disability Pride Month is celebrated worldwide every July — and what a joy and honour it was for me to sit down for a conversation with Man in Motion Rick Hansen for @bcparksfoundation.ca's #PaRx blog, published this month. Read it here: www.parkprescriptions.ca/updates/parx... #healthybynature
A B.C. woman's extreme battle to help her disabled brother Angela Clancy's brother, Alan, lives in a Victoria suburb with his stepdad. Two lawsuits raise concerns about his living situation. But his caregiver denies wrongdoing and officials refuse to move him vancouversun.com/news/exclusi...
Exclusive: A B.C. woman's extreme battle to help her disabled brother
Two lawsuits raise concerns about a disabled man's living situation. But his caregiver denies wrongdoing and officials refuse to move him.
vancouversun.com
Out of the whole of human anatomy and physiology, bones and brains fascinate me the most. So when Jimothy came on the scene, this was an opportunity to learn about something new through natural curiosity.
The title to this article is cringeworthy, but there are a lot of key points the author circles around that resonate with me as a knowledge mobilization and implementation support specialist. Movements become influential because they’re easy to understand, easy to repeat, and easy to belong to.
ChatGPT medical advice brought man 'to brink of death', lawsuit alleges www.bbc.com/news/article...
ChatGPT medical advice brought man 'to brink of death', lawsuit alleges
An American man sues OpenAI and its founder Sam Altman, claiming the popular chatbot "repeatedly misdiagnosed" him.
bbc.com
What makes someone say yes to getting involved as a partner in research? And maybe just as important, what makes them stick come back and do it again? It's DICES-L. This is something Kristina McGuire and I put together a few years ago from our learnings in/1 #familyengagement + #patientengagement
Awhile back I shared a house analogy on sustainable #patientengagement and #familyengagement at a SKIP event. With KT and artsy brain inspired, I thought I would take my first crack at creating a zine on a more in depth version. /1
Online Flipbook
Created with the Heyzine flipbook maker
heyzine.com
🧵 Thread Paper Overview: The Stigmatization of Caregivers of Children With Attention-Deficit/Hyperactivity Disorder: A Systematic Review #adhd When most people talk about the stigma around ADHD, they usually picture the experiences of the child. But there’s another side to the story:
This paper shares a rather fascinating best practice from Wales called the Well-being of Future Generations Act 2015 where policy makers are asked to think of the long term implications of their developed policies. /1
Intriguing policy brief on the Canadian Disability Tax Credit. Some morning coffee reading. maytree.com/publications...
From screening out to welcoming in: Promoting access to federal disability benefits - Maytree
Download the policy brief Canada’s federal Disability Tax Credit (DTC) has become the single access point for 17 federal disability programs – covering income security, housing, employment, education,...
maytree.com
Op-Ed: At $6.71 a day, the Canada Disability Benefit falls short The Canada Disability Benefit was meant to reduce poverty. Instead, its forces many people with disabilities to make harmful tradeoffs. www.canadianaffairs.news/2026/07/06/o...
Op-Ed: At $6.71 a day, the Canada Disability Benefit falls short
The Canada Disability Benefit was meant to reduce poverty. Instead, its forces many people with disabilities to make harmful tradeoffs
canadianaffairs.news
The Canadian Women's Chamber of Commerce (CanWCC), are calling on the Federal Government to recognize the Care Economy (caregiving) as Critical Nation-Building Infrastructure. www.ourcommons.ca/petitions/en...
ourcommons.ca
With a provincial election somewhat down the road, I’m reminded of one thing. Disabled people aren’t just affected by elections. We help decide them. Disabled people vote. So do parents whose children depend on disability supports. Parties should be asking how to earn that vote. #abpoli
Disability isn’t a niche topic in policy. It’s housing, healthcare, employment and more. It’s the classroom and the wait list. Every party platform asks for their vote. The disability community knows what good policy looks like because they know when they’ve lived inside it. /1
Could happen in Canada too. If we ask our politicians for it. Check out www.pluginsolarpower.ca. And send a politician a message. That Canadians deserve the ability to produce their own power. Even renters.
Millions of New York renters couldn't afford rooftop solar until someone realized a balcony outlet might change everything
For millions of apartment dwellers across New York and the U.S., rooftop solar has never been an option. They rent. They live in multi-unit buildings. Their
energiesmedia.com
Hey folks! If you’re looking to do some patient and family engagement in your healthcare system design or in research. If you’re not sure where to start or how to begin to imagine it, I put some stuff together from 10 years of experience and a recent publication. Free to download. www.raemartens.ca
Rae Martens
Rae Martens Writer, Science Communicator, Coffee Drinker
raemartens.ca
Alberta urged to follow federal guidance as it develops fall COVID-19 vaccine plan www.cbc.ca/news/canada/...
Alberta urged to follow federal guidance as it develops fall COVID-19 vaccine plan | CBC News
Infectious disease experts hope the Alberta government will fully adopt federal COVID-19 vaccine guidance as it plans its immunization rollout for later this year.
cbc.ca
Canada Needs to Invest in Children and Youth Federal Policy, Recognizing Kids as Individuals with Their Own Rights As Bill S-212, a National Strategy for Children and Youth Act awaits further assessment in the House of Commons, now is the time to continue to advocate for its passing. /1
There’s a national kangaroo-a-thon announced here in Canada. The first national Kangaroo Care initiative will track skin-to-skin hours in neonatal intensive care units across Canada throughout May. www.todaysparent.com/baby/nationa...
National Skin-To-Skin Challenge Launches In Canadian NICUs - Today's Parent
The first national Kangaroo Care initiative will track skin-to-skin hours in neonatal intensive care units across Canada throughout May.
todaysparent.com