No one should have to prove their disability to deserve kindness, inclusion, or access. A little empathy can remove barriers that medicine never could. 💜 #DisabilityAwareness #Accessibility #ChronicIllness
CreakyJoints®
@creakyjoints.bsky.social
Community of people living with arthritis & rheumatic disease. EST 1999.
"Imagine sweltering in the summer heat, battling spontaneous menopausal hot flashes, all while searching for a long-sleeved blouse or sweater to conceal my arms. These sores were not just painful; they were highly conspicuous." creakyjoints.org/about-arthri... #RheumatoidArthritis #Arthritis
Sweaters in Summer, Strange Sores, an Everlasting Flare
A personal journey navigating a potential shift from a rheumatoid arthritis diagnosis to possibly having psoriatic arthritis.
creakyjoints.org
👀 Whether it's a specific eye drop, a lifestyle tweak, a specialist who finally got it right, or just a coping strategy for the hard days, we want to know: What works best for YOU in managing TED? Share below — your answer might be exactly what someone else needs to hear today. #ThyroidEyeDisease
Support shouldn't begin at a crisis. Everyone deserves to be believed, respected, and have access to timely care, accommodations, and accessibility—before reaching their breaking point. 💜 #DisabilityPrideMonth #ChronicIllness #PatientVoice #Accessibility
Heat, humidity, wildfire smoke, and even some RA medications can all affect how you feel. Staying hydrated, protecting your skin from the sun, checking air quality, and planning around the hottest hours can help you stay safer and more comfortable. #RheumatoidArthritis #Arthritis
For many people living with chronic illness or a disability, canceling plans isn't about not wanting to go—it's about recognizing when their body needs something different. Canceling plans isn't selfish. #DisabilityPrideMonth
For many people living with disabilities and chronic illnesses, rest is part of managing their health—not a luxury. This Disability Pride Month, let's stop treating rest like a reward and start recognizing it as a legitimate medical need. #DisabilityPrideMonth #ChronicIllness #DisabilityPride
No one should have to prove they're "disabled enough" to be believed or accommodated. This Disability Pride Month, let's choose empathy over assumptions. 💜 #DisabilityPrideMonth #InvisibleDisability #ChronicIllness
Today is #ChronicDiseaseAwarenessDay. Living with a chronic disease is about so much more than managing symptoms. It’s navigating daily life with resilience while facing challenges that often go unseen. Every story deserves to be seen, heard, and believed. 💜 #ChronicDiseaseAwarenessDay
🇺🇸 We're reflecting on what independence means for people living with chronic illness. For many, it means finding the right treatment, being heard by your care team, advocating for your health, or simply having a day where symptoms don't stand in the way. Happy Independence Day. ❤️🤍💙 #IndependenceDay
🇺🇸 America's history is also the story of public health. This special Independence Day episode of The Health Advocates explores the milestones—from vaccines to Medicare and the NIH—that have helped shape healthier lives over the past 250 years. 🎙️ Tune in: youtube.com/watch?v=tF96...
S9, Ep 14- How America Learned to Live Longer: 250 Years of U.S. Health Policy
YouTube video by CreakyJoints
youtube.com
This is the symptom nobody talks about — but so many people with HS experience. The odor linked to HS comes from drainage and inflammation. It is not a hygiene issue. You deserve answers and proper care. Learn more 👉 ghlf.org/hscheck/?utm... #HSAwareness #HidradenitisSuppurativa
HS doesn't just affect you during flares. The scars, discoloration, and skin tightness it leaves behind can last long after the inflammation fades. If your skin has changed in ways you can't explain, it's worth checking. 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa
For many people living with chronic illness, those words don't feel reassuring—they feel dismissive. Not every symptom can be seen. Pain. Fatigue. Brain fog. Flare-ups. Invisible illness is still illness. Believe people when they tell you what they're experiencing. #ChronicIllness
Did you know? 🤔 Graves’ disease affects more than just your thyroid. Because thyroid hormones influence nearly every system in the body, Graves’ can impact your energy, heart rate, mood, sleep, and overall well-being. Learn more: creakyjoints.org/education/wh... #GravesDisease #ThyroidHealth
It's #HSAwarenessWeek. 💜 Painful, recurring lumps or boils under the skin may be more than "just a skin problem." Our free, anonymous HS Symptom Check can help you better understand your symptoms and prepare for a conversation with your healthcare provider. 🔗 ghlf.org/hscheck/
HS pain isn't just uncomfortable — it's disabling. From mild sensitivity to severe, daily discomfort, pain is one of the most impactful symptoms of Hidradenitis Suppurativa. Don't dismiss what your body is telling you. See if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwarenessWeek
But arthritis doesn't end tomorrow. To everyone living with arthritis: You do not need to earn rest. You are allowed to set boundaries, ask for help, protect your energy, and put your health first. See you tomorrow. We'll still be here. 💜 #ArthritisAwarenessMonth
If you live with arthritis, inflammation may be doing more than causing aches and pains. It can contribute to joint pain, swelling, stiffness, fatigue, and long-term joint damage. Learn what inflammation is, why it happens, and why managing it matters. Read more: creakyjoints.org/about-arthri...
Your Guide to Understanding Arthritis Inflammation
Discover why keeping tabs on inflammation is crucial for managing your condition and overall health and how to be a more proactive patient.
creakyjoints.org
Tired of waking up exhausted from arthritis pain? 😴 Getting quality sleep with arthritis can feel impossible sometimes — but small changes can make a big difference. Here are 18 tips that may help you according to experts and people living with arthritis: creakyjoints.org/living-with-...
How to Get a Better Night’s Sleep with Arthritis: 18 Tips that Patients Swear By
Arthritis causes sleep problems, but these tips from real patients can help you sleep better and reduce painsomnia.
creakyjoints.org
“Your labs look normal.” For many people living with Graves’ disease, that doesn’t always mean the symptoms disappear. Learn tips for navigating life with Graves’ disease: creakyjoints.org/GravesDiseaseWellness
If all you did this weekend was survive, rest, or make it through the flare… that was ENOUGH. Show yourself grace tonight. 🫂🫶
Gout symptoms can come and go, making it easy to put care off. Genene shares why getting checked early and following up with your doctor matters. Hear more patient experiences: creakyjoints.org/thegoutshow/ #Gout #GoutAwarenessDay #Healthcare
Managing gout isn’t always as simple as “just take your medication.” Life gets busy. Appointments get pushed off. Questions come up after the visit ends. Check out the Gout Guide: creakyjoints.org/education/go... #Gout #GoutAwarenessDay #Healthcare
Gout can affect much more than your joints. Genene shares how gout flare-ups impacted work, family life, and everyday activities — and why gout is a serious disease. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay #GoutAwareness #GoutEducation
Feeling like your gout is in control instead of you? You’re not alone. If you’re experiencing frequent flares, have high uric acid levels despite treatment, or have developed tophi, it may be a sign that your gout is not well controlled. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay
Gout care starts with understanding your options. In this video, Genene shares why knowing about the ACR Gout Guidelines can help patients, families, and healthcare teams navigate diagnosis and treatment. Learn more: creakyjoints.org/education/go... #GoutAwarenessDay #Gout #Health
Tomorrow is #GoutAwarenessDay. One thing many people don’t realize about gout: even after a flare improves, uric acid crystals can continue building up in the body over time. Understanding gout can help patients take control of their care. Learn more: creakyjoints.org/education/go...
Something bigger than a single vaccine debate is happening across America’s public health system. This week on #TheHealthAdvocates, we break down growing FDA scrutiny, shifting vaccine recommendations and more. 🎧: www.youtube.com/watch?v=BGMK...
One of the hardest parts of living with arthritis or an invisible illness isn’t always the symptoms. Sometimes it’s the exhaustion of constantly having to explain them. Invisible ≠ imaginary. 💜 creakyjoints.org/living-with-... #ArthritisAwarenessMonth #InvisibleIllness
People with Invisible Illnesses Are Tired of Explaining Their Conditions — and We Understand Why
“I'm sick of being told to ‘suck it up’ and ‘get over it,’” CreakyJoints member Velma M. says of explaining her invisible illness to the people in her life.
creakyjoints.org