Clinically Vulnerable Families πŸ’™πŸ’œπŸ’—

@cvcev.bsky.social

UK Covid-19 Inquiry Core Participant Safe access to health, workplaces, education and beyond Donate: http://bit.ly/CVFdonate JOIN us on FB πŸ“Έcv_cev ❌️@cv_cev www.clinicallyvulnerable.org

Hi @lewisgoodall.com , please could you take a moment to watch @larawong.bsky.social's evidence to the Covid Inquiry? The needs of higher-risk children and their families were ignored, and reopening schools without sufficient protections put both lives and education at risk. bsky.app/profile/cvce...

Clinically Vulnerable Families πŸ’™πŸ’œπŸ’—@cvcev.bsky.social Β· 10mo ago

The need for choice. Hybrid (outdoor) learning Remote learning The need for a national remote school. 41/

Several studies have since shown definitely that children and schools contribute signficantly to transmission. In Sweden (with no formal lockdown), parents and teachers of pupils at school had higher infection rates. Children live with and are taught by adults. Many are vulnerable adults. 4/12

πŸ™ PLEASE CAN YOU SPARE 4 MINS πŸ’‰If you have a health condition that qualified for priority Covid vaccines due to health reasons or older age (or 'flu) OR πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘§You live with someone who does OR 😷You wear a mask AND πŸ‡¬πŸ‡§Live in the UK πŸ” + πŸ’• Thx! forms.gle/vbb9YYhy1RNd...

Survey: Masks, Protest, and Public Life

This survey is open to all Clinically Vulnerable people, those in their families, and also people who wear masks in the UK. It asks about your experience of mask-wearing, the new protest law, and how...

forms.gle

πŸ™ PLEASE CAN YOU SPARE 4 MINS πŸ’‰If you have a health condition that qualified for priority Covid vaccines due to health reasons or older age (or 'flu) OR πŸ‘¨β€πŸ‘©β€πŸ‘§β€πŸ‘§You live with someone who does OR 😷You wear a mask AND πŸ‡¬πŸ‡§Live in the UK πŸ” + πŸ’• Thx! forms.gle/vbb9YYhy1RNd...

Survey: Masks, Protest, and Public Life

This survey is open to all Clinically Vulnerable people, those in their families, and also people who wear masks in the UK. It asks about your experience of mask-wearing, the new protest law, and how...

forms.gle

New treatment for MS patients on NHS: "Fampridine boosts nerve signals to make it easier for some people to move and live independently" "Clinical trials showed around 4 in 10 people [...] had improvements in their walking speed and in how long they could walk for." www.bbc.co.uk/news/article...

Multiple sclerosis: First drug to help patients walk now on NHS in England

Fampridine boosts nerve signals to make it easier to walk, with up to 5,000 eligible.

bbc.co.uk

We've had HEPA filters in our schools for a few years now thanks to partnerships with the research community, and jumping on funding opportunities. I'm all for it, but another big unfunded mandate here from the DfE. Stuff costs money. You can't guidance stuff or money into existence.

Clinically Vulnerable Families πŸ’™πŸ’œπŸ’—@cvcev.bsky.social Β· last mo.

New DfE statutory guidance on allergy safety in schools states: "Clean air is a core asthma control measure. Good ventilation, air quality monitoring and supplemental HEPA air filtration are essential." Schools are now legally required to have regard to that. 2/

children. Exercise and cold air can also cause symptoms. Common symptoms include coughing, wheezing and breathlessness out of proportion to effort, and a tight chest. An asthma attack occurs when symptoms are severe, and breathing becomes difficult.

Poor air quality worsens asthma and increases asthma attacks, and those in deprived areas with poorer nutrition suffer increased negative health effects from poor air quality. Clean air is a core asthma control measure. Good ventilation, air quality monitoring and supplemental HEPA air filtration are essential, especially when ventilation is limited and outdoor air is polluted. Systematically integrating and embedding clean indoor air into legal health and safety duties, policies, procedures and practices will reduce pressure on staff and ensure consistency and support without too much extra work.

Children and young people known to have asthma should have their own reliever inhaler at school to treat symptoms and for use in the event of an asthma attack. If they are able to manage their asthma themselves they should keep their inhaler on

After I wrote last week's column, I learnt that a neighbour with severe disabilities, an extremely tough & resourceful woman who lived to the full, died in the heatwave. Everyone here is devastated. I can scarcely express my anger towards a mindset that treats people like her as collateral damage. 🧡