🎙️ New episode of Inflammatory! “Can You Be a Trustee with IA?” is out now! ✨ IAUK started with one goal: no one living with IA should feel alone. 10 months later, we’ve built an incredible, supportive community. 💙 Watch tinyurl.com/436x9e5x Listen tinyurl.com/8v827uze #TrusteeWeek #IAUK
Debbie Wilson
@debswilson.bsky.social
Chairperson and founder of Inflammatory Arthritis UK. New charity for anyone of any age impacted by IA. Inflammatoryarthritis.org 🎙Inflammatory! Podcast Trustee of ARMA, Teapot Trust 🫖 patient/parent advocate of Juvenile Idiopathic Arthritis.
⭐ Episode 35 is out! 🎉we talk about what self-care really looks like when you’re living with inflammatory arthritis, from rest, flares & routines to colouring, creativity & hospital chaos. 🎧 Listen now tinyurl.com/mr9nw5c8 sign up at inflammatoryarthritis.org #InflammatoryArthritis #Selfcare
Have you heard about the MAMA Study? Are you pregnant or planning a pregnancy? Do you have arthritis which is being treated with a biologic? Find more information including how you can be involved: ➡️ www.npeu.ox.ac.uk/mama/partici... @themamastudy.bsky.social @npeu-oxford.bsky.social
💥 How painful is inflammatory arthritis? 🤔 This Friday on Inflammatory! we’re diving into the invisible pain that comes with IA. ✨ Does pain change your mood? ✨ What are your go-to tips for coping? Drop a comment below & join the conversation. 🎧 Full episode out Friday + YouTube! #Inflammatory
🐾 Happy #InternationalDogDay! 🐶✨ Dogs just know when you’re not at your best, flare, fatigue, or a rough day. Their cuddles & unconditional love are the best medicine. 💕 Here’s Debbie’s pup Whiskey 🐾, who we’ve mentioned on the Inflammatory! podcast. Listen here: tinyurl.com/yck6huy7
📢 The British Society for Rheumatology is working on a brand-new life-course clinical guideline for Juvenile Idiopathic Arthritis (JIA). People with lived experience we need your help! Share what matters most by completing our short survey before 16 Sept. 🔗 tinyurl.com/3pxu3mdu #JIA #Rheumatology
British Society for Rheumatology - JIA Guideline Scope for patients
British Society for Rheumatology - JIA Guideline Scope for patients
tinyurl.com
🎙In episode 17 of Inflammatory! we were joined by fashion and portrait photographer Rachell Smith, who shared her journey living with inflammatory arthritis. Navigating years of misdiagnosis to parenting with chronic pain. It is full of heart, honesty, and hope. 🎧 Listen here tinyurl.com/55ezx3hu
One of the hardest parts of living with Inflammatory Arthritis (IA) is explaining it. It’s not “just arthritis” like OA. IA is an autoimmune disease. 🎧 In Ep13 of Inflammatory! we use a sound system analogy to make sense of it. Listen here tinyurl.com/4ajba8rr #ArthritisAwareness #Autoimmune
🎧 Have you or someone you care about been diagnosed with a type of inflammatory arthritis (IA)? Check out Inflammatory! our weekly podcast (currently on a summer break ☀️) that dives into what life is really like with IA. 🎙️ Listen now on our website inflammatoryarthritis.org
🎉 Inflammatory Arthritis UK is 6 months old! What a journey it’s been and we’ve only just begun. There are other charities, but our focus on lived experience shows: people need to hear from people who get it. We’re here, and we’re needed. 💙 #IAUK #LivedExperience💙 #IAUK #LivedExperience
The NHS 10-Year Plan is out. We welcome the ambition but are reviewing how it impacts people with inflammatory arthritis. Timely diagnosis, access, and care matter. 🔗 Read our response: tinyurl.com/mr4djm5t #NHSPlan #InflammatoryArthritis #IAUK 👉 tinyurl.com/mr4djm5t #NHSPlan
July is #JuvenileIdiopathicArthritis Awareness Month 💙 JIA starts before age 16, and for many, it lasts a lifetime. Our co-founder & her daughter both live with JIA. Read Debbie's inspiring blogs here: tinyurl.com/ye3x5djr #JIA #ChronicIllness #JIAAwareness #InflammatoryArthritis
Inflammatory arthritis doesn’t take a holiday... even when we do! In this week’s episode of Inflammatory! we talk all things holidays, reflect on how far we have come considering IAUK is not even 6 months old! 🎧 🔗 Listen now: tinyurl.com/y42k4scr #inflammatoryarthritis #podcast #community
🌟 Small Charities, Big Impact 🌟 #SmallCharitiesWeek, even though IAUK is a new small charity, we are already making a big impact 💙 💬 Show your support this Small Charities Week by: ✔️ Sharing our page ✔️ Spreading awareness ✔️ Sign up to our newsletter & donate here inflammatoryarthritis.org
Please do get in touch if you would like to volunteer for Inflammatory Arthritis UK. Details 👇
HELP! episode out now 👥 Want to make a difference, even with limited time or energy? We’re talking about realistic, empowering ways to volunteer and shape the future of IAUK. 🎧 Listen to the full episode here: tinyurl.com/4aynyfs4 #ChronicIllnessWarrior #VolunteerOpportunity #InvisibleDisability
If you missed last weeks episode of Inflammatory! here is a small clip of what we discussed. Listen to the full episode here: shorturl.at/P53mT What would be your main research priority? Please let us know in the comments below 👇 #inflammatoryarthritis #InflammatoryPodcast #inflammatory
🎙️ Episode 20 our fifth Q&A is OUT NOW! We love diving into your questions, and this one was packed with great ones. What’s the most obscure “cure” for IA that someone’s ever suggested to you? 🤔🪄 Listen to our answers and the full episode here 🎧: tinyurl.com/5yncx8jz 😅
#Volunteerweek2025 Inflammatory! episode this week will celebrate and highlight the great work volunteers do. IAUK wouldn't exist without our amazing volunteers. If you know someone who gives up their time to help others please let us know in the comments and we would love to do some shout outs 👇
We love answering your questions. Please do send them in details 👇
We can not quite believe it is our fifth Q&A session this week!!🥳🎉 It is not too late to send in your questions. Leave your questions in the comments or send them here: tinyurl.com/yc4jj93b Please note: we only answer from our lived experience, we are not medical professionals.
🎧 New Inflammatory! episode is out now Digital Geniuses🧬💬 This week, we're diving deep into the power of lived experience in research, from genetic studies and AI, to digital health apps and real-life clinic frustrations (yes, even writing notes on a napkin 😅). listen here: tinyurl.com/5a29h8tk
🧠 Mental Health Awareness Week meets International Nurses Day! 🩺Latest Inflammatory! episode Nurse!, we discuss how nurses are the human side of healthcare & how they have really changed our lives #InternationalNursesDay Listen here tinyurl.com/39nvshv5 #Mentalhealthawarenessweek #inflammatory
Cannot wait to share this episode. Such an inspiring story, don't miss out sign up to our newsletter today at inflammatoryarthritis.org
Inflammatory Arthritis UK – Inspiring Resilience – Empowering Lives
inflammatoryarthritis.org
🚨 EXCITING NEWS Out this Friday! 🚨 We’ve got our very first guest on Inflammatory! 🎙️and it’s a powerful one! Rachell Smith a world class photographer & lives with axial SpA. Her story is incredibly raw, honest and inspiring. 💪 Sign up to our newsletter so don't miss it.. inflammatoryarthritis.org
🚨New 🎙Inflammatory! episode....our 4th Q&A! 🚨 We would love to know your thoughts on this questions, comment below 👇 Listen to our answers here 🎧 rebrand.ly/h2bqgj9 #inflammatory #inflammatoryarthritis #chronicillness
For all those attending #BSR25, IAUK hope the conference is going well. If you need something to listen to on your way home, Inflammatory! podcasts 🎙️ will give an insight into how we live with IA. 🎧 Listen to all episodes here shorturl.at/PbxH2 see you next year #inflammatoryarthritis #inflammatory
🙏Please nominate Inflammatory Arthritis UK, charity number 1211390, to win £5,000. We are all volunteers and all the money goes directly to helping our cause. Thank you 🙏nominate here health.movementforgood.com#nominateACha...
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Do you have a question about how we live with inflammatory arthritis or a funny one to cover on the podcast? Send them in 👇
❓Got a question about inflammatory arthritis? 🙋🏽♂️ Send it to rb.gy/f66c49 for our next Inflammatory! podcast Q&A session. We do like the humorous ones too! (Please note we are not medical professionals and we answer from our lived experience). 🎧🎙Listen to our previous Q&A sessions here: rb.gy/g2a0py
🎧 Missing Inflammatory!? Don’t worry — a brand new episode drops this Friday! 🙌 In the meantime, why not catch up or re-listen to your favourite episodes? Listen here 👉 shorturl.at/fVNRP #InflammatoryArthritis #Podcast #Inflammatory #ChronicIllness
🔁Vicious Cycle of Illness Living with IA can make you feel like a prisoner in your own body, with a never-ending loop: ➡️ Sick ➡️ Can’t take meds ➡️ Flare ➡️ Back on meds ➡️ Sick again. 🎙️ Listen to Prisoner, episode 14 of Inflammatory! Listen here: inflammatoryarthritis.org/episode-14/
🎉New Inflammatory! Episode Sound system out today. Parenting is tough enough, let alone when you live with IA. Does it make you a better parent? How is our immune system like a sound system? Listen here inflammatoryarthritis.org/episode-13/
🚨 New Podcast Episode! 🚨 What’s it like to parent a child with JIA while managing my own chronic illness? 🎙️ In this emotional episode, I share my journey of resilience, guilt, and support. 💡 Listen here: inflammatoryarthritis.org/episode-11/ #JIAAwareness #ChronicIllnessParenting #Podcast