Rachel Power - The Patients Association
@rachel-p.bsky.social
Chief executive at the Patients Association - views my own
📆 Patient Partnership Week kicks off on Monday! Make sure you're booked on to our free webinars to explore how genuine partnership with patients can create a fairer, more responsive and more effective health and care system. Book now: buff.ly/8gYV7gS #PPW2025
Patient Partnership Week 2025
We’ve launched Patient Partnership Week 2025! Find out more and book to attend our free webinars.
patients-association.org.uk
Are you looking to create campaigns that do more than raise awareness and instead shift power? Join us for this #PPW2025 event to learn how championing patient voices can drive real, lasting improvements in healthcare: buff.ly/Ks18OaL Sponsored by AstraZeneca
"Today’s investment in improving GP surgeries is a much-needed step towards better access to care closer to home," read @rachel-p.bsky.social's full statement in the @DHSCgovuk press release 🔽 www.gov.uk/government/n...
❗ "We are deeply alarmed by reports that NHS trusts across England are being forced to cut staff, close services, and ration care to meet severe savings targets," @rachel-p.bsky.social on the latest @nhsproviders.bsky.social survey. Read the full statement: buff.ly/nXXEUFi
In her latest blog, @rachel-p.bsky.social stresses that NHS reforms must prioritise patient power and agency. True change means tackling inequality, listening to patients, and ensuring they have real influence over their care and treatment. buff.ly/tPSOrhE
With record low levels of public satisfaction with the NHS, @leonoramerry.bsky.social tells #HealthontheLine @nhsconfed.org that the public are concerned about waits for GP appointments and hospital care – but do not clamour for a change in how the NHS is funded. www.nhsconfed.org/podcast/how-...
How can we improve the public’s view of the NHS?
Rachel Power and Leonora Merry discuss redressing public dissatisfaction in the NHS, and Steve Williamson is our Leader in Six.
nhsconfed.org
"The Government must ensure this transition delivers tangible improvements and doesn't divert attention from urgent priorities like reducing waiting times and improving access to primary care" @rachel-p.bsky.social Read our full statement: buff.ly/2kON0DM
Online registrations for #Rewired25 close this Sunday at midday! Our CEO @rachel-p.bsky.social will be speaking on how digital and data can both empower and engage patients on Day 1 of the event. Find out more and book your ticket: buff.ly/1jeaXhC
Proud to have been at the launch of CORE: a new approach to inclusive communication, in partnership with Weber Shandwick today. @rachel-p.bsky.social @sarahtilsed.bsky.social CORE aims to bridge the gap for disadvantaged populations who often struggle to navigate health information and services.
This deeply moving article is written by @madisonmarriage.bsky.social, the daughter of one of our focus group participants. In it, she tells the heartbreaking story of her brother, Charlie, who tragically passed away after being unable to access the emergency medication he needed. buff.ly/4be5Nv2
My brother, the NHS and the inquest into a needless death
My brother spent the last hours of his life trying in vain to get basic help from the NHS. Why?
ft.com
Curie, a patient and member of the Patients Association, was asked about her recent experience of NHS services by the UK Government TikTok channel! We're proud to see patient voices being heard 🩵
In the run-up to #HelplinesAwarenessDay2025 we're sharing some of the frequently asked questions our helpline team receive. ☎️ If you have a question about your healthcare, call our free helpline on 0800 345 7115 or email helpline@patients-association.org.uk.
Over 25 million people in England live with a long-term health condition (LTC) . Our new long read explores how technology-enabled support can bridge the gaps in our current healthcare system. @rachel-p.bsky.social @alfcollins.bsky.social @taradonnelly.bsky.social https://buff.ly/4b81Rfq
People powered health: technology enabled care for long-term conditions
Rachel Power, Tara Donnelly and Prof Alf Collins on transforming care for those living with long-term conditions through technology-enabled support.
buff.ly
Looking forward to being a part of this roundtable with the Health Innovation Network at the HETT Show North next week #PatientPartnership #HETTNorth25
💡 Are you a patient struggling with appointments, financial concerns, or knowing your rights? Our new resources cover what support may be available to you and how you can ask for what you need: https://buff.ly/412CDM4
Did you miss the live webinar with @drrageshri.bsky.social and our CEO @rachel-p.bsky.social on the importance of listening to patients and its place in the future of healthcare? You can now watch it on demand: https://buff.ly/40NusSj
The importance of listening in medical care - a Fireside chat with Dr Rageshri Dhairyawan
Join our Chief Executive Rachel Power, in a fireside chat with Dr Rageshri Dhairyawan, as they discuss the importance of engaged listening and its place in the future of healthcare.
buff.ly
Our recent report highlights practical steps to improve cancer care for underserved communities, including locate more screening, diagnostic, and treatment services in deprived neighbourhoods #WorldCancerDay www.patients-association.org.uk/blog/improvi...
Improving health equity for patients living with cancer and/or blood disorders
This report focuses on patients with blood disorders and/or cancer who experience health inequalities and what can be done to improve health equity.
patients-association.org.uk
Want to know how to get a second opinion or what you should consider? Check out our article which explains the new rules and your rights to request a second opinion about your NHS healthcare. www.healthwatch.co.uk/advice-and-i... #MarthasRule #SecondOpinion #NHS
A relatively short piece of guidance, a huge work programme ahead for the health and care system to put the Neighbourhood into the NHS (the Neighbourhood Health Service, that is). @nigel-edwards.bsky.social & I assess the scale of the challenge for @pplthinks.bsky.social ppl.org.uk/neighbourhoo...
Neighbourhood Health Guidelines 2025/26 - PPL
Alongside the NHS Planning Guidance for 2025/26, NHS England has published further guidance on the development of neighbourhood working. The intent is to accelerate the creation of a ‘neighbourhood h...
ppl.org.uk
Today@patientsassoc.bsky.social launched resources to help patients make most of healthcare appointments.Our animation&guide takes you through 👨🏽⚕️ how to prepare before 🏥 what to do during appointment 💉 steps to take after to ensure you get the best care www.patients-association.org.uk/getting-the-...
🆕 Would you like to make the most of your upcoming healthcare appointment? Our latest guide walks you through: ✔️ how to prepare before your visit ✔️ what to do during your appointment ✔️ steps to take afterward to ensure you get the best care www.patients-association.org.uk/getting-the-...
Getting the most out of your appointments
This guide is to help patients to prepare by sharing information to consider before, during and after health care appointments.
patients-association.org.uk
Harming children with major delays for treatment. www.theguardian.com/society/2025... #RightToRehab
Children in UK suffering ‘irreversible harm’ due to physiotherapy delays
Teenagers face lifelong trauma from untreated chronic pain while children as young as four waiting 18 months, say physiotherapists
theguardian.com
📣 New publication: Designing inclusive & trusted digital health services with people Why: -Darzi report:dire state of NHS partly due to not listening to patients -people excluded from digital health because of poor design -greater opportunity to better know patients & improve services with digital
NHS constitution makes clear that patients have a right to complain & obliges the service to learn from them. But there is little evidence complaints are being systematically used to improve care. NHS does not consistently welcome, handle, respond or learn from complaints in a patient-centred manner
Healthwatch England@healthwatchengland.bsky.social · 2y agoAn effective complaints system should be an essential part of improving health services and restoring public satisfaction with the NHS. We need a change in the NHS complaints system. Read our recommendations www.healthwatch.co.uk/news/2025-01...
An effective complaints system should be an essential part of improving health services and restoring public satisfaction with the NHS. We need a change in the NHS complaints system. Read our recommendations www.healthwatch.co.uk/news/2025-01...
Has the Times sacked its Media Correspondent? Scrolling through its news list and it’s missed a huge story involving the monarchy, journalist ethics and a billion pound cover up at a hugely powerful media organisation. Surely more important than whether dogs suffer from January blues?
☎️ Our free helpline provides specialist information and guidance across all four UK nations to help you make sense of the world of health and social care. Call 0800 345 7115 or email helpline@patients-association.org.uk to speak to one of our friendly team! https://buff.ly/4gID1UW
We're excited to be part of this group as it aligns with our commitment to true patient partnership! Find out more from @thekingsfund.bsky.social 👇https://www.kingsfund.org.uk/insight-and-analysis/projects/do-with
Six key steps in tackling ethnic inequalities in genomics and precision medicine - NHS Race and Health Observatory:
