ACT for ALS has always been a community effort, and we couldn't be prouder to stand with you in this movement. Let's celebrate what we've accomplished together! Tell us how you feel now that ACT for ALS has FINALLY passed Congress in the comments ↓

The ACT for ALS celebration continues! Yesterday, Board Member & Veterans' Team co-chair Tim Abeska delivered figurines to Congressional champions like Reps. Quigley and DeLauro. Thank your legislators for getting ACT for ALS across the finish line: bit.ly/A4A-TY

Reauthorizing ACT for ALS this week wouldn't have been possible without our incredible volunteers and Community Teams. Join us tomorrow, Oct. 1st at 2 pm EST for our first-ever I AM ALS Virtual Open House to hear what it takes to keep this movement going! RSVP: bit.ly/IAAOpenHouse

ACT for ALS protects $500M in federal ALS research funding over the next 5 years! Our community, legislative champions, allies, and advocates overcame huge hurdles to get this bill passed. We’re incredibly grateful. Thank your legislators: bit.ly/A4A-TY

ACT for ALS passed Congress with ONE DAY to spare! 🎉 Your emails, calls, meetings, petition signatures & relentless advocacy made this possible. THANK YOU! Thank our congressional champions: bit.ly/A4A-TY Keep this work going: bit.ly/giveALS

It is with a heavy heart that we share that Justin Upchurch passed away last Thursday. Justin met ALS with honesty, humor, and a fierce commitment to living fully. "ALS may determine how or why I die. I will not allow it to determine how I live my life"—Justin Read his story: bit.ly/justinupchurch

We've had 430+ meetings with legislators this year, keeping ACT for ALS a priority on the Hill. ALS moves fast, but so can we. 3 days left to reauthorize ACT for ALS before it expires Sept 30. Tell your senators to finish the job. 🔗 bit.ly/fundALS

ACT for ALS expands access to potential treatments. In just 4 days, our community gathered 20,100+ petition signatures urging Congress to reauthorize it. It expires next Wednesday. Tell your legislators to act now. 🔗 bit.ly/fundALS

Big news: PREVENT ALL ALS has hit its enrollment goal, thanks to this incredible community. 🎉 Enrollment remains open until September 30. If you have an increased genetic risk of ALS, here is your invitation to join. Visit all-als.org or email info@all-als.org to learn more.

Together, we sent 95,000+ emails to legislators for ACT for ALS this year. This bill is the fastest path to curing ALS, and it expires in 5 DAYS. Let's protect the progress it's made. Tell your legislators to reauthorize it. 🔗 bit.ly/fundALS

Reminder: Flag submissions are open for 2027! We invite you to submit the names of people living with ALS, familial gene carriers, and people who have passed from ALS. Request your flag at bit.ly/flags-27

ACT for ALS changed what's possible in ALS. In 2021, I AM ALS's advocacy saw it from drafting through passage, securing historic funding, wider access to therapies, and breakthroughs toward a cure. It expires next week. Let's finish what we started: bit.ly/fundALS

Meet Will Plews-Ogan: former ALS caregiver, now marathoner with a mission! After losing Jim in July 2024, Will and his family launched Hummingbird Fund. Will is lacing up with Team I AM ALS to run the TCS NYC Marathon, and he's already crushed $7,000 of his $20,000 goal! Support Will: bit.ly/WillIAA

Today, organizations that represent the ALS community came together to urge Senate Leadership to pass ACT for ALS before critical programs expire on September 30. Urgency is not just a talking point for people with ALS—it is our reality. Take action: bit.ly/fundALS

If we do not reauthorize ACT for ALS, patients across the country will lose access to treatments that are keeping them alive."—Sandra Abrevaya, I AM ALS co-founder 800+ patients have received treatments. Tell your senators: reauthorize ACT for ALS today! bit.ly/fundALS 📸: Stephen Voss

Today's the last day of Week of Impact! Thank you to everyone who shared their story, fundraised, and spread the word this week. We're closer than ever to a world without ALS. Let's finish strong. Donate $8 today: bit.ly/giveWOI

Community: we're extending our Week of Impact deadline to tomorrow! We've raised $100K+ so far, and every dollar brings us closer to a world without ALS. Donate $8 today and help us hit our goal: bit.ly/giveWOI

LAST PUSH: ACT for ALS expires September 30. Our community drafted this bill, championed it, and saw it pass in 2021. If it lapses now, people with ALS could wait months they don't have. Protect our progress toward a cure. Tell your senators: Pass the bill → bit.ly/fundALS

ACT for ALS expires in 10 DAYS. This bill exists because of what this community has done: hundreds accessing promising ALS therapies, research more coordinated than ever, historic federal funding secured. Don't let it stall. Tell Congress to finish the job: bit.ly/fundALS

Federal ALS funding was low for decades, but this movement refused to accept the status quo. We doubled ALS funding at the Department of Defense, twice, and there's now a proposal to double it again in 2027, from $40M to $80M. Donate today: bit.ly/giveWOI

Thanks to YOUR advocacy, I AM ALS has helped unlock more than $1.6 billion for federal ALS research. It's the largest investment in U.S. history. Let's keep the momentum going: bit.ly/giveWOI

We're close to new ALS treatments and can't slow down now. This week: 20,000+ petition signatures, 3,000+ emails, and in-person visits from our co-chairs, board, and staff. Both chambers passed the bill. It expires Sept 30. Tell your senators: PASS THE BILL. bit.ly/fundALS

We're 99% of the way to reauthorizing ACT for ALS. That last 1% is where you come in. Tell your senators to pass the bill: bit.ly/fundALS

When we renew ACT for ALS, this community will have secured another $500 million in federal funding for ALS treatments and research. Help fund our advocacy: bit.ly/giveWOI

We're on the cusp of new ALS treatments, and every dollar brings us closer. 3 days left in Week of Impact. Every gift counts. Donate: bit.ly/giveWOI Let's fuel the movement.

🚨 You all know that ACT for ALS expires Sept 30. Tell the Senate that they MUST pass this bill — for ALS research funding, access to treatments, and progress toward a cure. Take action: bit.ly/fundALS

With your support, I AM ALS has made historic strides towards ending ALS. One of the biggest wins this year was securing $313 million in federal ALS funding. Let's keep pushing until ALS itself is history. Donate to end ALS → bit.ly/giveWOI

What a Week of Impact. Thank you for fueling the movement to end ALS. And now it's even better: Dan Tate, Jr. is matching every dollar raised from today, up to $15,000. That's $30,000 for ALS research, advocacy, and access to promising therapies. Donate: bit.ly/giveWOI

Today is Sandra Abrevaya's birthday! 🎉 You know her as the legendary co-founder of I AM ALS, a force of nature leading the charge for ALS advocacy nationwide. Even today, she's on Capitol Hill working toward ACT for ALS. Celebrate her — drop your birthday wishes below! 👇

🚨 The House went home early, so we're pivoting. Now we pressure the Senate, which is still in session. We're pushing for the more than 800 people living with ALS who've gained access to promising therapies through ACT for ALS-funded EAPs. Pressure the Senate with us: bit.ly/fundALS