🚨 WE DID IT! The Senate passed their version of ACT for ALS last night! We're one step closer to reauthorizing this historic piece of legislation.(Shout out to ACT for ALS coauthors and I AM ALS cofounders @bsw5020 and @sabrevaya!) Thank your lawmakers: bit.ly/A4A-TY

"Hope changed things for Jay." 💙 The House voted to reauthorize ACT for ALS, bringing us one step closer to sustaining critical Expanded Access Programs for the ALS community. Thank your Representative for supporting ACT for ALS: bit.ly/TYReps

ACT for ALS is in the Senate, and we're so close! A Senate vote is expected soon. Then we'll be just one signature away from five more years of accelerated progress toward ending ALS. Ask your Senators to support ACT for ALS: bit.ly/fundALS

"I am living proof of the power of the medicine and the innovation... Before ACT for ALS, there was nothing available to any of us. Now we all have hope"—Dan Tate, Jr., I AM ALS Board Member, living with ALS Ask your Senators to pass ACT for ALS: bit.ly/fundALS

Living with ALS or caring for someone who is? You don't have to figure it out alone. I AM ALS Peer Mentors offer connection, encouragement, and self-advocacy tips from someone who shares similar experiences. Apply to be matched with a mentor. 💙 bit.ly/ALSpeers

We're closer than ever to reauthorizing ACT for ALS. But time is running out. ACT for ALS is set to expire in September—that's next month. Our advocacy got us this far. Let's keep the pressure on until this bill is signed into law. Ask your Senators to support ACT for ALS: bit.ly/fundALS

ACT for ALS explores multiple pathways to understanding and eventually treating ALS at once. That's why we say it's the single fastest path to a world without ALS. Ask your Senators to pass ACT for ALS: bit.ly/fundALS

Last week, the I AM ALS community sent 3,000+ emails to the Senate. This week, we gained 4 new Senate cosponsors. That's what advocacy can do. 💙 Let's keep the pressure on until ACT for ALS reaches the Senate floor. Ask your Senators to reauthorize it: bit.ly/fundALS

241 members of Congress agree: Expand telehealth access. The CONNECT for Health Act would make it easier for many people living with ALS to see their doctors. Tell Congress to pass the bill: bit.ly/ALSConnect

Thank you to Rep. Mike Quigley, Rep. Ken Calvert, Sen. Chris Coons, and Sen. Lisa Murkowski for your tireless leadership in reauthorizing ACT for ALS. The House has passed the bill. Next: the Senate. Protect the progress our community built. Ask your Senators to pass the bill: bit.ly/fundALS

Most people living with ALS don't qualify for clinical trials when they're diagnosed. ACT for ALS-funded Expanded Access Programs provide access to promising treatments they otherwise wouldn't receive. ACT for ALS is headed to the Senate soon. Ask your senators to pass it: bit.ly/fundALS

ACT for ALS expands access to promising therapies for people living with ALS who can't join clinical trials and strengthens the research infrastructure driving future breakthroughs. We expect a Senate vote—soon. Ask your Senators to pass ACT for ALS: bit.ly/fundALS

We're gaining ground in the Senate! 🎉 Thank you to Senators @whitehouse.senate.gov and John Barrasso for cosponsoring ACT for ALS. Help keep the momentum going—ask your senators to join them and support ACT for ALS: bit.ly/fundALS

This community has completed 1,000+ advocacy actions this week—and because of those actions, ACT for ALS is in the Senate! ACT for ALS would secure another $500M in federal ALS research funding. Keep pushing! Share this and ask a friend to tell their Senators to support ACT for ALS: bit.ly/fundALS

🎉 ACT for ALS has passed the House! This happened because our community showed up, spoke out, and demanded action. Now it's time to get it through the Senate. Keep the momentum going—ask your Senators to support ACT for ALS: bit.ly/fundALS

"All of the momentum we have gained will stop dead in its tracks if we allow the ACT for ALS to expire without being reauthorized"—Garrett | lost his brother to ALS ACT for ALS JUST passed the House, and now we need it to pass the Senate. Ask your Senators to support ACT for ALS @ bit.ly/fundALS

The Autonomy for Disabled Veterans Act (H.R. 2245) would increase funding for critical home accessibility modifications. Support Veterans living with ALS by asking your representative to cosponsor today: bit.ly/VetAccess

The House is expected to vote on ACT for ALS this week. ACT for ALS is the largest federal investment in ALS research to date—but it expires in just over 2 months. Don't let our progress stall. Tell your representative to support ACT for ALS: bit.ly/fundALS

🎉 BIG WIN FOR THE ALS COMMUNITY 🎉 ACT for ALS just PASSED the House! This happened because YOU took action, but we're not stopping until the bill is signed into law. Contact your Senators today and help get ACT for ALS signed into law: bit.ly/fundALS #ActForALS #EndALS

Brian & Sandra have spent 8+ years driving change for the ALS community. Thanks to Hop On A Cure, they're back for #IceBucketChallenge2026! They're challenging @quigley.house.gov, Team Gleason, Sen. Lisa Murkowski, and the I AM ALS community. Help reauthorize ACT for ALS. http://bit.ly/fundALS

🚨 ACT for ALS hasn't been voted on yet. The House vote has been postponed until later this week, giving us one more chance to make every message count before lawmakers vote. ALS can't wait. Ask your representative to support ACT for ALS TODAY: bit.ly/fundALS

Without ACT for ALS, Expanded Access Programs—and the promising therapies, research breakthroughs, and hope they make possible—could end. We've made too much progress as a community to stop here. Ask your representative to vote YES on reauthorizing ACT for ALS: bit.ly/fundALS

ALS prevalence is expected to rise by more than 10% by 2030. More people will need access to promising therapies. That's why ACT for ALS must move forward. ALS doesn't wait. Neither can we. Ask your representative to cosponsor ACT for ALS: bit.ly/fundALS

We've contacted representatives nationwide thanks to your advocacy, and Senators from 11 states have already cosponsored ACT for ALS. Let's keep the momentum going. Ask your Senators to cosponsor today: bit.ly/fundALS

ACT for ALS-funded Expanded Access Programs are a critical source of hope for people like Anne. They can help slow progression in some people living with ALS and generate data that brings us closer to a cure. Ask your representative to cosponsor ACT for ALS at bit.ly/fundALS

Caregivers do so much—and too often carry the financial burden alone. The Credit for Caring Act would provide a federal tax credit to help eligible family caregivers. Tell your legislators to help pass it: bit.ly/credit4care

Happy Friday! 💙 Take one minute before the weekend to help end ALS. Every action—big or small—moves the ALS movement forward. Take ONE quick action today: iamals.org/action

Thanks to your hard work and advocacy, we're closer than ever to reauthorizing ACT for ALS and protecting federal funding for ALS research and access to promising therapies. The House is likely to vote on ACT for ALS next week. Ask your Representative to vote YES: bit.ly/fundALS

🚨 The House is expected to vote on the Take Care of America's Veterans Act—including the Justice for ALS Veterans Act—this week. Now's the time to act. Ask your Reps to support the bill: bit.ly/alsvets Authored by Chairman Mike Bost, Congressman Brian Fitzpatrick, and @repchrispappas.bsky.social

The Tim Lowrey ALS Panel Series is one of our most requested programs. Learn about ALS directly from people living with it and bring an impactful conversation to your workplace, school, or community. Request a panel: bit.ly/TLPS-ALS