Wow - that's a high percentage 😮 "Adults who reported 2 or more infections had 76% higher odds of receiving a new medical diagnosis."

CIDRAP@cidrap.bsky.social · 4d ago

Repeat COVID infections tied to higher odds of new health conditions Adults who reported 2 or more infections had 76% higher odds of receiving a new medical diagnosis. Read more: https://bit.ly/4hleVmc

Covid infection levels in England are continuing to rise as we move into the autumn. With 1 in every 675 people in England infected as of 6 September, the BuDS overall Covid risk level remains Moderate, but is now approaching Moderately High. A thread 🧵

Yet still pro-graded exercise therapy, pro-CBT attitudes are still to be found among medical professionals who really should know better. Some powerful people really seem to want conditions like ME/CFS, Long Covid, etc to be psychological, due to lack of exercise, etc. They aren't.

Tom Kindlon@tomkindlon.bsky.social · 6d ago

10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS

Very helpful and thorough account (I think @ukhadds.bsky.social's work e.g. on CO2 levels impacting viral viability may be relevant too?)

🇨🇦Joe Vipond🇨🇦@jvipondmd.bsky.social · 2w ago

New Scientific Paper Essential Read Alert! (yes, that's a thing) Want to understand the factors involved in aerosol/airborne viral transmission? Easy to understand. excellent read. H/T to @barryhunt008.bsky.social for the share paijournal.com/index.php/pa...

Love to see this! "We're constantly listening to our visitors, and a designated mask-required experience is something many have expressed interest in" www.exploratorium.edu/press-office...

Exploratorium Announces Special Mask-Required Morning on Saturday, August 22 | Exploratorium

Low-capacity, early access offers a more comfortable museum experience for visitors seeking designated mask-required hours

exploratorium.edu

Neuromuscular dysfunction in #LongCovid shows changes between 1.2 - 2.6 yrs from infection: Muscle disease dropped from 78% (1.2 yrs) to 18% (2.6 yrs). But SFEMG (junction where nerve meets muscle) stayed abnormal: 54% (1.2 yrs) to 56% (2.6 yrs). www.sciencedirect.com/science/arti...

Persistent neuromuscular dysfunction in long COVID: A quantitative and single fiber EMG follow-up study

Persistent symptoms after SARS CoV-2 infection, often designated as "long COVID”, continue to be an ongoing health issue. Previously, we reported elec…

sciencedirect.com

Evidence of significant reactivation of herpesviruses and anelloviruses in covid, and correlation with severity, immune effects and clinical outcomes. www.nature.com/articles/s41...

Virus reactivation in acute and long COVID-19 - Nature

Chronic reactivation of distinct herpesviruses and anelloviruses occur during acute and long COVID-19, and track with disease severity, inflammation and outcomes, revealing immune signatures with prog...

nature.com

Another study showing exercise and fitness is completely unrelated to whether you are susceptible to long cd. Impotrant to prove - Can we move on now?

Tom Kindlon@tomkindlon.bsky.social · last mo.

From Germany: Associations Between Pre-Quarantine Exercise and Persistent Symptoms After SARS-CoV-2 Infection www.mdpi.com/2075-4663/14... "In our study, neither [Physical Activity] intensity nor duration showed an association with the presence or absence of long-term symptoms." #LongCovid #PASC

And people wonder why I've been arguing or masks in NSW Health I recommend forwarding this article to Dr K. Chant CHI NSW Health 1 Reserve Rd St. Lennarrs link.springer.com/article/10.1...

Universal SARS-CoV-2 RT-qPCR admission screening over 21 months in a German tertiary care hospital: detection of asymptomatic infections - BMC Infectious Diseases

Numerous nosocomial infections were observed in hospitals and other healthcare facilities during the COVID-19 pandemic, largely attributed to asymptomatic or pre-symptomatic carriers. SARS-CoV-2 scree...

link.springer.com

With wildfires raging & indoor air quality in the vicinity likely to be very poor, now would be a great time for @publichealthscot.bsky.social to inform the public about HEPA filtration units that remove hazardous smoke (& other) particles. Not expensive & widely available.

📢 Calling Edinburgh-based folk!

Inclusive New Normal@inclusivenew.bsky.social · 2mo ago

It's worth getting hold of a HEPA (High Efficiency Particulate Air) filtration unit or two if affected by smoke indoors. They filter out harmful smoke particles & as a bonus also other harmful particles, airborne allergens & infections. www.bbc.co.uk/news/article...

It's grim that we now need to be prepared for annual wildfires (and frequent even more dangerous house fires). Grab some masks now to protect yourself from future smoke damage, as well as airborne infections and other harmful particles

Inclusive New Normal@inclusivenew.bsky.social · 2mo ago

It's worth getting hold of a HEPA (High Efficiency Particulate Air) filtration unit or two if affected by smoke indoors. They filter out harmful smoke particles & as a bonus also other harmful particles, airborne allergens & infections. www.bbc.co.uk/news/article...

With three wildfires in Edinburgh over the last year alone, big inner city fires in Edinburgh and Glasgow, and more across Scotland & the UK, it's becoming more and more important to clean air indoors - get in touch with us if you want to borrow a purifier or help buying or building your own!

Inclusive New Normal@inclusivenew.bsky.social · 2mo ago

It's worth getting hold of a HEPA (High Efficiency Particulate Air) filtration unit or two if affected by smoke indoors. They filter out harmful smoke particles & as a bonus also other harmful particles, airborne allergens & infections. www.bbc.co.uk/news/article...

It's worth getting hold of a HEPA (High Efficiency Particulate Air) filtration unit or two if affected by smoke indoors. They filter out harmful smoke particles & as a bonus also other harmful particles, airborne allergens & infections. www.bbc.co.uk/news/article...

Please can anyone explain why ever-reducing vaccine eligibility despite in the absence of ever-reducing risk is morally acceptable or economically justifiable, when the public cost of vaccinating is very likely to be less than the public cost of health needs arising due to not vaccinating.

Clinically Vulnerable Families 💙💜💗@cvcev.bsky.social · 2mo ago

🚨TODAY, the UK removed people aged 75–79 from routine Covid vaccine eligibility. While countries like Canada continue offering vaccines to higher-risk groups, the UK keeps narrowing access. Policy choices have consequences! #ClinicallyVulnerableAwarenessDay <19th July>

Oh...dear 🤨

Dan O'Hara@skeuomorphology.bsky.social · 2mo ago

The PCR positivity map is out, and positivity has bounced back up from 0.6 to 1%. Adjusted for non-reporting, we make that 3.97% in England; there are clear hotspots. jamestindall.info/skeuomorphol... 1/6

Well, it won't be great for wheelchair users and many others with mobility impairments! Is it in breach of the Equality Act 2010? Can we have 'reasonable adjustments'?

Tom Kindlon@tomkindlon.bsky.social · 2mo ago

NHS to reward people who walk 30 minutes a day www.bbc.com/news/article... Hopefully it won’t cause problems for people with ME/CFS, either through pushing themselves to do it every day or pressure from others. #mecfs #pwme #cfs

Just a thought. Who out there is working on developing transparent respiratory masks?

Clinically Vulnerable Families 💙💜💗@cvcev.bsky.social · 3mo ago

🚨 WARNING: As of Monday, wearing a mask at a protest is a criminal offence in England & Wales. This is now the law. 🧵 on what this means for Clinically Vulnerable people... 1/ #ProtectVulnerableProtesters

Here's the latest variant picture with a global scope, to the end of May. NB.1.8.1 "Nimbus" was roughly flat at 50%. XFG.* "Stratus" fell to 19%. BA.3.2.* "Cicada" fell to 14%. 🧵

Register now: Jonas Grau Thomsen speaks online this Friday on technology, inclusion and the clinically vulnerable. He crossed three continents in a wheelchair. Clean air is part of this. Free. go.corsirosenthalfoundation.org.uk/LnOOgmF #CleanAir #Inclusion

NIH press release: "Immune system may attack nervous system in some Long COVID patients" www.nih.gov/news-events/... Paper: A causal link between autoantibodies and neurological symptoms in long COVID pubmed.ncbi.nlm.nih.gov/42208499/ #LongCovid #PASC

Our founder will be making a presentation on 'Indoor Air Quality Inequality, at the HESTIA network webinar on 'Justice and Housing', 23 June 12.30-1.30pm BST: events.teams.microsoft.com/event/bde680...

Microsoft Virtual Events Powered by Teams

Microsoft Virtual Events Powered by Teams

events.teams.microsoft.com

Sally Witcher@salwitcher.bsky.social · 3mo ago

📢 Calling Clinically high risk people - when we talk about improving indoor air quality, it's usually about schools, hospitals, workplaces. But how do you keep safe from infection brought home by other family members & visitors? I'm speaking at an event soon. Examples would be really helpful 🙏

Our founder @salwitcher.bsky.social will explore how indoor air quality inequalities can be exacerbated or reduced in our homes, arguing there's more to inequality than clinical status & why health impacts of airborne infections need to be considered alongside other indoor air pollutants, etc.

Sally Witcher@salwitcher.bsky.social · 3mo ago

People may understand that outdoor air quality can be a major health issue, but so can the air in our homes. Looking forward to discussing "Indoor air quality inequality: removing barriers to inclusion" - HESTIA network webinar, 23 June, 12.30-1.30pm BST events.teams.microsoft.com/event/bde680...

I and @independentsage.bsky.social advocated kids vax vs SARS2 since day 1. Even when transiently available to u12s, they were sold as a damp squib by those in authority. As vax coverage dwindles, the lack of foresight gets harder to reconcile. #LongCovidKids is a major neglected issue 💔

Stefan Pöhlmann@snpoehlm.bsky.social · 3mo ago

BA.3.2 - a "forever" variant? I've always wondered why BA.3.2 has persisted for such a long time. Now we know that it mainly targets the 0-4-year age group, and we know why. Could that explain its persistence?

Here's the latest variant picture with a global scope, to late May. NB.1.8.1 "Nimbus" was roughly flat at 55%. XFG.* "Stratus" fell sharply to 14%. BA.3.2.* "Cicada" was roughly flat at 17%. 🧵

Excellent speech. Thank you 🙏

Adam@abrokenbattery.bsky.social · 3mo ago

“Perhaps the most damaging experience of all though is not simply the illness itself. It is not being believed.” MSP Morven-May MacCallum speaking about her experience of Lyme disease and other chronic illnesses, including #MECFS, in the Scottish Parliament.

Wonderful example of a worldwide phenomenon - how pandemic-disabled people have come together in new kinds of communities, blending global and local, online and onsite👏 www.cbsnews.com/chicago/news...

"The power of the internet:" How a Chicago writer founded an international literary magazine from her bedroom

After experiencing Long COVID, Madeline Blair is building a global poetry community rooted in disability justice.

cbsnews.com

“This new class of universal vaccines...not only protect against many variants simultaneously, but potentially against related viruses that haven’t yet emerged..". 😮👏https://www.uhs.nhs.uk/whats-new/press-releases/new-ai-designed-universal-vaccine-could-protect-against-future-virus-outbreaks

Why do so many charts on different kinds of ill health show soaring rises from 2020-21? Findings show approx 1 in 6 develop post acute Covid sequelae but diagnostic coding systems capture fewer than half, rendering millions invisible to health systems & policymakers. jamanetwork.com/journals/jam...

Long COVID Persistence and Surveillance Gaps Across 58 US Hospitals

This cohort study quantifies the gap between true postacute sequelae of SARS-CoV-2 burden and diagnostic code–based estimates, determines the proportion representing chronic disease, and characterizes...

jamanetwork.com

Brilliant to see this! Congrats @omsiedu.bsky.social and thank you for taking clinical high risk seriously. Also, it looks like an amazing museum. I wonder whether it has installed the fantastic indoor air-cleaning tech available these days too h/t @cvcev.bsky.social omsi.edu/events/omsis...

OMSI’s Masked Night

A evening at the museum for those who are immunocompromised. A low-capacity evening, PPE masks required. | June 14, 6:00 - 9:00 pm

omsi.edu