📢 NEXT PAE SESSION: How to Run a PA Meeting/Supervision. PA employers, want to feel more confident in meetings or supervision? Join us Wed 21 Oct, 6–7pm (Zoom) to share tips, ask questions & learn from others. Email charley@pathfindersalliance.org.uk for info!
Pathfinders Neuromuscular Alliance
@pathfindersnma.bsky.social
User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info www.pathfindersalliance.org.uk
“The opportunity to live my best life.” It’s time for UK hotels to install ceiling track hoists. Don’t Wing it, Sling it!
Monthly Quiz Night – October’s edition!🦇 Get ready for a lively blend of geography, music covers, science, and Powerchair Football as we quiz right in the middle of the 2026 World Cup. ⏰ 7pm 🔗 Sign up: https://tinyurl.com/PathfindersQuizOct
WHERE'S DAVE? University Hospitals Birmingham Dave met the neuromuscular team in Birmingham to share equipment experiences and real-life solutions. Read more here: https://www.pathfindersalliance.org.uk/wheres-dave-birmingham/
“Freedom, choice, and dignity.” For thousands of disabled travellers, those three words disappear the moment they try to book a hotel room. Don’t Wing it, Sling it!
🎃 October’s Monthly Quiz Night – Sign Up Now! Expect mysterious melodies, curious chemistry, and matchday drama creeping in from the 2026 World Cup. 📅 Tuesday 20th Oct ⏰ 7pm 🔗 Sign up: https://tinyurl.com/PathfindersQuizOct
Monthly Quiz Night - Sign up Now! 📅 Tue 20 Oct ⏰ 7pm 🔗 https://tinyurl.com/PathfindersQuizOct A fast, fun mix of geography, music covers, science, and Powerchair Football - maps, melodies, microscopes, and matchday drama in one quiz.
Dave visited Naidex Roadshow South in Farnborough this September—much bigger and busier than expected! From wheelchairs to assistive tech, there was plenty to see. He’ll be at the main Naidex event in Birmingham next March. Read more: https://ow.ly/p7CF50ZUnjy
We're seeking paid guest speakers for our videos and PAE sessions! Share your lived experience and help PA employers grow and understand their roles. Sign up for our PAE sessions: https://ow.ly/JR8I50ZUn3k Apply to be a paid speaker: https://ow.ly/EAbp50ZUn3l
Our October newsletter is now available to read. Discover quizzes, films, campaigns, and more. What are you most excited about from Pathfinders' this month? Read here: https://mailchi.mp/pathfindersalliance/october-newsletter2026
Join us for our Monthly Quiz Night - every 3rd Tuesday! A fun, friendly evening where the Pathfinders community gets together online. This month’s quiz is hosted by Dave, our Equipment Advice & Outreach Officer. 📅 Tue 20 Oct ⏰ 7pm 🔗 https://tinyurl.com/PathfindersQuizOct
“There should be access for all.” But only some disabled travellers can stay in hotel rooms because just 18 hotels in the UK offer ceiling‑track hoists. Many of us are shut out by rooms that hotels claim to be accessible but aren’t for everyone. Don’t Wing it, Sling it!
“The purple pound exists.” Yet with only 18 hotels in the UK offering ceiling‑track hoists, disabled travellers are still being shut out by inaccessible rooms. Our money is as good as anyone else’s — we want to travel too. Don’t Wing it, Sling it! #HoistsInHotels
Upcoming PAE Sessions Update! 🗓️ Wednesday, 23rd Sept (6:00 PM - 7:00 PM) PAs in Hospitals Campaign & Petition! 🗓️ Wednesday, 30th Sept (6:00 PM - 7:00 PM) How to Organise Care on Holiday Got any questions? Email Charley@pathfindersalliance.org.uk. Hope to see you there!
👋 MEET DAVE! Meet Dave Loveridge, our new Equipment Advice & Outreach Officer! Over the next 18 months, Dave will be listening, learning and connecting with the neuromuscular community to help shape our Equipment Advice Service. 📝 Share your experiences: https://ow.ly/BnzT50ZQ5VF
🏥 PAs in Hospital Campaign Join us for a special online session with guest speaker Sarah Rose on Wednesday 23rd September, from 6–7pm on Zoom. Hear Sarah’s experience and learn more about the importance of Personal Assistants in hospital 💙 Sign up: https://ow.ly/iHTV50ZOHGN
Quiz Night is TONIGHT! Join us online at 7pm for our Monthly Quiz Night - fun, friendly, and open to everyone. Sign up before we start: 📝 https://tinyurl.com/PathfindersQuizSept
“I want to travel without worrying how I’ll get into bed.” Only 18 hotels in the UK offer ceiling‑track hoists, most “accessible” rooms still leave some disabled people without safe transfers. A hoist is a reasonable adjustment that can change this. Don’t Wing it, Sling it!
Our next PAE Session is Wednesday 23rd September, 6pm-7pm. The next session will be an open discussion. Sign up to our sessions: https://ow.ly/H9CT50ZBo2a #MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
Monthly Quiz Night is back! Join us online for our next quiz on 📅 Tues 15 Sept 2026 at 7pm. A fun, friendly way to connect with the Pathfinders community and test your knowledge. Sign up now:📝 https://tinyurl.com/PathfindersQuizSept
“Freedom to go wherever I want without worrying about how I will transfer.” Disabled people shouldn’t have to manage in hotel rooms not set up for their needs. Hotel building regs don’t require ceiling‑track hoists. Join our campaign - Don’t Wing it, Sling it! #HoistsInHotels
September 7th is #WorldDuchenneAwarenessDay. This year’s theme is access. For people with #DuchenneMuscularDystrophy #DMD, accessible hotels and hoists are vital. Our #HoistinHotels campaign shares lived experiences and calls for real change. Read more: https://ow.ly/UlUb50ZKk4L
“Hotels having ceiling‑track hoists would remove a barrier in travel.” Disabled people shouldn’t have to manage in rooms not set up for their needs. A hoist is a reasonable adjustment many rely on to get into bed. Don’t Wing it, Sling it! #HoistsInHotels
Our September newsletter has arrived! Check your spam folder in case you missed it. Read here: https://mailchi.mp/pathfindersalliance/september-newsletter-2026
Monthly Quiz Night - every 3rd Tuesday! Join us online for a fun, friendly quiz with the Pathfinders community. 📅 Next quiz: Tues 15 Sept 2026 at 7pm 📝 Sign up: https://tinyurl.com/PathfindersQuizSept
Help us support people with neuromuscular conditions. Your support helps us continue providing vital services, from research and advocacy to our PAE (Personal Assistant & Employer) sessions. It also helps us run events for our community. Donate here: https://ow.ly/a2ox50ZFwtn
Our next PAE Session is Wednesday 9th September, 6pm-7pm. The next topic is about Creating a Care Backup Plan. Sign up to our sessions: https://ow.ly/gOWz50ZBnTb #MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
Ready to play, connect and have some fun? 🕹️ Join Pathfinders #Gaming Social on 29th Sept, 7:00pm - 8:30pm! Whether you’re a serious gamer, a casual player, or just fancy meeting other #Pathfinders members, everyone is welcome. Email holly@pathfindersalliance.org.uk to join! 🎮
The UpLift Weekender is a space created by people with lived experience, for young people with muscle‑weakening conditions, where confidence grows and friendships begin. Our funding has ended, we need new partners to continue. 💚 June Weekender Recap 🔗 https://ow.ly/TlG750ZmhSA
Our next PAE Session is Wednesday 26th August, 6pm-7pm. The next topic will be How to Organise Care on Holiday. Sign up to our sessions: https://ow.ly/oubG50ZAqX5 #MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA