Cath & Dave are at the Action Duchenne Community Summit in Loughborough, representing Pathfinders! Great conversations about our developing Equipment Advice Service & lots of ideas to take away. If you're here today, pop by our stand and say hello! ๐
Pathfinders Neuromuscular Alliance
@pathfindersnma.bsky.social
User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info www.pathfindersalliance.org.uk
๐ Pathfinders Question Time! What does independence mean to you? ๐ Share your thoughts in the comments. #PathfindersQuestionTime #Pathfinders #Neuromuscular
๐ Have you signed up for our Christmas Get-Together yet? Join us for a festive day of friendship, fun & community for adults with muscle-weakening conditions. ๐ 28 Nov 2026 | ๐ 11am-5pm ๐ University of East London | ๐ฐ Free โ๏ธ Reserve your place: https://tinyurl.com/PathfindersChristmas
๐ฃ SHOW YOUR SUPPORT! Support our #HoistsInHotels campaign by adding our โDonโt Wing It, Sling It!โ frame & sharing on social media ๐ธ Add your photo, download & upload! ๐ https://canva.link/jgcuosmvr3l2drv ๐ฌ โI support @PathfindersAlliance #HoistsInHotels campaign because โฆโ
๐ Have you signed up yet? Pathfinders Christmas Get-Together ๐ ๐จ Crafts โข ๐พ Wild Science animals โข ๐ฒ Games โข ๐ง Quiz โข ๐ฝ๏ธ Lunch included ๐ 28 Nov 2026 ๐ 11am-5pm ๐ University of East London ๐ฐ Free โ๏ธ Reserve your place: https://tinyurl.com/PathfindersChristmas
๐ WHERE'S DAVE? | Birmingham again! Dave met with OT Deborah Harris. "What do you want to be able to do?" should come before "What equipment do you need?" What difference did that make? Or what do you wish they'd asked instead? ๐ https://tinyurl.com/WhereisDave6
Join Our Next PA Employer (PAE) Session! ๐ 25th November ๐6:00pm - 7:00pm ๐ฌ Employing PAs for a Loved One It's a great opportunity to connect with others, share experiences, ask questions and gain useful advice about employing PAs. Sign up here: https://ow.ly/E3ar5103hM6
โณ Not signed up for November's Quiz Night yet? Join us online on Tuesday 17 November at 7pm for a fun evening of trivia, teamwork and community. ๐ Sign up: link on Linktree, in our bio #Pathfinders #QuizNight
๐ Have you signed up yet? Pathfinders Christmas Get-Together ๐ ๐จ Crafts โข ๐พ Wild Science animals โข ๐ฒ Games โข ๐ง Quiz โข ๐ฝ๏ธ Lunch included ๐ 28 Nov 2026 ๐ 11am-5pm ๐ University of East London ๐ฐ Free โ๏ธ Reserve your place: https://tinyurl.com/PathfindersChristmas
Welcome to our brand new question series, Pathfinders Question Time! What's one thing you wish more people understood about living with a neuromuscular condition? ๐ Share your thoughts with us in the comments. #PathfindersQuestionTime #Pathfinders #Neuromuscular
๐ Have you signed up yet? Pathfinders Christmas Get-Together ๐ ๐จ Crafts ๐พ Wild Science animals ๐ฒ Games ๐ง Quiz ๐ฝ๏ธ Lunch included ๐ 28 Nov 2026 ๐ 11am-5pm ๐ University of East London ๐ฐ Free โ๏ธ Register your place: https://tinyurl.com/PathfindersChristmas
๐ SAVE THE DATE! Pathfinders Christmas Get-Together - London ๐ 28 November 2026 ๐ 11am-5pm ๐ University of East London Join us for a festive day for adults with muscle-weakening conditions. Sign up here: https://tinyurl.com/PathfindersChristmas โ ๏ธ Limited places available!
๐ WHERE'S DAVE? | Birmingham - online this time! Dave spoke with Dr William Bradlow, Laura Smith & Saskia Wrigley about designing services around people's real experiences, not assumptions. ๐ Read more: https://tinyurl.com/WhereisDave5
Pathfinders Quiz Night! Join us on the third Tuesday of every month for trivia, friendly competition and a chance to connect with others. ๐ 17 Nov โฐ 7pm ๐ Online ๐ https://tinyurl.com/PathfindersQuizNov Whether a quiz expert, or just coming along for the company, everyone's welcome!
๐ข PA Employer Session: How to Organise Housework ๐๏ธ Wed 4 Nov โฐ 6โ7pm ๐ป Zoom Join us to share tips & experiences with other PA employers. Register: charley@pathfindersalliance.org.uk
๐ Whereโs Dave? | South East Wales Dave caught up online with Stacey Davies to discuss equipment, support and sharing hidden knowledge across the neuromuscular community. ๐ https://tinyurl.com/WhereisDave4 ๐ฌ Where did you find your best equipment or adaptation tip?
๐ฃ Did you know? Pathfinders Quiz Night takes place on the third Tuesday of every month. Join us for another evening of friendly competition and community connection. ๐ ๐ Next quiz: 17th November โฐ 7pm ๐ Online ๐ https://tinyurl.com/PathfindersQuizNov #Pathfinders #QuizNight
โFreedom to travel anywhere.โ Itโs time for UK hotels to install ceiling track hoists. Donโt Wing it, Sling it!
Dave visited Coventryโs Muscular Dystrophy Support Centre to meet Laura Loftus-Driver, Mazhar Abbas, Dan Foley and Syed Subzwari. They discussed how the right equipment can boost independence and quality of life for neuromuscular conditions. Read more: https://ow.ly/rc0G50ZUrYE
๐ October Quiz Night - Tonight! Quickโfire questions, friendly vibes, and World Cup energy. ๐ Join us tonight at 7pm. ๐ Sign up: https://ow.ly/F3yX50ZOHjN
๐ข NEXT PAE SESSION: How to Run a PA Meeting/Supervision. PA employers, want to feel more confident in meetings or supervision? Join us Wed 21 Oct, 6โ7pm (Zoom) to share tips, ask questions & learn from others. Email charley@pathfindersalliance.org.uk for info!
โThe opportunity to live my best life.โ Itโs time for UK hotels to install ceiling track hoists. Donโt Wing it, Sling it!
Monthly Quiz Night โ Octoberโs edition!๐ฆ Get ready for a lively blend of geography, music covers, science, and Powerchair Football as we quiz right in the middle of the 2026 World Cup. โฐ 7pm ๐ Sign up: https://tinyurl.com/PathfindersQuizOct
WHERE'S DAVE? University Hospitals Birmingham Dave met the neuromuscular team in Birmingham to share equipment experiences and real-life solutions. Read more here: https://www.pathfindersalliance.org.uk/wheres-dave-birmingham/
โFreedom, choice, and dignity.โ For thousands of disabled travellers, those three words disappear the moment they try to book a hotel room. Donโt Wing it, Sling it!
๐ Octoberโs Monthly Quiz Night โ Sign Up Now! Expect mysterious melodies, curious chemistry, and matchday drama creeping in from the 2026 World Cup. ๐ Tuesday 20th Oct โฐ 7pm ๐ Sign up: https://tinyurl.com/PathfindersQuizOct
Monthly Quiz Night - Sign up Now! ๐ Tue 20 Oct โฐ 7pm ๐ https://tinyurl.com/PathfindersQuizOct A fast, fun mix of geography, music covers, science, and Powerchair Football - maps, melodies, microscopes, and matchday drama in one quiz.
Dave visited Naidex Roadshow South in Farnborough this Septemberโmuch bigger and busier than expected! From wheelchairs to assistive tech, there was plenty to see. Heโll be at the main Naidex event in Birmingham next March. Read more: https://ow.ly/p7CF50ZUnjy
We're seeking paid guest speakers for our videos and PAE sessions! Share your lived experience and help PA employers grow and understand their roles. Sign up for our PAE sessions: https://ow.ly/JR8I50ZUn3k Apply to be a paid speaker: https://ow.ly/EAbp50ZUn3l
Our October newsletter is now available to read. Discover quizzes, films, campaigns, and more. What are you most excited about from Pathfinders' this month? Read here: https://mailchi.mp/pathfindersalliance/october-newsletter2026