📢 EHDN/MDS (ES) Fellowship 2027 Applications Open in One Week! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe. Further information: ehdn.org/hd-clinician... Questions? ✉️ fellowship@ehdn.org #HuntingtonsDisease

Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease. 📅 29 Sept, 16:00–17:30 CEST 📍 Zoom Further information & registration link to follow - stay tuned

📢 EHDN/MDS (ES) Fellowship 2027 Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe. Further information: ehdn.org/hd-clinician... Questions? ✉️ fellowship@ehdn.org #HuntingtonsDisease #Training

🚨 FUNDING ALERT! 🚨 Applications are open for the Gossweiler Foundation Neurology Research Grant - funding non-pharmacological research into Parkinson's & movement disorder symptoms, based in/related to Switzerland. Deadline: 30 Sept 📅 🔗 www.jggf.ch/en/neurology... #ClinicalResearch #Funding

Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there! Register here: na.eventscloud.com/ereg/index.p... #HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch

Some August viewing 🎬 The latest Postcard from Palm Springs is online - a quick, non-scientist-friendly roundup of highlights from the 21st Annual CHDI HD Therapeutics Conference (Feb 2026). 🔗 chdifoundation.org/postcard-fro... #HuntingtonsDisease #HDResearch

🧬 WHAT IS EHDN ENDORSEMENT? More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants. 📰 Read more: ehdn.org/wp-content/u... #HuntingtonsDisease #ClinicalResearch #DrugDevelopment

Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD. 📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u... #HuntingtonsDisease #RareDisease

📢 EHDN's Occupational Therapy WG has published updated Clinical Tips for Huntington's Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) — bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...

📢 Invite: HEATED Task Force meeting at EHDN Clinical Research Congress (Kraków, 22-24 Oct). All welcome - people with HD, families, researchers, industry & more. More info: ehdn.org/ehdn-heated-... Congress: ehdn.org/ehdn2026/ Registration closes 31 July! #HuntingtonsDisease

Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Gianni (University of Leicester). #HuntingtonsDisease #ClinicalResearch

EHDN's Executive Committee has issued a statement on Roche's discontinuation of GENERATION HD2 and POINT-HD. Disappointing news, but tominersen proved huntingtin lowering is achievable - and other approaches remain in development. Full statement: ehdn.org/wp-content/u... #HuntingtonsDisease

Congratulations to Prof. Jean-Marc Burgunder, honoured with a European Academy of Neurology Lifetime Fellowship at #EAN2026 in Geneva! A former EHDN Chair & valued Think Tank member, he's dedicated his career to neurogenetics and compassionate care for families impacted by HD. #HuntingtonsDisease

🎆 Happy Independence Day to our American friends & colleagues! Today, we celebrate not just a nation’s independence but the spirit of collaboration that unites the global HD community across the Atlantic. #HuntingtonsDisease @hdfcures.bsky.social @hdsanational.bsky.social

📢 FALCON-HD: 12-Month Data – Composite Unified Huntington's Disease Rating Scale Subcomponents Read the 1 June (lnkd.in/ekUDnyAf) and 30 June (lnkd.in/e9t4Uuvt) press releases and the HDBuzz commentary: lnkd.in/gAAb2Wjj. For details of all ongoing/completed EHDN-endorsed studies: lnkd.in/eDwx3kBz

📰 EHDN News – July (Issue 58) is now online! Highlights: the 100th Lesley Jones Seed Fund awarded (€3M+ in research funding since launch), the Seed Fund Impact Study, an interview with Charlotte Spearing, plus EHDN Elections 2026 news. Read here: ehdn.org/ehdn-newslet... #HuntingtonsDisease #EHDN

The 12th Congress of the European Academy of Neurology takes place 27-30 June. EHDN is at Booth N35 in the Neurohood area - find out about our mission to advance research, facilitate clinical trials, and improve clinical care to enhance quality of life for people impacted by #HuntingtonsDisease.

🧠 Heading to Geneva this week for the 12th @EAN_Neurology Congress! The European Huntington's Disease Network will be at Booth N35 in the Neurohood area - come and find us to hear about the latest in HD research and collaboration. #EAN2026 #Neurology #HuntingtonsDisease #EHDN

**Bring your research to Kraków!** The call for abstracts is open for the EHDN Clinical Research Congress, Kraków, 22–24 October 2026. 🗓️ Submit 1–30 June 2026: na.eventscloud.com/eSites/87596... Questions: krakow2026@ehdn.org #HuntingtonsDisease #EHDN2026 #ClinicalResearch #HDCommunity

FALCON-HD, sponsored by Skyhawk Therapeutics, Inc., has been endorsed by EHDN. Clinical trial registration: clinicaltrials.gov/study/NCT073... Study webpage: www.falcon-hd.com/study-inform... For details about all ongoing and completed EHDN-endorsed studies: ehdn.org/previous-ong...

DEVISE-HD: Developing EVIdence for AntidepreSsant ChoicE to Treat Depression in Huntington’s Disease, sponsored by Cardiff University (UK), endorsed by EHDN: www.cardiff.ac.uk/centre-for-t... For details about all ongoing and completed EHDN-endorsed studies: ehdn.org/previous-ong...

EHDN's Occupational Therapy Working Group (ehdn.org/occupational...) has published updated and expanded Occupational Therapy Clinical Tips for Huntington's disease - Seating and Lying: www.hda.org.uk/seecmsfile/?... Find out about EHDN working groups here: ehdn.org/about-ehdn/e...

In the spirit of HD Awareness Month, the Leicester team showed up to their team meeting in beautiful blue to help raise awareness of Huntington’s Disease! Some staff members are also taking part in HDWalk26. Go Leicester! #HDAwarenessMonth #HuntingtonsDisease

Today, on International Huntington’s Disease Awareness Day, our team is wearing purple for Juvenile HD and blue for Huntington’s Disease awareness💜💙 Learn more about HD and the support available through the Huntington’s Disease Association: www.hda.org.uk #InternationalHDAwarenessDay

The European Academy of Neurology (EAN) will host its 12th annual Congress in Geneva from 27-30 June 2026, bringing together thousands of neurologists, scientists, educators, and healthcare professionals from around the world to discuss the latest developments in neurology: www.ean.org/congress2026

Today is #hdgratitudeday ❤️ We are proud to stand with the global #HuntingtonsDisease community in recognising the unique and ongoing collaboration between HD families, clinicians, and scientists.

Huntington’s disease is the best investment in neuroscience today www.sciencedirect.com/science/arti... #Huntingtons #Neuroscience #Investment

Huntington’s disease is the best investment in neuroscience today

Huntington’s disease (HD) is usually described as rare, tragic, and intractable. Yet, HD offers a strategically unique entry point for neuroscience. W…

sciencedirect.com

Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u... #HuntingtonsDisease #Research

The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists. Catch up by watching the recording: www.youtube.com/watch?v=wKj1... & reading the full report: ehdn.org/wp-content/u...

The 56th issue of EHDN News is now online: ehdn.org/wp-content/u... Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!