Yesterday marked the first event of the FOPH on the National Strategy for myalgic encephalomyelitis #MECFS and #LongCovid. The 4 patient organizations were able to contribute their experiences, concerns, and demands in the workshops. @sgme.bsky.social ME/CFS Schweiz @longcovidch.bsky.social PVS

We organised our 1st assembly, which was attended by 4/7 board members and 19/700 invited members. The assembly unanimously discharged the board and approved new articles and regulations governing integrity, transparency and conflicts of interest. long-covid-info.ch/news/erste-l...

Heute wollen wir darauf hinweisen, dass weltweit > 400 Mio. Menschen seit ihrer Covid-Infektion mit Long Covid leben (müssen). 5% der Bevölkerung sind betroffen. 6-7% der Erwachsenen und 1% der Kinder und Jugendlichen. Wir brauchen Versorgung, Forschung und soziale Sicherheit! #LongCovidAwareness

Silvia Bisculm Jörg überzeugt mit ihrem Votum den Grossen Rat im Kanton Graubünden für eine bessere Unterstützung von Betroffenen mit #LongCovid und #mecfs. Eine nationale Strategie mit Kompetenzzentren und Forschungsförderung. @kantonsspitalgr.bsky.social

Lorenz Hess hat eine Motion für eine Nationale Strategie zu #MECFS #LongCovid #PostVac eingereicht. Jetzt entscheidet der Bundesrat, ob er die Motion dem Parlament zur Annahme empfiehlt. BR Baume Schneider hat signalisiert, dass sie das Thema ernst nimmt. @sgme.bsky.social @swisslc-kids.bsky.social

Polybio is supporting several trials of potential #LongCovid treatments. Working with @putrinolab.bsky.social at the Sinai CoRE clinic, Polybio President Dr. Amy Proal is spearheading an investigation of repurposed HIV antivirals Truvada & Maraviroc for treatment of LC, targeting viral reservoirs.

Putrino Lab@putrinolab.bsky.social · 2y ago

Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/

Study about Spanish Flu in Zurich shows need to go beyond #mortality to quantify burden #morbidity, impact on hospitalisation, long-term sequelae & work absences. #longcovid #myalgicencephalomyelitis #mecfs encephalitis lethargica, SARS1, MERS. www.sciencedirect.com/science/arti...

Retrospective modelling of the disease and mortality burden of the 1918–1920 influenza pandemic in Zurich, Switzerland

Our study aims to enhance future pandemic preparedness by integrating lessons from historical pandemics, focusing on the multidimensional analysis of …

sciencedirect.com

#LongCovid risk associated w/ multiple SARS-COV-2 infections, severe #COVID, and being unvaccinated at 1st infection after adjusting for relevant demographic, lifestyle, clinical variables. Can we please focus on those now!? (Not BMI, anxiety, personality) www.sciencedirect.com/science/arti...

SARS-COV-2 re-infection and incidence of post-acute sequelae of COVID-19 (PASC) among essential workers in New York: a retrospective cohort study

After surviving Coronavirus Disease 2019 (COVID-19), some people develop symptoms known as post-acute sequelae of COVID-19 (PASC). PASC is an emerging…

sciencedirect.com

Article in German about the psychologisation of long covid and myalgic encephalomyelitis. We need research, education and adequate care. Thanks to all who contributed! @sgme.bsky.social www.republik.ch/2025/01/08/l...

Long Covid in seiner schlimmsten Form

Es gibt endlich ein Umdenken im Umgang mit dem Chronischen Fatigue-Syndrom.

republik.ch

We wish all our followers a happy new year! We have achieved a lot over the past year. Highlights were the 24h reading at Theater Neumarkt and a Round Table with our partner @sgme.bsky.social and all major stakeholders. We are looking forward to continuing our work this year. #StrongerTogether