Get out there and vote, Michigan! 🗳️

#PureMichigan

It’s a great day in the Great Lakes (and inland lakes) when the neighborhood dock and lifts go in! 🚤 🎉

The #BenRector seat. IYKYK.

On my way to the ONE Conference…and do you ever look at something so beautiful you just can’t believe you are so lucky to witness it? Today that was the Rockies from 30k feet.

My kids are alright. Older one on his 8th grade DC trip commenting about how important protest rights are. Little 10 year old picked woman’s suffrage for a nonfiction topic and asked for matching suffragette sashes for her co-presenters.

a woman with a sash that says votes for women on it

ALT: a woman with a sash that says votes for women on it

media.tenor.com

Hand to heart.

@aapneonatal.bsky.social @ameracadpeds.bsky.social

Hope for HIE@hopeforhie.org · 8mo ago

The much-anticipated @AmerAcadPeds COFN guidelines for #TherapeuticHypothermia published yesterday. Here is #HopeforHIE's position statement: Tinyurl.com/AAPcoolingstatement

Not sure about anyone else, but at @hopeforhie.org we don't do (and I quote) "wink wink, nudge nudge" partnerships in therapeutic advancement. If it doesn't work for, or include, our families, we don't endorse it. Full stop. Not enough coffee for that this morning.

SELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag! www.cafepress.com/profile/Hope... @hopeforhie.org

I was asked if I wanted to attend mouse surgery next week. I think this may take my non-scientist HIE street cred over the top. 🐁🧠 #NeoSky #NeuroSky #NICU #HopeforHIE #HIE #BasicScience #PatientAdvocacy

the word level is on a black background with a light coming out of it

ALT: the word level is on a black background with a light coming out of it

media.tenor.com

A new study shows that COVID19 during pregnancy was associated with a significant increase in the odds of neurodevelopmental conditions in offspring. This supports literature suggesting that infections during pregnancy can increase the odds of ASD in offspring. It also supports vaccination.

First ever @hopeforhie.org leadership summit ✅

HIE registries are so incredibly important for figuring out the best diagnostic and treatment modalities for these kids. @hopeforhie.org @betsypilon.bsky.social

With some of my favorite 🧠 peeps. #CNSAM

We have a lot of swifties in our community, so to celebrate the latest album, we've curated a 🎵Life of a HIE Parent Playlist (Taylor’s Version 😉). Listen over on our YouTube channel: www.youtube.com/playlist?lis... #NeoSky #NeuroSky #NICU #HopeforHIE #HIE #PICU #PatientAdvocacy

Soaking up every moment of bonus summer. The water is holding at 74/75.

Citing concerns about DEI, the Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advocate asked. “How can you do this to children?” By @jodiscohen.bsky.social @jsmithrichards.bsky.social

Programs for Students With Hearing and Vision Loss Harmed by Trump’s Anti-Diversity Push

Citing concerns about DEI, the U.S. Department of Education has halted funding for programs that support students with combined hearing and vision loss in eight states. “How low can you go?” one advoc...

propublica.org

"I'm sick of living like this" is always met with flagrant responses of "THEN MOVE" instead of "let's change this together". Like, if you aren't sick of living like this, how morally broken are you???

Excited to announce our formalized partnership as Neuren advances its NNZ-2591 for neonatal HIE. Read more: www.neurenpharma.com/pdf/cbb30d08... #HopeforHIE #Neonatology #ChildNeurology #NeoSky #NeuroSky

Am I up at 4 am because there’s a four legged critter (likely a mouse) in our cabin? Yes. 😆 🐁

Running government science agencies on vibes rather than evidence kills people.

When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.

10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience. Read it below: go.usa.gov/3fp3M

Abandoned truck and trailer at our neighborhood boat ramp. 😆

I don't know about you...but I'm disturbed by the amount of hell NOT being raised by leadership about masked individuals jumping out of unmarked vans, refusing to identify themselves...and just shoving people into a Goddamn vehicle and whisking them away.

Discovery of the VapoRub inventor whilst in Greensboro, NC.

Hope in AVL! ☀️🩵