ROS1ders UK is the latest charity to join Cancer52.  ROS1ders UK support people affected by ROS1-positive cancer. They bring patients together, share practical information, raise awareness, and speak up for better testing, treatment access, and research. See: ros1ders-cancer.uk

💬 Share your views and help to strengthen the voices of people affected by rare and less common cancers, including leukaemia. Fill in @cancer52org.bsky.social's patient survey and help to shape future policy work to improve diagnosis and access to treatments: www.surveymonkey.com/r/c52patient...

Real change starts with real experiences. Have you been affected by a rare and less common cancer (all cancers except breast, bowel, lung, or prostate) either as a patient or a carer? Please take our anonymous online survey to share your experience: bit.ly/43pRy33

We are pleased to welcome Cancer52’s newest member, The Joshua Tree. The charity provides bespoke emotional health and wellbeing support to families affected by childhood cancer across the UK. Learn more: thejoshuatree.org.uk

Cancer52 has a new member! Cahonas Scotland supports men with testicular cancer and their families, from diagnosis through treatment and beyond. Through education programmes, awareness campaigns, and peer support. Read more: www.cahonasscotland.org

Great to meet with Minister @sharonhodgsonmp.bsky.social alongside fellow cancer charities yesterday. Topics discussed included implementation of the National Cancer Plan & Rare Cancers Act, importance of reducing late diagnosis, and the distinct challenges faced in rare & less common cancers.

Welcome to Cancer52's newest member; Lynch Syndrome UK, a national, patient-led charity committed to improving awareness, advancing equitable access to genetic testing, and supporting individuals and families affected by hereditary cancer risk. Learn more: www.lynch-syndrome-uk.org

EGFR Positive UK has joined Cancer52! EGFR Positive UK provide trusted information, peer support and advocacy for EGFR positive lung cancer. Raise awareness of biomarker testing and targeted treatments while promoting equitable access to personalised care. Read more: www.egfrpositive.org.uk

Thank you to our excellent speakers and panellists for sharing valuable insights at the #BigCancer52Conversation, aligned with the commitments in the new Cancer Plan. It was fantastic to come together with a shared goal - improving outcomes for everyone affected by rare and less common cancers

Today we’re hosting the #BigCancer52Conversation in Manchester focusing on how we can work together to support implementation of the National Cancer Plan, in relation to rare and less common cancers.

Our newest member, Leiomyosarcoma Research UK’s mission is to support research, provide education, and foster a strong community for leiomyosarcoma patients and their families across the UK. Learn more: lmsruk.org

Cancer52's newest member, The Bardo Foundation is an international childhood cancer charity founded in memory of Bernardo “Bardo” Eggesbø They fund research, support patients and families, and lead Osteosarcoma Now, accelerating progress through collaboration to improve outcomes for young people.

Scott Arthur MP's Private Members Bill - supported by many of our member charities, has officially become law! The Rare Cancers Act 2026 will prioritise long overlooked aspects of research, and has the potential to transform outcomes for those affected by rare and less common cancers.

Cancer52 sends our best wishes to Ashley Dalton MP as she steps back from her ministerial duties for health reasons. Our thanks for her brilliant work, alongside her colleagues in the DHSC, in developing the National Cancer Plan for England recently.

Ashley Dalton MP@ashleydaltonmp.bsky.social · 6mo ago

I have taken the decision to step down from my ministerial responsibilities to allow me to focus on my job representing you, the people of West Lancashire, while I continue to receive oral chemotherapy treatment. My letter to the PM below 👇

As the voice for rare and less common cancers in the UK, we join the call on Rare Disease Day 2026 for equity in social opportunities, healthcare, and access to diagnosis and therapies.

Association of the British Pharmaceutical Industry @abpi.bsky.social · 6mo ago

This year’s @geneticallianceuk.bsky.social #RareDiseaseDay focuses on equity and why it matters more than ever. Chris Walden, CEO of @cancer52org.bsky.social, reflects on what equity means in practice. Read the full Q&A on the ABPI rare disease hub: 👉https://www.abpi.org.uk/rare-diseases/

MOVE Against Cancer has joined Cancer52! 👏 They deliver evidence-based support through 5k Your Way community groups, tailored online programmes and accessible resources, improving wellbeing and supporting health outcomes during and after treatment. Find out more ➡️ bit.ly/4bMLl6U

A breakthrough moment; a clear focus with 13 specific commitments on rare and less common cancers in the new National Cancer Plan for England. This plan has the potential to address longstanding issues for these cancers and we look forward to supporting its implementation.

World Cancer Day is a reminder to come together to take action against cancer. In the UK, 47% of cancer diagnoses are of rare and less common cancers, yet they account for 55% of cancer deaths. We must work collaboratively to overcome this difference. #WorldCancerDay #UnitedByUnique

We were proud to submit Cancer52's Annual Review to the Charity Commission - outlining what we’d achieved, alongside our members, in the financial year 2024-2025. Read Annual Review: bit.ly/3NBY2HM

This week is Less Survivable Cancers Awareness Week. Five out of the six cancers – brain, liver, oesophageal, pancreatic and stomach – are rare and less common. Like many rare and less common cancers, the less survivable cancers typically have less investment in research. #CloseTheResearchGap

Less Survivable Cancers Taskforce@lesssurvivable.bsky.social · 7mo ago

The stats are clear. We're calling for change. It's time to close #CloseTheResearchGap. lesssurvivablecancers.org.uk/awarenessweek/

We have a new member! Lymphoma Out Loud educates and raises awareness of lymphoma. A young charity with a rebel spirit, they're on a mission through educating, empowering & amplifying patient voices through bold campaigns, education and lived experience. See more at: lymphomaoutloud.org

So pleased to attend #BackTheBreakthroughs today. A powerful panel on the future of cancer research hosted by @crukpolicy.bsky.social in Westminster, sharing fascinating insights on overcoming barriers in #CancerResearch and using #HealthcareInnovation to accelerate life-saving breakthroughs. 👏🏻

This week, we were proud to join patients, policymakers and the @cancer52org.bsky.social community in Westminster 💼 The event provided an opportunity to highlight cancer charities in the UK - enabling us to learn from each other and strengthen our efforts to improve outcomes 🧡 #UntilTheresACure

Inspiring day in Westminster bringing together patients, policymakers and Cancer52 members to present case studies, enabling us to share learnings and drive cross-sector collaboration to improve outcomes in rare & less common cancers. Our thanks to KKI who sponsored this event

Our previous CEO, Jane Lyons recently enjoyed a fabulous day out to Windsor Castle, with her family, to collect her MBE. A much deserved recognition of all her hard work and many achievements. Congratulations Jane!

Busy time at #Lab25, connecting with policy makers and member charities. With the National Cancer Plan in the final stages of development, it’s a vital time to collaborate to improve outcomes for people affected by rare & less common cancers.

Today, One Cancer Voice sets out 6 key asks for the National Cancer Plan. As a @cancer52org.bsky.social member, ALK+ UK stands with this call. The National Cancer Plan must deliver for everyone affected by cancer - including those with rare & less common cancers like ALK+ #lungcancer. #LCSM

2.92 million new cancer cases will be rare & less common. We welcome the six tests nominated by #OneCancerVoice. Focussed and targeted action in the new National Cancer Plan is needed to combat the projected increase to and provide a much-needed boost to survival rates.