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Unremarkable Me

@unremarkableme.bsky.social

Health and Wellness EDS & hEDS Awareness Chiari Malformation Awareness Chronic Illness Awareness Mass Cell Activation Syndrome POTS I have been fighting EDS, Chiari Malformation, Mass Cell Activation Syndrome, Scoliosis & POTS for 15 years.

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Unremarkable Me@unremarkableme.bsky.social · last mo.

When your body has sounded the alarm before, “just relax” is not a reset button. A personal look at chronic illness, dismissal, perimenopause and living in fight-or-flight. Read at #UnremarkableMe #ChronicIllness #Perimenopause #HealthAnxiety www.unremarkableme.com/post/living-...

Living In Fight Or Flight.

When chronic illness, medical dismissal and perimenopause turn your nervous system into a one-woman surveillance departmentPublished 27 July 2026By Antonia @Unremarkable MeThere is a very specific mom...

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Unremarkable Me@unremarkableme.bsky.social · last mo.

Chronic illness changes us. We adapt, compensate and keep moving. So why does healthcare still treat us like a frozen screenshot? A new post on the hidden cost of coping. Read at #UnremarkableMe. #ChronicIllness #PatientVoices #NHS www.unremarkableme.com/post/evolved...

Evolved Enough to Know Better, But Not Enough to Do Better

Chronic illness changes. Patients adapt. Why does healthcare keep treating us like a frozen screenshot?Published June 2026By Antonia @Unremarkable MeLet us begin with a confession.I find it baffling h...

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Unremarkable Me@unremarkableme.bsky.social · 4mo ago

Not the Patient, Not Okay: when the person holding it together starts quietly falling apart. A raw look at carer shock, crisis fatigue and medical PTSD. #UnremarkableMe #CarerLife #EDS #chiarimalformation #ChronicIllness #MedicalPTSD #NHS www.unremarkableme.com/post/not-the...

Not the Patient, Not Okay

Published 9 May 2026By Antonia @Unremarkable MeThere is a particular kind of dread that arrives when someone you love says, “It’s not that bad.”Especially when that someone is Sam.Sam could, hypotheti...

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Unremarkable Me@unremarkableme.bsky.social · 4mo ago

The Crisis Diaries: Five Months of Not Quite Falling Apart When life became hospitals, panic, survival, and somehow still needing to do the washing up. #UnremarkableMe #ChronicIllness #EDSintheuk #MedicalPTSD #NHS #EDSAwareness www.unremarkableme.com/post/the-cri...

The Crisis Diaries: Five Months of Not QuiteFalling Apart

Published 8 May 2026By Antonia @Unremarkable MeThere are many respectable ways to return to writing after a long and deeply inconvenient absence.You might make a plan.You might light a candle.You migh...

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Unremarkable Me@unremarkableme.bsky.social · 8mo ago

Still waiting on the new hEDS and HSD criteria? You’re not imagining the delay.Here’s what’s happening, why it matters, and what to hold onto meanwhile. #EDS #hEDS #HSD #ChronicIllness #InvisibleIllness #PatientVoices #UnremarkableMe www.unremarkableme.com/post/waiting...

Waiting for the 2026 Ehlers–Danlos Society Criteria”

By Antonia @Unremarkable MePublished January 2026How people with hypermobility and connective-tissue mysteries sit through science’s intermission, and why the next act mattersWhen you’ve spent years t...

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Unremarkable Me@unremarkableme.bsky.social · 8mo ago

Talking to children about chronic illness doesn’t have to be heavy or frightening. Calm truth, gentle language, and a reminder that love doesn’t disappear when bodies get complicated. #ChronicIllness #KidsAndHealth #UnremarkableMe #hEDS #EDS #ChiariMalformation www.unremarkableme.com/post/explain...

Explaining Chronic Illness to Kids

Or: How Not to Accidentally Terrify a Nine-Year-Old January 2026 By Antonia @Unremarkable MeThere comes a moment, usually quiet and slightly sideways, when you realise a child has noticed.Not in the d...

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Unremarkable Me@unremarkableme.bsky.social · 8mo ago

Chronic illness isn’t a journey. It’s a roller coaster with no seatbelt, no exit, and a very tired goblin holding on anyway. #ChronicIllness #InvisibleIllness #SpoonieLife #UnremarkableMe #StillHere #ChronicPain #EDS #DisabilityVoices #hEDS www.unremarkableme.com/post/the-emo...

The Emotional Roller Coaster of Chronic Illness

By Antonia @ Unremarkable Me | Published January 2026Living with chronic illness is not a gentle cruise down a lazy river with a straw hat and a soundtrack. It is a non-consensual roller coaster built...

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Unremarkable Me@unremarkableme.bsky.social · 8mo ago

Doctors and patients are not opponents. We are allies inside a system under strain. Saving the NHS means standing together, telling the truth, and backing each other when it matters most. #SaveTheNHS #EveryDoctor#chronic-illness #StrongerTogether#UnremarkableMe www.unremarkableme.com/post/saving-...

Saving the NHS Is Not a Slogan. It’s a Relationship

Why doctors and patients working together might be the most radical idea we have leftBy Antonia @Unremarkable Me Published: 6 January 2026Scroll Instagram for long enough and you will see it.Save the ...

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Unremarkable Me@unremarkableme.bsky.social · 8mo ago

Chronic illness doesn’t come with neat story arcs. Sometimes there’s no crisis. No recovery. Just the long middle where staying alive takes everything you have. #EDS #NHS #ChiariMalformation #ChronicIllness #InvisibleDisability #UnremarkableMe www.unremarkableme.com/post/i-didn-...

I Didn’t Disappear. I Was Busy Surviving

23 December 2025Author: Antonia @UnremarkableMeFor the last six months, Unremarkable Me went quiet.Not in a dramatic, flounce off stage kind of way. There was no announcement, no carefully worded post...

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A Chronic Voice@achronicvoice.com · 9mo ago

"I stopped trying to fit in. I stopped apologizing for being ill. & equally important, I learned to #AskForHelp. I learned there are many ways to be seen & heard in the world. I learned the most important lesson of all: #trusting my own goodness.": buff.ly/lRtIwku #spoonie #ChronicIllness #SelfLove

The Stories We Tell Ourselves: Prisons or Paths to Freedom

The stories we tell ourselves about chronic illness can make a difference in our lives. Here's how Rose reclaimed her freedom through narrative.

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Unremarkable Me@unremarkableme.bsky.social · last yr.

Beauty tips, chaos, and chronic illness—because glam doesn’t stop just ’cause your joints do. #ChronicIllness #BeautyWithEDS #EDS #hEDS #DisabilityStyle #SpoonieBeauty #UnremarkableMe www.unremarkableme.com/post/beauty-...

Beauty Survival Tips from a Chronically Ill Dreadful Hippy

By Antonia@UnremarkableMe, your local dreadful hippy and professional fashle enthusiastThere’s a particular kind of magic in learning to care for yourself when your body has stopped playing fair. It’s...

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Unremarkable Me@unremarkableme.bsky.social · last yr.

Wobbly spine? Brain too low? Same. 💀 Here’s my journey with Ehlers-Danlos Syndrome and Chiari Malformation—because one weird diagnosis clearly wasn’t enough. #EDS #ChiariMalformation #ChronicIllness #UnremarkableMe #hEDS #Chiari #Chronicillnessawareness www.unremarkableme.com/post/my-jour...

My Journey: Ehlers-Danlos Syndrome & Chiari Malformation

The Brain That Moved House (and Other Chronic Illness Shenanigans)By Antonia at Unremarkable Me I wouldn’t call myself an expert—but I’ve read, researched, interrogated specialists, double-checked stu...

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Unremarkable Me@unremarkableme.bsky.social · last yr.

Denial: The worst timeshare you’ll ever inherit. Comes with guilt, excuses, and a complimentary minibar of lies. No beach. Just burnout. #ChronicIllness #DisabilityHumour #UnremarkableMe #SpoonieLife #EDS #MCAS #POTS #InvisibleIllness #Chiari #hEDS www.unremarkableme.com/post/denial-...

Denial: The Worst Timeshare You’ll Ever Inherit

By Antonia @UnremarkableMePublished: June 2025Let’s Talk About DenialNot the cool, off-grid kind of denial where you bin your WiFi, raise goats, and learn the banjo. No—we’re talking about the chronic...

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