Rare Disease Day is Sat.2/28th! We're Showing our Stripes to raise awareness for rare #autoinflammatory and immunedysregulatory diseases w/ advocacy efforts this week. Share, download or print this show your support, &share your story to raise awareness. #RareDiseaseDay
Autoinflammatory Alliance
@autoinflammatory.bsky.social
The Autoinflammatory Alliance is a 501c3 nonprofit org helping to improve awareness, care and treatment for rare autoinflammatory and immunedysregulatory diseases. We are here to help patients, caregivers, and support research.
Come to the FREE April 16-17, 2026 TARN-NIH 3rd #Autoinflammatory Symposium, and get your abstracts submitted by March 2nd if you want to share a poster! Register here: tarnnetwork.org/events/celebra… #RheumX #Immunology #rheumatology #SAIDresearch #hope4SAID
Hey #IEI and #autoinflammation enthusiasts! "Celebrating Autoinflammation: On the Shoulders of a Giant" Registration is free tarnnetwork.org/events/celeb... But pls consider supporting: givebutter.com/c/autoinflam... - via @autoinflammatory.bsky.social
📣 Calling all rare disease community members. #RareDC2025 Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources. Take action: everylifefoundation.quorum.us/campaign/111...
This is a great paper showcasing eye involvement in #autoinflammatory diseases from earlier this year. This week, we heard from a patient that their #Rheum was not aware of SAID #ophthalmology findings, so I am sharing this here to spread some awareness. pmc.ncbi.nlm.nih.gov/articles/PMC...
Update on ocular manifestations of the main monogenic and polygenic autoinflammatory diseases
Autoinflammatory diseases include disorders with a genetic cause and also complex syndromes associated to polygenic or multifactorial factors. Eye involvement is present in many of them, with differen...
pmc.ncbi.nlm.nih.gov
Hello! The Autoinflammatory Alliance has joined Blue sky. #autoinglammatory #immunedysregulation #cytokines #inflammasomes #rheumatology #immunology