In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD

In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD

In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant. Read more about the work from Co-Director Corey McMillan, PhD in the article below! www.pennmedicine.org/news/penn-an...

Penn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant

An effort is underway to identify biological changes that signal whether people carrying a genetic variant will develop ALS or frontotemporal dementia.

pennmedicine.org

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

Penn FTDC's Dahlia Kamel, MS collaborated on a paper to explore Clinical Research Coordinator's influence on the research participant experience, including training adequacy, job satisfaction, retention, and much more. Read the paper below! www.frontiersin.org/journals/neu...

Frontiers | Supporting frontline staff in frontotemporal degeneration research

IntroductionClinical Research Coordinators (CRCs) serve as the frontline staff for research participants in studies on frontotemporal degeneration (FTD), dir...

frontiersin.org

In bvFTD, we found that the spatial relationship between neurodegeneration and a neurotransmitter receptor was associated with disease severity and cognition. Read the paper from Penn FTDC's Melanie Matyi, PhD below! direct.mit.edu/imag/article...

Spatial covariance of mGluR5 density and structural degeneration in behavioral variant frontotemporal degeneration

Abstract. Post-mortem human brain tissue and in vivo imaging studies of behavioral variant frontotemporal degeneration (bvFTD) suggest that metabotropic glutamate receptors (mGluR) may be vulnerable t...

direct.mit.edu

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Caregivers are invited to join us for Caregivers Day at ISFTD 2026 on Friday, October 9 in Philadelphia. This one-day conference features expert-led sessions on FTD care, the latest research advances, symptom management, advocacy, and more. Register now at the link in our bio!

Penn FTD Center Staff Highlight 🌟 Mary Kate Merenich, B.S. is a Clinical Research Coordinator at the Penn FTD Center. “As a CRC, I really enjoy the breadth of responsibility I have across the entire research process.” 📍Read details on Mary Kate in our blog! Link in bio!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Neuropsychologist & Assistant Professor at the Penn FTD Center Emma Rhodes was featured in an article with AlzForum to highlight her AAIC 2026 poster. Check out the article below! www.alzforum.org/news/confere...

Co-Director David Irwin, MD and Genetic Counselor Laynie Dratch, ScM, CGC examined how collaborative neurologist-genetic counselor partnerships enhance comprehensive patient evaluation and care in a webinar with @theaftd.bsky.social View the video below! www.theaftd.org/webinars/aft...

AFTD Webinar: CME: Neurologists and Genetic Counselors Partnering to Enhance Patient Care | AFTD

https://youtu.be/RVRk6zUWA0g

theaftd.org

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Our Assistant Director Dahlia Kamel and was invited to give the keynote speech for the 2026 Clinical Research Expertise and Advancement Through Excellence Awards, here at the University of Pennsylvania Perelman School of Medicine. Read her keynote now at the link in our bio!

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. 📍All of our social media accounts can be found at the link in our bio!

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn FTDC Staff Highlight 🌟 Riya is a CRC at the Penn FTD Center. “I will always value the lived experiences of patients and their care team as I contribute to first-in-disease clinical trials and research that improve care and advance treatments for FTD.” 📍Read now in the blog linked in bio!

We understand that care management can be tough. This August, we are sharing tips to beat the heat! 📍Check out our website for more information on Support & Resources

Congrats to former Penn FTD Center postdoctoral research fellow Ting Shen, PhD on the AAIC ISTAART 2025 Publication of the Year Award! To read the article, click the link below: pubmed.ncbi.nlm.nih.gov/39920674/

Disparate and shared transcriptomic signatures associated with cortical atrophy in genetic behavioral variant frontotemporal degeneration - PubMed

Overall, this integrative transcriptomic approach identified several new shared and disparate genes associated with regional vulnerability with increased biological interpretation including overlap wi...

pubmed.ncbi.nlm.nih.gov

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Dancing In The Face Of Death by Susan L. Koen, Ph.D. is out now! Through the lens of caregiving, this story offers empathic insights into the hardships of dealing with anticipatory grief, personal agency, and much more. Susan provided an exclusive highlight for our center. Read at the link in bio!

Dr. Allison Snyder presents a poster on frequent and worsening sleep problems for those with FTD as compared to those with Alzheimer's disease. Check out Dr. Snyder's poster today at #AAIC2026 #PennatAAIC26

Today at #AAIC26 researchers and clinicians share poster presentations on genetic variants related to C9orf72 and a dual proteomic platform approach to biomarker discovery. If you are onsite, be sure to check out the work from the Penn FTDC! #PennatAAIC26

Day 2 of #AAIC26 is here! Postdoctoral fellows and graduate students from the Penn FTD Center present their research and findings. Be sure to check out their posters today! #pennataaic26 @pennmemorycenter.bsky.social

The Penn FTD Center staff and researchers are gearing up for #AAIC26 in London! Today, several of our researchers and staffers will be providing poster presentations. For those in attendance, be sure to check out these posters! #PennatAAIC26

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

Penn FTD Center Staff Highlight 🌟 Carmen Gonzalez-Recober is a Senior Clinical Research Coordinator at the Penn FTD Center. 📍Read more details on Carmen in our blog post! Link in bio!