Penn FTD Center

@pennftdc.bsky.social

The University of Pennsylvania Frontotemporal Degeneration Center linktr.ee/pennftdcenter

Penn FTDC Staff Highlight 🌟 Riya is a CRC at the Penn FTD Center. “I will always value the lived experiences of patients and their care team as I contribute to first-in-disease clinical trials and research that improve care and advance treatments for FTD.” 📍Read now in the blog linked in bio!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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Dancing In The Face Of Death by Susan L. Koen, Ph.D. is out now! Through the lens of caregiving, this story offers empathic insights into the hardships of dealing with anticipatory grief, personal agency, and much more. Susan provided an exclusive highlight for our center. Read at the link in bio!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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Penn FTD Center Staff Highlight 🌟 Carmen Gonzalez-Recober is a Senior Clinical Research Coordinator at the Penn FTD Center. 📍Read more details on Carmen in our blog post! Link in bio!

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The Penn FTD Center is delighted to be working with ISFTD to host Caregivers Day, a one-day conference for family members and professional caregivers to learn more about advances in research and approaches to care. Use the link in our bio to get more information and register today!

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In our latest Research Roundup, Research Assistant Professor Katheryn Cousins, PhD’s paper seeks to understand the accuracy of biomarkers in diverse datasets. Read now at the link in our bio or on our website.

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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The objective of observational research is to observe participants naturally, without any interventions or treatments. Penn FTD Center Senior Clinical Research Coordinator Ashlyn O'Halloran writes about observational research in our blog post! Read now at the link in our bio or on our website!

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🎉 Congrats to the Penn FTD Center's Genetic Counselor Laynie Dratch on her recent award as an Outstanding Supervisor with the Genetic Counselor Educators Association (GCEA)! Thank you for all your hard work, Laynie!

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The Penn FTD Center was happy to join the Penn & Philly 250 Community Day this past Saturday at the Penn Museum! 📍 Check out our Support & Resources tab for helpful tools and links. 📰 Read our monthly blog in the Latest News tab. 📱 Follow up on all social platforms to stay up to date.

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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In our June blog, Penn FTD Center Senior Clinical Research Coordinator Ashlyn O’Halloran interviews Mary Lou Falcone to discuss caregiving, perseverance, and love. Our latest blog post can be found at our website or by clicking the link in our bio!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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Penn FTD Center Staff Highlight 🌟 Gillian Bradley, MSN, CRNP is a nurse practitioner and has been in this current role since the beginning of 2025, but first joined the FTD Center in 2018 as a clinical research coordinator. 📍Read more details on Gillian at the link in bio!

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We understand that care management can be tough. This June, we are sharing tips for taking vacations. 📍Check out our website for more information on Support & Resources 💌 Check out the AFTD for Awareness Cards at the link in our bio to print and take on any trips!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. 📍All of our social media accounts can be found at the link in our bio!

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The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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We understand that care management can be tough. In May, we are providing details on available support groups & resources. 📍Check out our website for more information on Support & Resources

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