Register your interest for our March 2027 Community Day 💙 Join us in London on Friday 12 March for a free day to connect with others affected by sarcoma, hear from specialists and take part in wellbeing activities. Find out more: sarcoma.org.uk/community-da
A huge thank you to Kathleen and her family, who took part in the Edinburgh Kiltwalk in memory of her mum. 💙 Fourteen family members walked 4km–21km, raising over £7,000 for Sarcoma UK. Inspired to take on a challenge? Visit sarcoma.org.uk/get-involved
🧬 Today @amrc-uk.bsky.social has published a new genomics spotlight report. It highlights how AMRC charities are advancing genomics and supporting its use to benefit patients - from research and infrastructure to policy, diagnosis and treatment. 🔗 bit.ly/4yPMvHb
NICE has provisionally recommended nirogacestat for progressing desmoid tumours. If confirmed, it will become the first specifically approved treatment available to eligible NHS patients in England. Sarcoma UK and Desmoid Aid UK submitted evidence together. Read more: sarcoma.org.uk/news
A huge thank you to Chris, who completed an Ironman 70.3 in support of Sarcoma UK, raising money and awareness in memory of his wife, Laura, who died from sarcoma in April 2023. After a slipped disc earlier this year, reaching the start line made the achievement even more special.
Great research needs people, collaboration and opportunity. Our new strategy will fund innovative sarcoma research, strengthen networks and partnerships, support future research leaders, and ensure patients and families help shape our work. sarcoma.org.uk/research-str...
The Support Line is closed tomorrow while the team attend a business planning day. If you need urgent support, contact your specialist team; Macmillan Cancer Support on 0808 808 0000 or by chat 8 am-8 pm, 7 days a week, or Samaritans on 116123 at any time. We'll be back on Friday from 10am.
VAT on compassionate access medicines has been raised again in Parliament. Danny Beales MP highlighted Sarcoma UK cases where people with sarcoma have been unable to access medicines previously provided free of charge. The Government has paused VAT while it works on a permanent solution.
There’s still time to vote in the Sarcoma UK 2026 Shining Star Awards. Who will you vote for? ⭐️Gaz Emmerson Fundraiser of the Year ⭐️Group Fund Champion(s) of the Year ⭐️Young Sarcoma Voice of the Year You decide. Vote for your star: sarcoma.org.uk/VOTE
Our new Research Strategy, Living Longer, Living Better, sets our priorities for the next five years: 🔍Earlier, faster diagnosis 💊Better, kinder treatments 💙Improved quality of life, survivorship and late effects Shaped with people affected by sarcoma. sarcoma.org.uk/research-str...
Want to stay up to date with Sarcoma UK? Sign up for our E-news to receive occasional updates on the things that matter, from new research and support resources to campaigns, events and stories from people affected by sarcoma. sarcoma.org.uk/e-news
Our Support Line is here for you. 💙 Whether you’ve been diagnosed with sarcoma, are supporting someone, or have questions, our team is here to help. ☎️ 0808 801 0401 📧 supportline@sarcoma.org.uk 💬 07534 177861 💻 Or leave your details via our new website widget: sarcoma.org.uk/supportline
Register your interest for our March 2027 Community Day 💙 Join us in London on Friday 12 March for a free day to connect with others affected by sarcoma, hear from specialists and take part in wellbeing activities. Find out more: sarcoma.org.uk/community-da
Join the Glitter Ball Committee ✨ Meet a supportive community, share your ideas and help shape one of Sarcoma UK’s biggest events. We’re looking for three people. The committee meets online for around one hour a month. Contact Kerry by 15 September: kerry.reeves-kneip@sarcoma.org.uk
The Sarcoma UK online bereavement support group is open to anyone over 18 who has lost someone to sarcoma and whose loved one received care in the UK. Meetings are held on Zoom, last 90 minutes, and focus on shared experiences and mutual support. Visit sarcoma.org.uk/bereavement-...
We’ve launched Living Longer, Living Better: Sarcoma UK’s Research Strategy 2026–31. Our focus: earlier diagnosis, better and kinder treatments, improved quality of life, and a stronger sarcoma research community. sarcoma.org.uk/research-str...
Writing a will doesn’t have to be a big job. This Autumn, we’ve teamed up with Octopus Legacy to make it simple and free, with costs covered up to £150. Start your will online, by phone, at home or in-branch: sarcoma.org.uk/OctopusLegac... You can also choose to leave a gift to Sarcoma UK.
🐝 Manchester, we’re coming back! Rare But Real returns to Heaton Park on Sunday 27 September. Bring your family, friends or four-legged companion and choose the route that suits you, from a relaxed, accessible walk to our 10km loop. rarebutreal.org.uk/
You don’t have to be an event planner to join our Glitter Ball Committee. 💙✨ We’re looking for three people with ideas, enthusiasm and a fresh perspective to help make the event a success. Just one online meeting a month. Interested? Apply by 15 September: kerry.reeves-kneip@sarcoma.org.uk
Congratulations to Catherine, who walked from Wigan to the Clatterbridge Cancer Centre in Liverpool, raising nearly £3,000 for Sarcoma UK. 💙 It’s a journey she and her husband, Adam, have made many times during his sarcoma treatment, making this challenge especially meaningful.
September is Gynaecological Cancer Awareness Month. Our Understanding gynaecological sarcoma booklet includes information on diagnosis and treatment, as well as Anna’s experience of gynaecological sarcoma. Download your free copy: shop.sarcoma.org.uk/product/unde...
🎵 “The puzzle of who I am is still not complete.” The Puzzle by Abby Daniels is out now. Written after her osteosarcoma diagnosis, it reflects how Abby’s life changed. Abby died in July 2026, aged 26, and wanted the song released in aid of Sarcoma UK. 💙 Listen: youtube.com/watch
The Puzzle
Provided to YouTube by DistroKid The Puzzle · Abby Daniels · Abby Daniels · David Wilson · Jamie Aspden The Puzzle ℗ 13491855 Records DK Released on: 2026-08-18 Auto-generated by YouTube.
youtube.com
Clare transformed an old Art Nouveau chair from her shed for Michael Pinsky: The Final Bid at MAC Birmingham. Restored and reupholstered by hand in orange Harris Tweed, every bid on The William Frances Art Nouveau Chair – FB47 will raise money for Sarcoma UK. 💙 macbirmingham.co.uk/
September is Childhood Cancer Awareness Month 💙 If your child has been diagnosed with sarcoma, our parent hub offers clear information on sarcoma types and treatments, plus guidance on supporting your child. sarcoma.org.uk/my-child-has...
A huge congratulations to Scott and Max for completing their Ironman challenges for Sarcoma UK! 🏊♂️🚴♂️🏃♂️ Inspired by Felicity, who was recently diagnosed with skull base chondrosarcoma, they’ve already raised over £4,000 to support people affected by sarcoma.
Register your interest for our March 2027 Community Day 💙 Join us in London on Friday 12 March for a free day to connect with others affected by sarcoma, hear from specialists and take part in wellbeing activities. Find out more: sarcoma.org.uk/community-da
Help make our next Glitter Ball one to remember ✨ We’re looking for three people to join the Sarcoma UK Glitter Ball Committee. No event-planning experience needed, just enthusiasm and ideas. Email kerry.reeves-kneip@sarcoma.org.uk by 15 September
The Royal Marsden is hosting a study day on paediatric, teenager and young adult solid tumour care on 13 Oct The event is designed for medical, nursing and allied healthcare professionals who have an interest in care of TYA patients' solid tumours. royalmarsden.nhs.uk/ptyasolidt
After Mark's sarcoma diagnosis, his friend Chris drove 150 miles to take him to hospital appointments. Now Mark is cancer-free, they’re cycling around 1,000 miles from Land’s End to John O’Groats in nine days for Sarcoma UK. 🚴♂️ Read more: sarcoma.org.uk/news
Join us at North Middlesex Golf Club on 21 September for a day of friendly competition, community and fundraising, all while helping support people affected by sarcoma. 🏌️ Enter a team 🤝 Become a sponsor 💙 Donate a raffle or auction prize sarcoma.org.uk/golf
Sarcoma UK Golf Day 2026
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sarcoma.org.uk