U-CARE Guest Professor @streweek.bsky.social has co-authored a new Delphi study and consensus statement in BMJ. 👉 The paper provides international recommendations on how ethnicity-related information should be collected and reported in clinical trials. Read more: www.bmj.com/content/394/...
U-CARE
@u-care.bsky.social
U-CARE is a research programme at Uppsala University aiming to increase mental health among patients and their significant others in relation to somatic disease. https://www.uu.se/en/centre/u-care
💡 How can the informativeness of clinical trials be improved? A new study co-authored by U-CARE’s Guest Professor @streweek.bsky.social provides guidance based on insights from 55 international stakeholders. Improving design, feasibility & reporting is key. ➡️
Recruitment has begun for the CHANGE-pilot study! 🌱 We’re testing EJDeR, a CBT-based self-help programme for parents of persons who have been treated for cancer during childhood. 👉 60 parents will take part in this important next step in our research. Read more: www.uu.se/en/centre/u-... #UCARE
Recruitment has begun for the CHANGE pilot study – Uppsala University Psychosocial Care Programme: U-CARE – Uppsala University
uu.se
Last week, Sophie Nadia Gaber led a U‑CARE BrainPub seminar on realist reviews 🔍 Exploring theory, the five‑step process, and when to use realist reviews, the session also featured interactive discussions on contexts, mechanisms & outcomes. Thank you everyone who attended the seminar, and Sophie ✨
Curious about how we can improve equity, diversity and inclusion in clinical research? Join us at U-CARE Venue 2026, Nov 16–17 in Uppsala! ‘Better Evidence for All – Increasing Equity, Diversity, and Inclusion in Clinical Research’ Register for free today 👉 doit.medfarm.uu.se/bin/kurt3/ku...
✨ New study: Automated & manual breast density assessments show good agreement in screening. Co-authored by @streweek.bsky.social highlights potential for more consistent screening, but more standardised and inclusive evaluations are needed. 🔗 journals.sagepub.com/doi/10.1177/...
🔍 PhD course: Public Contribution in Research Learn how to involve and engage the public in healthcare research. 📅 Nov - Dec 2026 👉 Apply by 2 September: media.medfarm.uu.se/kurser/cours...
Uppsala Trial Forge Centre (U-TFC) and Uppsala Clinical Research Center (UCR) are launching a new collaboration to strengthen patient and public involvement in clinical research and support more relevant, inclusive studies. 🤝 Learn more: www.uu.se/en/centre/u-... #ClinicalResearch #PPI
Uppsala Trial Forge Centre and Uppsala Clinical Research Center initiate collaboration – Uppsala University Psychosocial Care Programme: U-CARE – Uppsala University
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🌙 U-CARE researcher Sophie Nadia Gaber is featured in Äldre i centrum about the SOVA project, which adapts a UK sleep intervention for people with dementia and their carers to a Swedish context. Read more (in Swedish): aldreicentrum.se/nyheter/effe... #UCARE
Effektiv metod mot sömnstörning till Sverige – Äldre i centrum
En brittisk behandling mot sömnstörningar för personer med demens och deras anhörigvårdare, ska nu anpassas till svenska förhållanden. Forskningen pågår nu bland annat vid Uppsala universitet.
aldreicentrum.se
🧩 New U-CARE study explores e-mental health intervention preferences among informal caregivers of people with chronic kidney disease. Caregivers highlight need for tailored support, clear information, and involvement in design. Read more: humanfactors.jmir.org/2026/1/e80962
e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
Background: Informal caregivers of people living with chronic kidney disease commonly experience mental health difficulties. However, there is currently limited access to scalable psychological interv...
humanfactors.jmir.org
Earlier this week, we held the final session of the “Visualize your research in practice” workshop. Participants explored motion graphics in PowerPoint and brought their visuals to life. Big thanks to Kess Marks and all participants for an inspiring workshop! #sciencecommunication #UCARE
🎓 PhD course now open to apply: Feasibility studies in complex healthcare interventions Learn study design, sample size, mixed methods & apply it to your own PhD project. 📅 May–June 2026 👉 Apply by 2 April: www2.medfarm.uu.se/utbildning/f... #PhDcourse #UppsalaUniversity
🎓 Applications are now open for 16 fully funded PhD student positions in the EDICT doctoral network, focusing on equity, diversity and inclusion in clinical trials. 🌍 International training across Europe. 🌐 Learn more and apply: www.edictproject.eu 📅 Deadline: 30 March 2026 #PhdPosition #EDICT
EDICT - Advancing Equity, Diversity and Inclusion in Clinical Trials
EDICT is a Marie Skłodowska-Curie Doctoral Network training 16 PhD researchers to transform equity, diversity and inclusion in clinical trials across Europe.
edictproject.eu
🎓 U-CARE’s PhD student Rogers Kissiti has held his post-registration seminar. In his PhD project, he will develop and evaluate a peer support programme for women in Sweden with experience of forced migration and mental ill-health. Thank you Rogers for an engaging presentation and discussion 👏
🎨 Great start to the workshop Visualize your research in practice! Earlier this week, Andreas Dahlin from Visualize Your Science, led a session focused on vector graphics. Participants created research illustrations in Affinity Designer. Looking forward to the next session on video animations! 📽️
🎓 Last week, U-CARE researcher Sophie Gaber attended the course Realist Reviews and Realist Evaluation at @ox.ac.uk 🙌 The course focused on using realist methods to study complex health interventions and will support Sophie Gaber's ongoing research and future studies ✨
Yesterday, we celebrated our affiliated researcher Mattias Öhman, who recently has been appointed Docent in Economics at Uppsala University 🎉 Fika, semlor, and an inspiring presentation held by Mattias about his broad research. Big congratulations, Mattias! 🌟
New study co-authored by U-CARE’s Guest Professor @streweek.bsky.social presents the INCLUDE framework, supporting more inclusive clinical trials. The framework helps reduce barriers to participation and promote equitable healthcare. 👉 Read more: link.springer.com/article/10.1...
Making trials more inclusive of people experiencing socioeconomic disadvantage: developing the INCLUDE socioeconomic disadvantage framework - Trials
Background People experiencing socioeconomic disadvantage are persistently underrepresented in clinical trials, yet they experience a significantly greater burden of disease than those not experiencin...
link.springer.com
PhD students: Want to learn how to involve the public meaningfully in your research? Our course Public Contribution in Research runs Nov–Dec '26 and covers practical tools, challenges, and impact across the research lifecycle. Learn more and apply via the link 👇 www2.medfarm.uu.se/utbildning/f...
Docent Sophie Gaber is at #WFOT2026 in Bangkok, presenting research on: 🔹participation for older adults in nursing homes 🔹interdisciplinary care environments 🔹digital inequities among women experiencing homelessness Read more: www.uu.se/en/centre/u-... #UCARE #OccupationalTherapy #WFOT2026
Our new study shows how qualitative interviews can be analysed together with parents of children treated for cancer as public contributors. The collaborative approach added new perspectives and practical insights for future research. 👉 Read more: onlinelibrary.wiley.com/doi/10.1111/...
Public Contribution in Qualitative Research With Parents of Children Treated for Cancer: Description of and Reflections on a Collaborative Data Analysis Approach
Background Collaborative data analysis (CDA) in qualitative research is an approach for working with public contributors as co-researchers in analysing data. Different approaches have been outlined ...
onlinelibrary.wiley.com
Last Friday was Julia Müller’s final day as an intern at U-CARE. She contributed to the CHANGE-pilot by working on standard operating procedures and reviewing physical activity support for parents of children treated for cancer. Thank you for your valuable contributions Julia, best of luck ahead! 🌟
🔍 U-CARE researcher Frida Svedin has been interviewed by 'Äldre i centrum' about her PhD project. She discusses the INVOLVERA support programme for people living with dementia and depression, and the need for flexible psychological support.
Registration is open for U-CARE’s PhD course on developing and adapting complex healthcare interventions. Led by experts at U-CARE, the course offers practical tools grounded in the MRC Framework. The course is running Sept–Oct 2026. Register via the link below! 👇 www2.medfarm.uu.se/utbildning/f...
🧩 New study published: Childhood DCD and adulthood A 25-year follow-up study shows that adults with childhood developmental coordination disorder (DCD) report more motor difficulties than peers, with different patterns for women and men. #UCARE #DCD Full paper: www.tandfonline.com/doi/full/10....
🧩 New U-CARE study highlights challenges faced by adult daughters caring for a parent with dementia. Interviews show how caregiving roles change over time, affecting work, family life, relationships, and experiences of loss. Read the full article: www.tandfonline.com/doi/full/10.... #UCARE
🎉 Yesterday, U-CARE celebrated our associated researcher Helena Grönqvist, who recently was appointed Docent in Health Psychology. Helena shared her research journey and work on interdisciplinary collaboration. Congratulations, Helena, and thank you for an inspiring presentation!
🎉 U-CARE’s Docent Joanne Woodford has been promoted to Senior Lecturer in Healthcare Sciences! Her work in psychological interventions, patient and public contribution in research, and trial methodology inspires colleagues and strengthens U-CARE’s research. Congratulations, Jo! 🌟 #UCARE