U-CARE
@u-care.bsky.social
U-CARE is a research programme at Uppsala University aiming to increase mental health among patients and their significant others in relation to somatic disease. https://www.uu.se/en/centre/u-care
How are thoughts, emotions, behaviours and symptoms connected? 🔍 Last week, Lars Klintwall (Karolinska Institutet) joined U-CARE's BrainPub seminar to discuss person-specific causal networks and their applications in clinical practice and research. #UCARE
A new chapter for U-CARE! On 1 October, @jowoodford.bsky.social succeeded Louise von Essen as Programme Director of U-CARE. After more than a decade of involvement in the programme, Joanne Woodford now leads U-CARE’s continued development. Read more on our web: www.uu.se/en/centre/u-... #UCARE
Joanne Woodford appointed as U-CARE's new Programme Director – Uppsala University Psychosocial Care Programme: U-CARE – Uppsala University
uu.se
🔍 Registration is open for our PhD methods course Public Contribution in Research! Learn how to involve and engage the public in healthcare research. 📅 Nov - Dec 2026 👉 Apply by 18 October: media.medfarm.uu.se/kurser/cours... #PhDcourse #DoctoralTraining #UCARE
📣 U-CARE researcher Frida Svedin presented findings from the INVOLVERA project at #ICTMC2026 in Birmingham. The results show how patient and public contribution has helped shape both a psychological support programme for people living with dementia and the research process. Well done Frida!👏
We are pleased to welcome Professor Mathias Hallberg as the new Chair of the U-CARE Steering Committee. Mathias Hallberg is Deputy Vice-Rector for the Disciplinary Domain of Medicine and Pharmacy at Uppsala University, and he succeeds Professor Karin Forsberg Nilsson. #UCARE
📖 New research in Acta Paediatrica: U-CARE researcher and physiotherapist @fysiokine.bsky.social is co-author of a study showing that motor difficulties at 12 years of age are common among children born very preterm. Early motor assessments may help identify children in need of support.
👋 Welcome to U-CARE, Carin Andrews! Carin joins the ACT-ALL project, where we are co-creating an SMS-based support programme with caregivers in Tanzania to help more children with acute lymphoblastic leukaemia (ALL) complete their treatment. We are very pleased to have Carin on board. #UCARE
🌱 Recruitment exceeded expectations in the CHANGE-pilot study! 85 parents of persons treated for cancer during childhood have been recruited, surpassing our target ✅ Collaboration with parents helped shape the study, recruitment strategy, and the self-help programme. #ChildhoodCancer #PPIE #UCARE
U-CARE Guest Professor @streweek.bsky.social has co-authored a new Delphi study and consensus statement in BMJ. 👉 The paper provides international recommendations on how ethnicity-related information should be collected and reported in clinical trials. Read more: www.bmj.com/content/394/...
💡 How can the informativeness of clinical trials be improved? A new study co-authored by U-CARE’s Guest Professor @streweek.bsky.social provides guidance based on insights from 55 international stakeholders. Improving design, feasibility & reporting is key. ➡️
Recruitment has begun for the CHANGE-pilot study! 🌱 We’re testing EJDeR, a CBT-based self-help programme for parents of persons who have been treated for cancer during childhood. 👉 60 parents will take part in this important next step in our research. Read more: www.uu.se/en/centre/u-... #UCARE
Recruitment has begun for the CHANGE pilot study – Uppsala University Psychosocial Care Programme: U-CARE – Uppsala University
uu.se
Last week, Sophie Nadia Gaber led a U‑CARE BrainPub seminar on realist reviews 🔍 Exploring theory, the five‑step process, and when to use realist reviews, the session also featured interactive discussions on contexts, mechanisms & outcomes. Thank you everyone who attended the seminar, and Sophie ✨
Curious about how we can improve equity, diversity and inclusion in clinical research? Join us at U-CARE Venue 2026, Nov 16–17 in Uppsala! ‘Better Evidence for All – Increasing Equity, Diversity, and Inclusion in Clinical Research’ Register for free today 👉 doit.medfarm.uu.se/bin/kurt3/ku...
✨ New study: Automated & manual breast density assessments show good agreement in screening. Co-authored by @streweek.bsky.social highlights potential for more consistent screening, but more standardised and inclusive evaluations are needed. 🔗 journals.sagepub.com/doi/10.1177/...
🔍 PhD course: Public Contribution in Research Learn how to involve and engage the public in healthcare research. 📅 Nov - Dec 2026 👉 Apply by 2 September: media.medfarm.uu.se/kurser/cours...
Uppsala Trial Forge Centre (U-TFC) and Uppsala Clinical Research Center (UCR) are launching a new collaboration to strengthen patient and public involvement in clinical research and support more relevant, inclusive studies. 🤝 Learn more: www.uu.se/en/centre/u-... #ClinicalResearch #PPI
Uppsala Trial Forge Centre and Uppsala Clinical Research Center initiate collaboration – Uppsala University Psychosocial Care Programme: U-CARE – Uppsala University
uu.se
🌙 U-CARE researcher Sophie Nadia Gaber is featured in Äldre i centrum about the SOVA project, which adapts a UK sleep intervention for people with dementia and their carers to a Swedish context. Read more (in Swedish): aldreicentrum.se/nyheter/effe... #UCARE
Effektiv metod mot sömnstörning till Sverige – Äldre i centrum
En brittisk behandling mot sömnstörningar för personer med demens och deras anhörigvårdare, ska nu anpassas till svenska förhållanden. Forskningen pågår nu bland annat vid Uppsala universitet.
aldreicentrum.se
🧩 New U-CARE study explores e-mental health intervention preferences among informal caregivers of people with chronic kidney disease. Caregivers highlight need for tailored support, clear information, and involvement in design. Read more: humanfactors.jmir.org/2026/1/e80962
e-Mental Health Intervention Preferences Among Informal Caregivers of Adults Living with Chronic Kidney Disease: Semistructured Interview Study
Background: Informal caregivers of people living with chronic kidney disease commonly experience mental health difficulties. However, there is currently limited access to scalable psychological interv...
humanfactors.jmir.org
Earlier this week, we held the final session of the “Visualize your research in practice” workshop. Participants explored motion graphics in PowerPoint and brought their visuals to life. Big thanks to Kess Marks and all participants for an inspiring workshop! #sciencecommunication #UCARE
🎓 PhD course now open to apply: Feasibility studies in complex healthcare interventions Learn study design, sample size, mixed methods & apply it to your own PhD project. 📅 May–June 2026 👉 Apply by 2 April: www2.medfarm.uu.se/utbildning/f... #PhDcourse #UppsalaUniversity
🎓 Applications are now open for 16 fully funded PhD student positions in the EDICT doctoral network, focusing on equity, diversity and inclusion in clinical trials. 🌍 International training across Europe. 🌐 Learn more and apply: www.edictproject.eu 📅 Deadline: 30 March 2026 #PhdPosition #EDICT
EDICT - Advancing Equity, Diversity and Inclusion in Clinical Trials
EDICT is a Marie Skłodowska-Curie Doctoral Network training 16 PhD researchers to transform equity, diversity and inclusion in clinical trials across Europe.
edictproject.eu
🎓 U-CARE’s PhD student Rogers Kissiti has held his post-registration seminar. In his PhD project, he will develop and evaluate a peer support programme for women in Sweden with experience of forced migration and mental ill-health. Thank you Rogers for an engaging presentation and discussion 👏
🎨 Great start to the workshop Visualize your research in practice! Earlier this week, Andreas Dahlin from Visualize Your Science, led a session focused on vector graphics. Participants created research illustrations in Affinity Designer. Looking forward to the next session on video animations! 📽️
🎓 Last week, U-CARE researcher Sophie Gaber attended the course Realist Reviews and Realist Evaluation at @ox.ac.uk 🙌 The course focused on using realist methods to study complex health interventions and will support Sophie Gaber's ongoing research and future studies ✨
Yesterday, we celebrated our affiliated researcher Mattias Öhman, who recently has been appointed Docent in Economics at Uppsala University 🎉 Fika, semlor, and an inspiring presentation held by Mattias about his broad research. Big congratulations, Mattias! 🌟
New study co-authored by U-CARE’s Guest Professor @streweek.bsky.social presents the INCLUDE framework, supporting more inclusive clinical trials. The framework helps reduce barriers to participation and promote equitable healthcare. 👉 Read more: link.springer.com/article/10.1...
Making trials more inclusive of people experiencing socioeconomic disadvantage: developing the INCLUDE socioeconomic disadvantage framework - Trials
Background People experiencing socioeconomic disadvantage are persistently underrepresented in clinical trials, yet they experience a significantly greater burden of disease than those not experiencin...
link.springer.com
PhD students: Want to learn how to involve the public meaningfully in your research? Our course Public Contribution in Research runs Nov–Dec '26 and covers practical tools, challenges, and impact across the research lifecycle. Learn more and apply via the link 👇 www2.medfarm.uu.se/utbildning/f...
Docent Sophie Gaber is at #WFOT2026 in Bangkok, presenting research on: 🔹participation for older adults in nursing homes 🔹interdisciplinary care environments 🔹digital inequities among women experiencing homelessness Read more: www.uu.se/en/centre/u-... #UCARE #OccupationalTherapy #WFOT2026
Our new study shows how qualitative interviews can be analysed together with parents of children treated for cancer as public contributors. The collaborative approach added new perspectives and practical insights for future research. 👉 Read more: onlinelibrary.wiley.com/doi/10.1111/...
Public Contribution in Qualitative Research With Parents of Children Treated for Cancer: Description of and Reflections on a Collaborative Data Analysis Approach
Background Collaborative data analysis (CDA) in qualitative research is an approach for working with public contributors as co-researchers in analysing data. Different approaches have been outlined ...
onlinelibrary.wiley.com
