👉🏻 Notre table ronde (sans table mais avec des intervenants passionnants) sur la pandémie et la crise climatique : @elisarojas.bsky.social, Antoine Dubiau, @ricardoparreira.com, collectif DSAVEC et Winslow Santé Publique.
Long COVID Rise Up
@longcovidriseup.bsky.social
International Federation advocating for #LongCOVID research and prevention | Together, we rise! 💪😷 #StopTheDiseaseProcess #BlockTheSpread www.longcovidriseup.eu
✍️ La publication réponse de @solenntango.bsky.social : "Covid Long, entre repli syndromique et exigence étiologique" est parue sur le site de médecine/sciences (DOI: doi.org/10.1051/meds...). #CovidLong La version auteure est également disponible sur une page de notre site winslow.fr/article-dans...
Article dans médecine/sciences - Winslow Santé Publique
Une réponse dans le forum de médecine/sciences à un article paru sur le COVID long dans le même journal en février
winslow.fr
Nous lançons donc un appel à dons. Chaque don compte et servira à assurer le meilleur accueil possible du public, des bénévoles, des intervenant·es et des artistes, et à renforcer l’accessibilité de l’événement. 👉 La cagnotte est ici : www.helloasso.com/as... 3/4
Festival d'autodéfense sanitaire : 509 PPM - Prévention, Politique, Musique
Financement participatif organisé par Winslow Santé Publique - Aidez-nous à financer ce festival destiné à se retrouver, discuter de nos militances, s'amuser et profiter de la musique de COVID Cautious !
helloasso.com
Notre association, avec l’ARRA & le Mask Block Paris, organise son 1er festival d’autodéfense sanitaire en France : 509 PPM - Prévention, Politique, Musique. ❤️🔥 Rendez-vous les 5-6 septembre à la Parole Errante (Montreuil) pour un événement à la fois militant et festif 1/4
« Ces associations se fédèrent désormais à l'échelle internationale. Winslow SP fait par exemple partie de Long Covid Rise Up » @longcovidriseup.bsky.social
🗞️ Merci à Marie Jamet pour cet article pour dans des membres de notre association ont été interviewé•es : « Il m’a fallu un an pour qu’on me diagnostique un #Covidlong. Les médecins reconnaissaient que j’en souffrais, mais
Long Covid: healing the broken link between research and diagnosis - Point
Five years after the first cases, patients with long Covid continue to go through months or years before receiving a diagnosis. Publications are increasing in number, and clinical recommendations exist. Yet, between the production of medical knowledge and the general practitioner's surgery, information gets lost.
point-health.eu
🚨 Some time ago, we have written to the authors of the “Clinical Care Guide” (Bateman Center) to express our deep concern about its portrayal of #LongCOVID. While it addresses PEM, POTS & MCAS, it largely ignores the broader reality of this disease: 🔗 longcovidriseup.eu/bateman-letter/
BATEMAN LETTER
A letter to the Bateman institute
longcovidriseup.eu
Long Covid is not "baffling" at all. There are thousands of publications which show multi-system pathology across all body systems, including extensive evidence of organ damage. The scientific and clinical evidence is undeniable and should be reported about accurately #LongCovid
WIRED@wired.com · 4mo agoSix years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
On this day, I want to express my gratitude and solidarity to all patients, advocates, patient-researchers and allies who have been fighting for years. But I also want to remember the lives lost, the pain, the suffering, the lack of care, the fight. Thinking about all of you. Thanks. #LongCovid
Six years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing grassroots movement of people, who weren't recovering from covid. Across the world, we're still fighting for research and treatment of our disease
🚨📗 Encore un article à lire absolument, sur AOC, d'A. Monnin : "Sur « le vivre avec », du Covid à l’#hantavirus", qui analyse les réactions écologiques à l'alerte 🦠 récente et les prises de paroles telles que celle d'A. Desbiolles (Reporterre). aoc.media/opinion/20... 1/10
Sur « le vivre avec », du Covid à l’hantavirus - AOC media
« Vivre avec » le vivant, oui – mais avec quoi, comment, à quel seuil, et pour quels corps ? L'alerte hantavirus a suffi à rouvrir les fractures du Covid et à rejouer ses camps. Derrière ce clivage, une confusion que ni l'écologie du vivant ni la santé publique ne dissipent assez clairement : entre cohabiter avec des microbes et subir une exposition pathogène. Une distinction dont le coût, quand elle est esquivée, est toujours payé par les mêmes.
aoc.media
Just like in the heyday of Act Up, the activists, wearing FFP2 masks, stormed the stage. » "At the center of the controversy are French researchers (a psychiatrist and an internist) involved in a study at Hôtel-Dieu that highlights cognitive-behavioral therapies and mindfulness meditation,
🗞️ Press article « No, yoga is not the solution to long COVID » on the Long Covid EU project symposium, « quickly interrupted by people living with long COVID, who protested against the arguments put forward by some of the speakers that tended to 'psychologize' their condition.
Winslow Santé Publique@winslowsp.bsky.social · 5mo ago🚨🗞️ Must read : "Non, le yoga n’est pas la solution au Covid long" sur le Colloque Long COVID EU Project (nous confirmons!), "rapidement interrompu par des personnes vivant avec le Covid long, s’insurgeant des thèses défendues par certains des protagonistes
🔥🔥🔥 we don’t need yoga or meditation 🔥🔥🔥 #StopTheDiseaseProcess #BlockTheSpread
Winslow Santé Publique@winslowsp.bsky.social · 5mo ago🎙️« people leading research groups on these “alternative therapies” were present and actively involved in the conference. We thought it was very dangerous and we also want to be there each time doctors talk about us, 🧵 thesicktimes.org/2026/05/05/l...
@elisaperego78.bsky.social and myself, have written a response to Charlton et al. recent paper : "Reframing long covid around an overarching vision of PEM oversimplifies a complex landscape characterized by significant cardiovascular abnormalities and risks. Lire ici 🔗 bjsm.bmj.com/content/60/8...
This by @solenntango.bsky.social and myself is a response to a discussion by Charlton et al, who broadly suggested reframing cardiovascular Long Covid through PEM, to be managed with an app based monitoring bjsm.bmj.com/content/60/8...
@solenntango.bsky.social and I write about the risks of centering syndromic/PEM-based models and app-based management in addressing cardiovascular #LongCovid "In a population already struggling to access specialized cardiology care, this may translate into missed opportunities for diagnosis"
👇👇👇
Solenn TANGUY@solenntango.bsky.social · 6mo ago@elisaperego78.bsky.social and myself, have written a response to Charlton et al. recent paper : "Reframing long covid around an overarching vision of PEM oversimplifies a complex landscape characterized by significant cardiovascular abnormalities and risks. Lire ici 🔗 bjsm.bmj.com/content/60/8...
🙌 A must-read on #LongCovid, mechanisms and multisystemic consequences. Thank you @elisaperego78.bsky.social 👇👇👇
Dr Elisa Perego@elisaperego78.bsky.social · 6mo agoMy new research is out "Overview and Pathophysiology of Long Covid" I provide an updated overview of key concepts, terminology and epidemiology of LC. I also offer an analysis of key mechanisms of pathology and multi-organ involvement in #LongCovid www.mdpi.com/2673-8112/6/...
Welcome @lcawarenessint.bsky.social to @longcovidriseup.bsky.social. We will keep fighting for the recognition of #LongCovid, treatments and prevention 🙏🔥 #LongCovidAwarenessDay #longcovidawarness
Long COVID Rise Up@longcovidriseup.bsky.social · 7mo ago🚨 The federation grows ! On this 15th march, we are proud and energized to announce that the pioneering group 🔥International Long COVID Awareness🔥 is joining forces with Long Covid Rise Up. Their voice makes us stronger. We are done with unchecked spread and no treatment.
🗣️Setmana de conscienciació de la Covid Persistent. 🩵#DiaInternacionaldelaCovid #15Març2026 💊Una malaltia crònica i complexa provocada per una o múltiples infeccions pel SARS-Cov2. 🗓️ #6anys I encara hem reclamem el mateix. 🩺Atenció 🪩Reconeixement 🥽🥽 Visualització
🚨 The federation grows ! On this 15th march, we are proud and energized to announce that the pioneering group 🔥International Long COVID Awareness🔥 is joining forces with Long Covid Rise Up. Their voice makes us stronger. We are done with unchecked spread and no treatment.
Each #LongCovid death is a scandal. Covid is avoidable with collective prevention measures. Mass infection policies kills. The words of Leslie Lee III still resonates
🖤🐘 March 14, we remember. #LongCovidAwareness Elephants never forget the ones they lose. Neither do we. Each black elephant marks a life lost to Long Covid. We are thinking of you. For the dead -and for the living, The fight continues. #LongCovidKills
📢 French article on #LongCovidAwareness, thanks to Covid Long solidarité. #LongCovidHeartbeats are discussed, the @winslowsp.bsky.social Paris protest, and more. 2026. We need action now!
Winslow Santé Publique@winslowsp.bsky.social · 7mo agoMerci @CLsolidaire et le Dauphiné pour cet article sur le #LongCovidAwareness. Le slogan «chaque battement compte» et le thème y sont discutés, ainsi que l’illumination de la mairie de Istres à partir de ce soir & notre rassemblement à Paris du jour !
#StopTheDiseaseProcess #BlockTheSpread #LongCovidAwareness
Winslow Santé Publique@winslowsp.bsky.social · 7mo agoLes conditions météorologiques étant difficiles, nous avons hésité à maintenir ; mais de courageux•ses #CovidLong avec de beaux 😷 se sont déplacé•es malgré la pluie pour marquer ce #LongCovidAwereness! #LongCovidHeartbeats
💡Catalonia lights up!💡 Thanks to the efforts of @covid19_persistent, on March 15th, the Government of Catalonia and 20 + city councils in major cities will light up their city hall, or an iconic city building. #LongCovidAwareness makes #LongCovidHeartbeats visible ! 🩵🩶🖤
Col.lectiu d'Afectades i Afectats persistents per la Covid 19@covid19persist1.bsky.social · 7mo ago‼️‼️Per això, aquest 2026 en SUMEM a la campanya #LongCovidAraweness per il·luminar els edificis emblemàtics de Catalunya.‼️‼️ El proper diumenge #15M el Liceu (Barcelona) encendrà la seva façana amb el color del #LongCovid #CovidPersistent
🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats 👉 Every patient counts, every heartbeat counts. (Youtube channel with several languages : www.youtube.com/playlist?lis...)
Seis años después de la pandemia, 2,4 millones de personas viven en el Estado español con covid persistente ‼️ Long Covid Aragón denuncia falta de reconocimiento, investigación y atención sanitaria y convoca concentración el 15 de marzo en Zaragoza: https://arainfo.org/?p=322997
