It can be tricky transitioning from child to adult services. Our England guide simplifies the process, sets out key timescales and links to other useful resources and organisations. You can find it here: https://loom.ly/OhCFyMU
Down's Syndrome Association
@dsa-uk.bsky.social
We are a national organisation, committed to improving quality of life for people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others.
An introduction to the dual diagnosis of Down’s syndrome and autism: Thursday 8 October 2026 | 10.30am – 12 noon | FREE This first webinar of two is aimed at those who are wondering whether to pursue a diagnosis of autism. To book your place, click here: https://loom.ly/DlPF_mk
💚⭐The finalists are in! ⭐💚 🎉Huge congratulations to everyone who has been shortlisted in this year's **My Perspective** Photography Competition! 🙏Thank you to everyone who entered. The standard was incredibly high. ✅Voting for the People's Choice Award opens next week. #MyPerspective
DSEngage Live | Weekly Workout Get August off to a great start with a fun and enjoyable live workout! The live workouts can be easily adapted depending on your fitness level and will be fun for everyone. Next Session: Monday 3 August 2026. Time: 4 – 4.45pm. Sign up here: https://loom.ly/2UAgQ6Q
Disability Pride Month Celebration Not long to go now - join us as we celebrate Disability Pride! Friday 31 July 2026 | 2-3pm | FREE DSA Inclusion advisors Joe and Catherine will be co-hosting this exciting and lively event for the Down’s syndrome community. Sign up here: https://loom.ly/2vyUhI8
Self-talk is something that people who have Down's syndrome find helpful through their lives. In this resource we talk about why it is beneficial and how to respond. Click here: https://www.downs-syndrome.org.uk/wp-content/uploads/2025/12/Self-talk-resource_FINAL_27.11.25.pdf
Final reminder to please take part in this study about pain in young adults who have Down's syndrome, if you can. Please scan the QR code or contact the email provided on the poster if you'd like to get involved/or pass onto people you know who might be interested in taking part.
The DSA recently brought together families of children and young people with experience of Education Otherwise Than At School (EOTAS). The online focus group provided an opportunity for families to share their experiences of accessing EOTAS. Full blog on our website: https://loom.ly/RfmnbPs
Webinar Recording - Understanding Behaviour Part 2: In this recording of our webinar, we look at how to approach behaviour changes including strategies that might help. This webinar will also be delivered live on 3 December and can be booked on our training page. See here: https://loom.ly/klwLlNM
Time is an abstract concept and one that many people can find difficult. For instance understanding how long is 10 minutes? In our resource, we talk about this more and what might help. ⏰ Click here for the resource: https://loom.ly/Emp0Gs0
Carers Allowance Call for Evidence: Last week, a six week call for evidence was opened to gather views on Carers Allowance. To read more on this, please head to our website. You can also find the consultation here too: https://loom.ly/KZWIG0Q
DSEngage Live | Dance Class 💃🕺 Join people who have Down’s syndrome from all over the country to Wake up and dance with DanceSyndrome via Zoom! Next Session: (tomorrow) Thursday 16 July 2026. Time: 9.30 – 10.15am. Please sign up here: https://loom.ly/fEn2yVs
The Down’s Syndrome Association is responding to the publication of the latest Learning from Lives and Deaths (LeDeR) report 2024, published on 13 July 2026. Read the full response on our website: https://loom.ly/LP5hhRk
Understanding Behaviour Webinar Part 1 – an introduction. Many behaviours that we see are very helpful but sometimes cause concern. In this webinar we talk about some of them. If you would like to attend the next one in October you can register by clicking this link: https://loom.ly/_qQvgJk
Have your say about health and social care services – Northern Ireland (NHSCT area only) Your experience matters. This short survey will help shape future health & social care services: https://loom.ly/K6P7258 Please take part and share with others locally. The survey closes 31 July 2026.
Stories can be helpful in teaching new skills or preparing someone for a situation. To learn more about how to write a story, see our resource at the link below. Link: https://www.downs-syndrome.org.uk/wp-content/uploads/2025/05/Using-Stories_FINAL-VERSION_16.05.25.pdf
The DSA have responded to the Timms Review Interim Report on the Personal Independence Payment System. Please read the full response on our website: https://loom.ly/EcpNYag
Can you help with this study about pain in young adults who have Down's syndrome? If you would like to take part/know someone who would, please scan the QR code or contact the email provided on the poster for more information. *The text and poster is provided by the research team.
People communicate through their behaviour and it is important to give everyone ways to let others know what they want/need/like/dislike. This resource contains visual supports that can be cut out and used to help with communication. You can access it here: https://loom.ly/vKmWZvM
DSEngage LIVE | Evening Disco 🪩 Switch on your disco lights, wear your favourite disco outfit and lets get dancing! Who's joining us? Next Session: Tuesday 7 July 2026. Time: 7.00 – 8.00pm. Please sign up here: https://loom.ly/wFaWeos
Did you know that we have a page on our website dedicated to understanding behaviour? On there you can find many helpful resources. Click here to see more: https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/understanding-behaviour/
Can you help with this study about pain in young adults who have Down's syndrome? Please scan the QR code or contact the email provided on the poster if you'd like to get involved. *Please note that the DSA supports the aims of this study but any text is provided by the research team.
Support this open letter to the Prime Minister: ✅ A new national programme and strategy for people with learning disabilities ✅ Action to tackle health inequalities ✅ Accountability for delivering change ✉️ Easy read: https://tinyurl.com/mtaknxna ✍️ Sign the letter: https://tinyurl.com/yv2ean8a
Focus group: Experiences of EOTAS (Education Other Than At School) Wednesday 15 July 2026 | 6.30-8pm | FREE We are holding a small online focus group for parents and carers of children and young people who have an EOTAS package. Places are limited - please register here: https://loom.ly/UuE4Tso
Have your say about health and social care services – Northern Ireland (NHSCT area only) This short survey will help shape future health & social care: https://loom.ly/K6P7258 Please take part and share with others locally. The survey closes 31 July 2026.
Coeliac disease is an autoimmune condition, and it is more common in people who have Down’s syndrome. Please see our updated resource for more information on what it is, how it is diagnosed and managing a gluten free diet: https://loom.ly/IYaLBl4
We have released a statement on 'Transition and Racial Inequity in EHCP Access' over on our website. Please give it a read to find out the DSA's views on this topic: https://www.downs-syndrome.org.uk/news/news-research/policy-campaigns/dsa-statement-on-transition-and-racial-inequity-in-ehcp-access/
The Community Transport Association is inviting parents and carers to take part in its survey, funded by Motability Foundation. Survey respondents can enter a prize draw to win one of three £250 high street vouchers. The deadline for responses is 30 June! Have your say: https://loom.ly/cOs1Q4Y
The hot weather is having an impact on us all & it's important to keep safety in mind especially for people who have Down's syndrome, who can be at a higher risk during extreme heat. Click here for some advice & useful resources on keeping cool & safe 👉 https://loom.ly/UEwdus8
My Perspective is an international photographic competition for people who have Down’s syndrome! Entries close in a couple of days - don't miss out! 📷 The competition closes on Friday 26 June at 5pm GMT. Get those entries in now! Please enter by clicking this link: https://loom.ly/Nag352o