It’s World Lung Cancer Day 2026. It’s also exactly 7 years since I had surgery to remove a metastatic tumour from my brain caused by my own lung cancer. I got this rather fetching scar! 1/n

This came to my attention the other day. It’s not just Kalshi doing this, but Polymarket as well. www.theguardian.com/technology/2... 1/n

Kalshi to offer betting on drug trial results and FDA regulatory decisions

Move comes as prediction platforms rapidly gain popularity and offer opportunities to bet on virtually anything

theguardian.com

Hey #Cansky ! If you didn’t know, now, we have a group message for members! We have 15 people in there now, and you can have up to 50! Looking to hopefully add more and more members so we can make this more of a community!🫶🏻 bsky.app/chat/itzxP7o

Who's this fella with his mug all over this Roy Castle Lung Cancer Foundation booklet on lung cancer with brain mets? roycastle.org/wp-content/u...

Sid's trying to build a little cancer patient/carer community here on BlueSky - why not join? #cansky #cancer

Sid Sadler@sadlersnaps.bsky.social · last mo.

Hey all my #Cansky and #Cancer folks. I made a little group here, to get this community talking more over here on BlueSky! Join now! Patients or caregivers, doesn’t matter 🫶🏻. bsky.app/chat/itzxP7o

RIP DH.

I’m not really one for bucket lists, but if I was, seeing the godfathers of electronic music, Kraftwerk at the Royal Albert Hall would have been right up there. Absolutely amazing show. Can I go again please?

@herring1967.bsky.social spotted as part of an exhibition of Andy Hollingworth photos of comedians in Birmingham

Won an award at the Greater Manchester Cancer Alliance Awards - this was the Patient's Choice award for the work I do as a patient advocate for the alliance. I don't care too much about recognition, but it is nice to know you are making a difference, however small. #GMCancerAwards26

Loaf rating ~8/10

A huge frustration for me as a non-US cancer patient. Clinicaltrials.gov *only* covers trials that have at least one US location. To see trials local to me (in the UK), I have to search and de-dupe through a numbers of sites… 1/n

I recently took part in a podcast with the Roy Castle Lung Cancer Foundation, discussing precision medicine from a patient’s perspective with Dr Andrew Gilligan and Rachel Avery: roycastle.org/our-support/...

Lung Cancer Podcast | Roy Castle

Talk of Hope is a lung cancer podcast sharing real stories and expert advice. Listen to episodes on diagnosis, treatment, and living with lung cancer.

roycastle.org

📣 The April NLCA Newsletter is here! This month features the recently published State of the Nation report 2026, the upcoming April Data Dashboard, and engagement activities including our latest blog, conference participation and upcoming podcast.  👉 Read here: buff.ly/4uAhrxe @btog.bsky.social

NLCA Newsletter, April 2026 - National Cancer Audit Collaborating Centre

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natcan.org.uk

Well worth a read to help people understand what it is to live with stage 4 cancer. The "liminal" state of neither dying nor truly being able to just get on with life. If you want to know how I live my life, read this. www.theguardian.com/society/2026...

I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle

When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss

theguardian.com

Simple rule of social media No127 Anyone referring to themselves as a "Digital Creator" has nothing of value to say and can be safely ignored.

Can't believe I was too busy doing cancer patient advocacy stuff yesterday to notice it was world cancer day 🤷‍♂️

I chatted with a PR lady from The Christie Hospital a while ago. They wrote up a piece, and a national newspaper has picked it up. It's good to get our stories out there! www.express.co.uk/life-style/h...

'Miracle NHS drug made my incurable stage 4 lung and brain cancer vanish'

EXCLUSIVE: Duncan feared the worst when told he had stage 4 lung cancer that had already spread to his brain.

express.co.uk

Spent Friday attending @gmcanceracademy.bsky.social Genomics Education Event. Spoke on a patient panel, and presented a patient’s view of liquid biopsies. Very informative!

Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working. youtu.be/yIWw0U2yg5c?...

Duncan on brain surgery, work and redefining life with advanced lung #cancer | #podcast

YouTube video by Oncogene Cancer Research

youtu.be

I don’t know if it’s just me, but I find I am able to “Live, Laugh, Love” without requiring a reminder to do so painted on one of the walls in my home.

The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance. We also talk about who inspired me to become a patient advocate, Cameron Millar youtu.be/8wRLznxVN0U 1/2

Duncan never saw lung #cancer coming. Now he's fighting to change the system. | #podcast

YouTube video by Oncogene Cancer Research

youtu.be

Last night I attended the launch of the Greater Manchester Cancer Alliance Metastatic Strategy. Metastatic patients often “fall through the cracks” between healthcare teams or experience poor communication from those teams. 1/n

I suppose we should be concerned about a concentration of newspapers all in the hands of one very rich person, but TBH the DT has been pretty much indistinguishable from the DM for a good few years now www.theguardian.com/media/2025/n...

Daily Mail owner strikes £500m deal to buy Telegraph titles

Acquisition likely to trigger indepth investigation by regulator after agreement between DMGT and Redbird IMI

theguardian.com

Positive news emerging about Nuvalent's 4G TKI for ALK+ NSCLC patients. Latest trial result show 31% of all patients had a complete or partial response (many of these were heavily pre-treated with other TKIs and chemo). For patients who never received Lorlatinib this increased to 46% 1/n

A fantastic paper to help patients like me understand the science behind ALK+ Lung Cancer and its treatments. onlinelibrary.wiley.com/doi/10.1111/... Elena isn't just a Professor of Molecular Oncology, she is also an ALK+ patient. Whenever I speak with her, I learn something new about my disease.

Fascinating meta-study on the risk factors for lung cancer in never-smokers. I'll want to discuss this with the GM Cancer Alliance early detection & diagnosis group I am part of: www.jtocrr.org/article/S266...

Risk Factors Associated With Incidence of Lung Cancer in Never-Smokers: A Systematic Review and Meta-Analysis

Lung cancer is the leading cause of cancer mortality globally. Although often associated with smoking, up to 25% of cases worldwide and 50% in East Asia occur in “never-smokers.” There are currently n...

jtocrr.org

A great little resource for explaining pleural effusions to cancer patients and carers mypleuraleffusionjourney.com

Welcome to ‘My Pleural Effusion Journey’

My Pleural Effusion Journey and the information contained within it has been written by healthcare professionals, patients and carers.

mypleuraleffusionjourney.com

I was honoured to spend a few hours recently talking with @yvonnediaz.bsky.social from @oncogenecancer.bsky.social about my lung cancer experiences. This first part is about my initial diagnosis and the start of my treatment. More to come shortly! youtu.be/FZsbfkloPyM?...

Duncan was 49, healthy. One day he had a seizure after work. It was stage 4 lung #cancer | #podcast

YouTube video by Oncogene Cancer Research

youtu.be

Amazing mOS figures from the final trial report of the drug I happen to take... and there are better drugs on the market now and in phase 3 trials. Reassuring to know how fast treatments are improving in the ALK+ NSCLC space #LCSM #CANSKY

Dr Mathew Wilson@mathewgwilson.bsky.social · 10mo ago

#ALEX study shows 81.1 month median OS in final report of study from Tong Mok Amongst the longest overall survivals reported in lung cancer. Further trials of 3rd and 4th gen TKI ongoing. Much work to do, but valuable to reflect on how far things have com #ESMO25 #LCSM #Alk #NSCLC

Sigh... suspended from Facebook by their dumb AI algorithm No big deal right? For me, it cuts me off from all of my cancer support groups, hosted on the platform. Can't contact anyone directly at Meta to appeal... "services" to help you get your account back are scammers... not my first rodeo!