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The Ehlers-Danlos Society

@ehlers-danlos.com

The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) ehlers-danlos.com

252 Posts1759 Follower93 Folgt
The Ehlers-Danlos Society@ehlers-danlos.com · 2d ago

We’re turning content into impact with Stream for Change all month! This creator-led fundraising campaign bringing together streamers, gamers, content creators, and online communities to raise awareness and funds for people impacted by EDS and HSD.

Promotional graphic for Stream for Change 2026 by The Ehlers-Danlos Society. Large white text reads, “Your Content Can Change Lives.” Supporting text says, “Every stream, post, video, and supporter helps us move our mission forward.” On the right, a smiling person wearing headphones speaks into a microphone while streaming from a laptop. A Stream for Change 2026 shield logo appears in the lower-right corner. A white call-to-action button at the bottom left reads, “Join Stream for Change 2026.” The background features a blue and teal gradient with subtle abstract patterns.
The Ehlers-Danlos Society@ehlers-danlos.com · last wk.

Create. Stream. Change Lives. This August, we’re turning content into impact with Stream for Change, a month-long creator-led fundraising campaign bringing together streamers, gamers, content creators, and online communities to raise awareness and funds for people impacted by EDS and HSD.

Promotional graphic for Stream for Change 2026 by The Ehlers-Danlos Society. Large white text reads, “Your Content Can Change Lives.” Supporting text says, “Every stream, post, video, and supporter helps us move our mission forward.” On the right, a smiling person wearing headphones speaks into a microphone while streaming from a laptop. A Stream for Change 2026 shield logo appears in the lower-right corner. A white call-to-action button at the bottom left reads, “Join Stream for Change 2026.” The background features a blue and teal gradient with subtle abstract patterns.
The Ehlers-Danlos Society@ehlers-danlos.com · 4w ago

Congratulations to Sarah Clark MSc, who has been awarded the 'Research Impact Award' at Bournemouth University's Research Conference. Sarah is completing a part-time MRes exploring how diagnostic delays for #autistic people with #EDS and #HSD can be reduced. www.ehlers-danlos.com/story/sarah-...

Congratulations Sarah Clark - The Ehlers Danlos Society

I am proud to share that I was awarded the Research Impact Award at Bournemouth University’s Faculty of Media Science and Technology Postgraduate Research Conference this week, recognizing both my

ehlers-danlos.com

The Ehlers-Danlos Society@ehlers-danlos.com · last mo.

📢 New Research Funding Opportunity for MCAS Diagnostics One of the biggest challenges for people living with Mast Cell Activation Syndrome (MCAS) is getting an accurate diagnosis. Many experience years of uncertainty, inconsistent testing, and difficulty finding answers.

Promotional graphic from The Ehlers-Danlos Society announcing a research funding opportunity. The slide features the Society logo, a blue banner reading "Research Funding Opportunity," and the title "Development of Objective Diagnostic Approaches and Biomarkers for Mast Cell Activation Syndrome (MCAS)." On the right, a scientist in a laboratory coat and blue gloves looks through a microscope in a modern laboratory. The background includes subtle DNA strands, molecular graphics, and laboratory glassware, reinforcing the biomedical research theme.
The Ehlers-Danlos Society@ehlers-danlos.com · 3mo ago

This week's Research Roundup features recent studies on #myopathicEDS (mEDS) and #hypermobileEDS (hEDS). ⁠ ⁠ These studies explore #genetics, chronic pain, swallowing difficulties, and parenting perspectives in rare conditions. www.ehlers-danlos.com/research-rou...

Research Roundup: New Research in EDS and HSD - The Ehlers Danlos Society

This week’s Research Roundup features recent studies on myopathic EDS (mEDS) and hypermobile EDS (hEDS). These studies explore genetics, chronic pain, swallowing difficulties, and parenting perspectiv...

ehlers-danlos.com

DeVi | DeViaNt Nails | 💅 Nail Tech & Variety Vtuber |@deviant-nails.bsky.social · 3mo ago

I'm raising money for the @ehlersdanlos.bsky.social during May for Ehlers Danlos Awareness Month! You can donate here!!! - tiltify.com/+the-eds-awa... You can also join the Tiltify team if you'd like to contribute that way and raise money with us!! #MyEDSChallenge #MyHSDChallenge

DeViaNt_Nails_ - Twitch

Hi! I'm DeViaNt Nails!! But you can call me DeVi! I'm a lvl 3 Qualified Nail Tech from the UK using Twitch as a platform to practice Nail Art for Industry! I also play a ton of games, host Co-Working ...

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The Ehlers-Danlos Society@ehlers-danlos.com · 3mo ago

🤳🏽Starting tomorrow, May 1st! Join the Social Media Challenge.⁠ ⁠ Use the 31 daily themes (shown in the image) as prompts for your social media posts from May 1-31st to share your journey and raise awareness.⁠ ⁠

Poster titled “31 Days of EDS & HSD” for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder Awareness Month 2026. The design features an orange and gray color scheme with a faint silhouette background and The Ehlers-Danlos Society logo. It lists daily prompts for a 31-day awareness campaign, including topics like “Introduce Your Journey,” “What Helps Me Most,” “My Appointment Essentials,” “Living With Comorbidities,” “A Message to Someone Newly Diagnosed,” “Growth I’m Proud Of,” and “Moving Forward Together.” A link at the bottom reads: bit.ly/31daysofEDSandHSD.