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It's launched: The -- first -- UEMS approved medical training on Rare Neurological Diseases! It consists of webinars, virtual patient cases and a stay in an expert-centre for hands-on-training.

Today at #EAN2026 we are launching the first UEMS approved training on Rare Neurological Diseases: our #PostgraduateCurriculum. Join the talk of our coordinator Holm Graessner to learn how our modular training works, who it is for and be one of the first to apply! 10:35 CEST, Scientific Theatre

Are you at #EAN2026? Then stop by and say hi! We are at the exhibition hall right in front of the Main Auditorium and are looking forward to meeting you.

#EAN2026 is about to start! Come to visit us at our booth (N31) in the Neurohood Exhibition Area and learn more about our new modular #PostgraduateCurriculum

Our new #PostgraduateCurriculum --- UEMS approved --- is about to start soon! Our coordinator Holm Graessner will present the Curriculum at this year's #EAN2026 Congress on Sunday, June 28 at 10:35 CEST! Join us to learn more about our curriculum and how you can apply! @ean.org

What's new in the field of Rare Neurological Diseases? Our monthly #newsletter keeps you up to date with all important news, free webinars, participation calls, funding opportunities and events. www.ern-rnd.eu/mailpoet-ema...

ERN-RND Newsletter - June 2026

European Reference Network for Rare Neurological Diseases Newsletter

ern-rnd.eu

Yesterday our ePAGs visited our expert center Motol University Hospital in Prague. Our hosts Martin Vyhnalek and Julie Novakova introduced us to the team at Motol as well as patients and patients representatives they work with.

Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Join us on Sunday, June 28 at 10:35 CEST (Scientific Theatre)! Holm Graessner: Advancing Care for Patients with Rare Neurological Diseases – the Development of a Postgraduate Curriculum

Get the latest news on rare neurological diseases with our monthly #newsletter: www.ern-rnd.eu?mailpoet_rou... Find news on #HuntingtonDisease, #FriedreichAtaxia, #CervicalDystonia, #NBIA, #HereditarySpasticParaplegia, #AtypicalParkinsonism, #Leukodystrophy and #FrontotemporalDementia

After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST. Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi... programme here: www.ern-rnd.eu/education-tr...

Join our free #SpringSchool now - right now on: Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases" To join the talk click here: us02web.zoom.us/webinar/regi... Find the whole programme here: www.ern-rnd.eu/education-tr...

Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST. Register for free: https://t1p.de/wsatw Programme: https://t1p.de/xp523

Less than a week to go till our #SpringSchool "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” starts! Join uns online from May 5-7 and register now (free of charge): us02web.zoom.us/webinar/regi... Find the programme here: www.ern-rnd.eu/education-tr...

Interested in NGS for Ataxia and HSP? Join Erik-Jan Kamsteeg during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 9:00 CEST. Registration is free of charge: https://t1p.de/wsatw Programme: https://t1p.de/xp523

Gain deeper insights into the role of non-coding variants in rare diseases with Nicola Whiffin during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 5th at 11:30 CEST. Register for free: https://t1p.de/wsatw Programme: https://t1p.de/xp523

Interested in NGS for Leukoencephalopathies? Join Fanny Mochel during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 13:00 CEST. Registration is free of charge: https://t1p.de/wsatw Programme: https://t1p.de/xp523 #NGS

JARDIN Joint Action @jardinjointaction.bsky.social · 5mo ago

Join Diana Baralle for a session on the application of RNAseq in RD during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 5th at 9:00 CEST. Registration is free of charge: https://t1p.de/wsatw Programme: https://t1p.de/xp523 #NGS #RNAseq

📧✨ The fourth edition of the JARDIN newsletter is coming soon! Subscrite today and be among the first to discover: 🌍 Updates from work packages 💼 Highlights from Member States 📅 ERN news 👥 Stories and developments impacting people living with #RareDiseases 👉 https://jardin-ern.eu/newsletter

Join us to explore the role of Bioinformatic Tools for Diagnosing Rare Diseases with Christian Gilissen at our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases" on May 5th at 10:30 CEST. Register for free: https://t1p.de/wsatw Programme: https://t1p.de/xp523

Get the latest news on Rare Neurological Diseases with our #newsletter. This month: our upcoming #SpringSchool in May, our new guideline for neurogenic urinary and sexual symptoms, a video talk competition for patients and patient advocates and many webinars & events: www.ern-rnd.eu?mailpoet_rou...