Do you have a #bleedingdisorder? Have you considered taking part in #research? We have new studies starting soon and are particularly interested in hearing from people with #haemophiliaB living in the UK. Get in touch to find out more: https://loom.ly/vkd8zoE #HaemSky #MedSky
Haemnet
@haemnet.bsky.social
Haemnet works at the heart of the bleeding disorders community. We're a specialist consultancy, engaged in research, communications, community education and support. #HemeSky #BloodSky
🙏 Everything we do around bleeding disorders ultimately comes down to the people who live with them and their families. A huge thank you to everyone who shares their experiences with us in research studies, blogs, #Haemcast and beyond. #livedexperience #bleedingdisorders #research #podcast
The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD 🎧 https://loom.ly/A4UWu6M #haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families #HemeSky #MedSky
New and forthcoming in Bleeding Disorders: Care & Practice… 👀 https://loom.ly/mXo6ubE #haemophilia #RealWorldEvidence #pharmacokinetics #bleedingdisorders #HemeSky #MedSky
New #Haemcast episode out today, focusing on what makes parents of children with #haemophilia feel supported — and when they don't. Part of our special family-focused collaboration with #LFWBD. Available widely or at https://loom.ly/Ye0KIjo #bleedingdisorders #podcast #HemeSky #MedSky
300 million globally live with #hepatitis, and hepatitis B & C kill over 1.3 million each year. This includes people impacted by contaminated blood. We're joining the #WorldHepatitisDay 2026 call to break down barriers that slow the global response to hepatitis. . Let's break it down. #HemeSky
We're excited to hear about the new #TheBleedingEdge #podcast from @bloodstreammedia.bsky.social, which focuses on the lived experience of #GlanzmannThrombasthenia. 🎧 Episode 1 here: https://loom.ly/D36jz3A #HemeSky #MedSky
The Shadow Effect — BloodStream Media
What happens when bleeding becomes so familiar that it no longer feels worth reporting? In the premiere episode of The Bleeding Edge, host Patrick James Lynch brings together patients, caregivers, clinicians, and researchers to explore the realities of living with Glanzmann thrombasthenia.
bloodstreammedia.com
A warm welcome to new members of the Editorial Board of Bleeding Disorders: Care & Practice: Khalid Al Habaybia, Kara Burge, Samantha Carlson, Cyrus Njuguna Githinji, Keri Norris, Lauren Phillips, Dawn Rotellini, Kelly Tickle. #BDCP #bleedingdisorders #haemophilia #research #HemeSky #MedSky
More from our posters on display at #ISTH2026 🇫🇷 🔵 PB 3294: Insights from a wide cohort of adults with #haemophilia who participated in our Learning 2 Live study 🔴 PB 2738 & 2743: More results from GT360, on the impact of living with #GlanzmannThrombasthenia #ISTHCongress
🇫🇷 Our posters are up at #ISTH2026, including: PB 2050, outlining an approach for integrating psychosocial care into #haemophilia #genetherapy PB 1432, sharing ELEVATE study insights on the lived experience of switching to #EfanesoctocogAlfa #ISTHCongress #HemeSky #MedSky
Looking forward to the next few days at #ISTH2026! #Haemnet #bleedingdisorders #research #ISTHCongress #HemeSky
🇫🇷 Just two days to go until #ISTH2026! Our posters include insights from our ELEVATE study, exploring the expectations and experience of people with severe #haemophilia A before and after switching to Efanesoctocog alfa #prophylaxis. #ISTHCongress #Haemnet #HemeSky #MedSky
🇫🇷 It's getting closer...! We're making final preparations for #ISTH2026. Our posters include an evidence-based framework for implementing #haemophilia #genetherapy, including psychosocial care, based on Exigency study findings. #ISTHCongress #Haemnet #HemeSky #MedSky
🇫🇷 The countdown to #ISTH2026 continues! Posters include insights from our Learning to Live With Severe #Haemophilia study, identifying patterns of disease burden and quality of life impairment. #livedexperience #research #ISTHCongress #Haemnet #HemeSky
🇫🇷We're looking forward to #ISTH2026! Among the posters we're showing are two with more results from our GT360 study on the lived experience of #GlanzmannThrombasthenia. #livedexperience #bleedingdisorders #research #HemeSky #MedSky
With one week to go, the countdown to #ISTH2026 is on! Who's going? We look forward to seeing you there! #ISTHCongress #Haemnet #bleedingdisorders #research #HemeSky @moderation.medsky.network
In the next #Haemcast collaboration with #LFWBD, parents speak about facing challenges with #haemophilia treatment. On #podcast platforms or listen here: https://loom.ly/FTDxWVQ #bleedingdisorders #families #HemeSky #BloodSky @moderation.medsky.network
What were the top ten most accessed articles in #BDCP last month? From patient goals to shared decision-making, the focus is on patient experience, patient-centred care, quality of life, & haemophilia gene therapy. https://loom.ly/mXo6ubE #bleedingdisorders #research #HemeSky #BloodSky
Just under a month until #ISTH2026! As well as showing posters from studies on patient experiences in #Haemophilia and #GlanzmannThrombasthenia, we're looking forward to hearing about the latest cutting edge science and emerging advances in #BleedingDisorders care. #ISTHCongress #HemeSky #BloodSky
Volunteering to donate blood is a humane & generous act that can literally save lives. Our #WorldBloodDonorDay blog looks at its importance to those living with rare & chronic conditions, including bleeding disorders. https://loom.ly/xqH-kv #BleedingDisorders #blood #plasma #HemeSky #BloodSky
Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' #podcast platforms or listen here: https://loom.ly/t0lDAvA #LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
Bleeding disorders are a family affair, as we're hearing in the latest series of #Haemcast. Our video 'No Patient is an Island', based real-life stories, explains why #bleedingdisorders care should be family-focused. Full video: https://loom.ly/XdXPZDU #families #haemophilia #HemeSky #BloodSky
From teamwork & living in the moment to what's missing in terms of support, the next episode in our special #Haemcast collaboration with #LFWBD explores the experiences of partners of people with a bleeding disorder. 🎧 https://loom.ly/Aag-rjQ #bleedingdisorders #relationships #families #HemeSky
Interested to hear about family life with a #bleedingdisorder? 3 episodes of our family-focused #Haemcast series with #LFWBD are now available — and the next is coming soon! Search on your on #podcast platforms or link here https://loom.ly/A4UWu6M #families #HemeSky #FMSky @medsky.social
There's a strong #qualityoflife theme in April's top ten most read articles in Bleeding Disorders: Care & Practice, plus #haemophilia, #genetherapy, a #transgender case study, and the cross-generational impact of #ContaminatedBlood. loom.ly/uIXcNF8 #bleedingdisorders #HemeSky
Empowered Nurses Save Lives! On #IND2026, who better to talk to about nurses & bleeding disorders care than Dr @katekhair.bsky.social, who this year received a WFH Volunteer Award. On the #Haemnet blog: https://loom.ly/K4dPAKs #OurNursesOurFuture #HemeSky
Did you know about #IHMBDay on 11 May? Living with heavy periods isn't "just one of those things" or "just part of being a woman". It can have huge impacts on health and quality of life. Individualised, life-stage-relevant care can make a huge difference. #BleedBetter #women #HMB #HemeSky
We've loved hearing more poetry from the #LFWBD'Bleeding and Belonging' collection, this time on radio: https://loom.ly/S4kDcyM. Read the collection here: https://loom.ly/z2x2Wtc #bleedingdisorders #families #HemeSky @mod.medsky.network
What matters most when choosing #haemophilia treatment for a child or yourself? New family-focused #Haemcast episode out now, with #LFWBD. Available on podcast platforms or listen here: https://loom.ly/A-Xo9A0 #families #podcast #HemeSky @medsky.social
Topics in the #BDCP top 10 articles for March include patient experiences of treatment, #haemophilia #genetherapy and quality of life. Explore the archives here: https://loom.ly/uIXcNF8 #bleedingdisorders #livedexperience #HemeSky @medsky.social